Archive for policy
Medical care for youth with neurodevelopmental disabilities: A call for change
According to national data, one in six children has a neurodevelopmental disability (NDD) such as autism, intellectual disability, or ADHD. Their medical care is often inadequate, sometimes leaving conditions untreated and neglecting preventive care — with poorer outcomes as the result. Clinicians may not take time to communicate with children, teens, and young adults with ... Read More about Medical care for youth with neurodevelopmental disabilities: A call for change
Making a difference in children’s lives: A guide to the 2022 election season
Voting is your right and your way to make a difference in children’s lives. When you cast your vote, you’re letting elected officials know where you stand on issues such as access to health care, behavioral health, and child nutrition programs. In this spirit of civic engagement, Boston Children’s Hospital encourages all eligible citizens to make their voices ... Read More about Making a difference in children’s lives: A guide to the 2022 election season
Beyond HIPAA: Maintaining patient privacy in a big data era
After a prolonged, painful era in which medical data were exchanged mainly by fax, most patients today have electronic health records. But the data within them aren’t as private as they might think, says Kenneth Mandl, MD, MPH. As director of the Computational Health Informatics Program (CHIP) at Boston Children’s Hospital, he’s seen patient data ... Read More about Beyond HIPAA: Maintaining patient privacy in a big data era
Newborn genetic screening for pediatric cancer risk could save lives
Numerous genetic mutations increase children’s risk for various cancers. When they are detected early, cancers can potentially be caught at an early, more treatable stage — or avoided entirely. Could adding such “cancer predisposition” genes to routine newborn “heel-stick” screening save lives? Lisa Diller, MD, chief medical officer at the Dana-Farber/Boston Children’s Cancer and Blood ... Read More about Newborn genetic screening for pediatric cancer risk could save lives
Poverty predicts worse cancer outcomes, even in children receiving top-tier care
A pair of recent studies suggests that even among patients receiving advanced cancer care, poverty is a predictor of worse outcomes. The disturbing findings raise many questions that follow-up studies are now exploring. Key takeaways Poverty was associated with 3.7-fold higher mortality among children receiving targeted immunotherapy for high-risk neuroblastoma. Household poverty was associated with ... Read More about Poverty predicts worse cancer outcomes, even in children receiving top-tier care
Affordable Care Act eases health care costs for families with children, study finds
On November 10, the U.S. Supreme Court will hear arguments on a case challenging the Affordable Care Act. With the ACA’s future in question, a study from Boston Children’s Hospital provides a reminder that the law has substantially reduced health care expenses for many families with children — particularly low- and middle-income families. Key takeaway ... Read More about Affordable Care Act eases health care costs for families with children, study finds
Concerning rates of opioid prescribing to teens and youth
Teens and young adults are notably susceptible to misusing opioids and becoming addicted once exposed. Opioids should be used with great care in this group. Yet a large national study from Boston Children’s Hospital finds that opioid prescriptions to youth aged 13-22 are much like those in older adults. Based on 2005-2015 data from the ... Read More about Concerning rates of opioid prescribing to teens and youth