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Get ready, Capitol Hill! 🇺🇸 Next week, our amazing advocate, Adrian, will join fellow Boston Children’s families and children’s hospitals from across the country for Family Advocacy Day. Together, we’ll meet with Members of Congress to advocate for policies that support children’s health and raise awareness about the critical importance of children’s hospitals. See you there! 💙 #FAD2026 Children's Hospital Association
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Today we’re checking in with Aydan! ✨ When he was just 2, he came to our Brain Tumor Center to have a large craniopharyngioma removed. Now, this joyful kindergartner is thriving, whether he’s making people laugh or performing his first piano recital. After temporarily relocating from Florida for his care, he and his family are about to move back to Boston. “We can’t wait to be closer to Aydan’s Boston Children’s team again,” says his mom. 💙 #BrainTumorAwarenessMonth
Full story here: ms.spr.ly/6183vZHkf
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Meet Bella! 🌟 In January, she underwent surgery to remove an epidermoid cyst in her brain. It was a life-changing experience that she says scared her, frustrated her, and made her question everything. Today, she considers herself a miracle. 💜 Swipe to see pictures from her path to recovery and how she’s doing now.
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In its 17th year, HAIRraising for Boston Children’s Hospital raised $153K and counting! John Frieda himself couldn’t resist the allure of the annual fundraising event where Boston area salons come together to host their own cut-a-thon. All funds raised go directly to The Benderson Family Heart Center at Boston Children’s Hospital. Our hearts are so full of gratitude for all those who participated this year.
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In August 2024, Mia’s pediatrician in Florida heard a murmur and told her and her family to visit a local cardiologist. After receiving the news that Mia would need open-heart surgery for an atrial septal defect (ASD), her parents joined online support groups to research their options. ❤️🩹
They learned that Boston Children’s offers a unique treatment option to repair an atrial septal defect, called a thoracotomy. Instead of accessing the heart through the chest, Mia’s ASD was treated with a small incision underneath the armpit, resulting in quicker post-surgery recovery.
She recently came back for a one-year check-up and has been better than ever! 👏 Learn more about how we treat atrial septal defects in the link in bio.
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The history of cystic fibrosis diagnosis
In 1955, Dr. Harry Shwachman, head of Boston Children’s Cystic Fibrosis Clinic, developed the first practical sweat test to diagnose cystic fibrosis (CF). It involved encasing the patient’s body in a plastic bag to collect sweat, then using the pictured device to measure levels of salt in the sample. Cystic fibrosis causes sweat to be 2-5 times saltier than average. The sweat test allowed for much simpler and earlier diagnosis of CF, crucial to effective treatment. A version of it is still the main diagnostic tool used today.
Learn more about Boston Children’s Archives Program.