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For rare conditions, experience matters. When Sophia began experiencing sudden, rapid weight gain, her family knew something wasn’t right.
Their search for answers led them from New York to Boston Children’s Hospital, where Sophia was diagnosed with rapid-onset obesity with hypothalamic dysfunction, hypoventilation, and autonomic dysregulation (ROHHAD) syndrome—a rare and complex condition.
At the Neuroimmunology Center, our specialists bring extensive experience caring for rare conditions like ROHHAD, combining specialized care with research to help advance understanding and treatment. Click the link in bio to read about Sophia’s story and how she’s able to enjoy life to the fullest after establishing a treatment plan tailored to her specific needs: bostonchildrens.social/4jw62aZ
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If you or a family you know is struggling to access services with us because of
insurance reasons or insurance bills are stacking up, the Boston Children’s Financial
Assistance program is here to help. Visit our website for additional information.
Patients & Families | Billing & Insurance | Boston Children's Hospital
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Information about billing and insurance at Boston Children's Hospital.0 CommentsComment on Facebook
A special message from J O E J O N A S 💙 Before the Jonas Brothers take the stage in Boston tonight, Joe stopped by the hospital and wanted to send some extra love to all of our patients. 🥹 We’re so grateful for the visit and for thinking of our patients today!
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Thank you, Paige, for your amazing support of Boston Children’s Hospital! After beginning treatment at Boston Children’s, 6-year-old Paige wanted to give back and help other kids like her get lifesaving answers. This summer, she raised an incredible $4,000 for the Every Child Fund through her lemonade stand. Way to go, Paige! And a big squeeze of thanks to the many lemonade stand fundraisers who turned lemons into impact for Boston Children’s this summer.
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Not long after birth, Spencer needed constant care at Boston Children’s as he waited for a heart transplant. Now home with a new heart, Spencer is loving Disney movies and just recently was all smiles vacationing in Ireland. Read how his parents learned to navigate the transplant process and what they want other parents to know. ⤵️
Life after a heart transplant - Boston Children's Answers
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Now home after a heart transplant, Spencer is loving nursery rhymes and just recently had a blast vacationing in Ireland.1 CommentsComment on Facebook
The history of cystic fibrosis diagnosis
In 1955, Dr. Harry Shwachman, head of Boston Children’s Cystic Fibrosis Clinic, developed the first practical sweat test to diagnose cystic fibrosis (CF). It involved encasing the patient’s body in a plastic bag to collect sweat, then using the pictured device to measure levels of salt in the sample. Cystic fibrosis causes sweat to be 2-5 times saltier than average. The sweat test allowed for much simpler and earlier diagnosis of CF, crucial to effective treatment. A version of it is still the main diagnostic tool used today.
Learn more about Boston Children’s Archives Program.