Patient Stories
Top Stories
Stay connected!
Sign up for our weekly email newsletter for the latest parenting tips, patient stories, and news for your family from Boston Children's
Subscribe nowMore Stories
Patient Stories
Patient Stories
Research
Research
Visit us on Facebook
685,612
Thank you to everyone who joined our The Benderson Family Heart Center at Boston Children’s Hospital #CardiacConversations webinar on aortic valve care for adults! We hope you found it informative and helpful.
🎥 The full webinar is now available on YouTube!
📺 Watch here: ms.spr.ly/6181QfVRS
Stay tuned for future webinars and check out past episodes on our YouTube channel!
0 CommentsComment on Facebook
Thank you so much to Brady and his family & friends—they’ve raised over $3,000 for kids at Boston Children’s Hospital. Brady was rushed to Boston Children’s when he was only a week old. Doctors here saved his life. To give back, Brady’s community rallies to raise money at his birthday celebrations. Want to plan your own fundraiser to help kids at Boston Children's? Learn how to host a fundraiser: ms.spr.ly/6189Q4LTN
1 CommentsComment on Facebook
April is Donate Life Month! Check out more from Pediatric Transplant Center at Boston Children's Hospital below 💙👇 and register to be an organ donor here: www.registerme.org/campaign/bchPlease meet Malik (MJ)⤵⤵⤵
At 48 hours old, Malik was diagnosed with metabolic disorder (CSP1 deficiency) and was a liver transplant recipient at 5 years old.
#becauseofadonor Malik is able to complete his first full year of school, play soccer and eat his new favorite food - orange chicken!!
Gift the gift of life today! Register to be an organ donor at www.registerme.org/campaign/bch
2 CommentsComment on Facebook
Don't miss Dr. Alli O’Neill speaking in a live Zoom panel discussion about the new Fibrolamellar guidelines! More info below 👇
New Clinical Guidelines for FLC published
fibrofoundation.org
A landmark, evidence‑based clinical guideline for the diagnosis and treatment of fibrolamellar carcinoma (FLC) has been released online ahead of publication i0 CommentsComment on Facebook
Get ready for Extra Life’s Tabletop Weekend 4/10-4/12.👾 Shuffle up some fun and host a retro game night (think: board games, Tabletop RPGs, collectible card games) to benefit kids at Boston Children’s. Drop your all-time favorite game in the comments 🎲
Play anytime in April for the chance to unlock a reward. Register now: ms.spr.ly/6180Q0bii
0 CommentsComment on Facebook
The history of cystic fibrosis diagnosis
In 1955, Dr. Harry Shwachman, head of Boston Children’s Cystic Fibrosis Clinic, developed the first practical sweat test to diagnose cystic fibrosis (CF). It involved encasing the patient’s body in a plastic bag to collect sweat, then using the pictured device to measure levels of salt in the sample. Cystic fibrosis causes sweat to be 2-5 times saltier than average. The sweat test allowed for much simpler and earlier diagnosis of CF, crucial to effective treatment. A version of it is still the main diagnostic tool used today.
Learn more about Boston Children’s Archives Program.