Patient Stories
Top Stories
Stay connected!
Sign up for our weekly email newsletter for the latest parenting tips, patient stories, and news for your family from Boston Children's
Subscribe nowMore Stories
Patient Stories
Patient Stories
Patient Stories
Patient Stories
Visit us on Facebook
683,525
We had the best time at New England Patriots training camp last weekend with our friend Drake Maye and his teammates! We're not sure what we loved the most — the popsicles, meeting players and coaches, or making new friends under the tent. Thanks to the New England Patriots Foundation for hosting us! We can’t wait for football season. 🏈🍦❤️
14 CommentsComment on Facebook
Meet Grace. She’s a psychology major, a sorority leader, a camp counselor, a barista, and an open book when it comes to the gastric bypass surgery she had at 16 years old. Read her story: ms.spr.ly/6188vhfbA
4 CommentsComment on Facebook
What a special afternoon with Noah Cyrus and her instrumentalist Liam Kevan! Between bedside visits and a music and Q&A session in #SeacrestStudios, the pair brought unforgettable moments for our patients last week. Thank you for sharing your wonderful talent with us while you were in Boston! 💙🎶
2 CommentsComment on Facebook
Wyatt and his twin brother, Gavin, were born at 22 weeks. At just over 1 pound, Wyatt became the smallest baby to undergo transcatheter PDA closure through our Premature PDA Closure Program. The procedure closed a blood vessel in his heart that had remained open after birth. Read about the boys: ms.spr.ly/6186vAKP0
66 CommentsComment on Facebook
Boston Children’s is proud to join the Broad Institute and The Jackson Laboratory to launch the Center for Therapeutic Genetics (CTG) — a new collaboration advancing genetic medicines for rare diseases.
Fewer than 1 in 20 rare diseases currently has an approved treatment. CTG is working to change that by building scalable approaches to develop personalized therapies faster and expand access for more patients and families.
Led by Boston Children’s Drs. Wendy Chung and Timothy Yu, alongside collaborators Dr. David Liu, Dr. Cat Lutz, and Dr. Winston Yan, this effort brings together leaders in genetics to make individualized medicine more efficient, accessible, and repeatable.
This is what the future of rare disease care can look like.
5 CommentsComment on Facebook
The history of cystic fibrosis diagnosis
In 1955, Dr. Harry Shwachman, head of Boston Children’s Cystic Fibrosis Clinic, developed the first practical sweat test to diagnose cystic fibrosis (CF). It involved encasing the patient’s body in a plastic bag to collect sweat, then using the pictured device to measure levels of salt in the sample. Cystic fibrosis causes sweat to be 2-5 times saltier than average. The sweat test allowed for much simpler and earlier diagnosis of CF, crucial to effective treatment. A version of it is still the main diagnostic tool used today.
Learn more about Boston Children’s Archives Program.