Archive for advocacy
Going back to school with a chronic condition
Going back to school can be a time of excitement for many families: Your kids are looking forward to reconnecting with their friends — and you’re looking forward to watching them learn and grow. But for caregivers of children and teens with chronic or complex conditions, preparing for a new school year involves much more ... Read More about Going back to school with a chronic condition
Hurdles in health care: Navigating insurance approvals
If you’ve ever struggled with your patient’s insurance company when it came to getting their prescription filled, you’re not alone. For patients with chronic conditions, including inflammatory bowel disease (IBD), newer drugs like biologics can be very effective — but also very expensive. As a result, many insurance companies have limited access to these medications ... Read More about Hurdles in health care: Navigating insurance approvals
All eyes on retinoblastoma: How Lyla and her mom are helping change lives
Meghan Landry firmly believes that art saved her daughter Lyla’s life. Now, she hopes to leverage the power of creativity to help support other kids like Lyla, who was diagnosed with retinoblastoma at 18 months old. Meghan, who lived in Florida at the time, was waiting with Lyla for a routine pediatrician appointment when she ... Read More about All eyes on retinoblastoma: How Lyla and her mom are helping change lives
Emmie’s journey with type 1 diabetes and celiac disease
Emmie knows more about her own medical history than most children her age. Her journey to finding answers started when she was just 4 years old. She woke up one day looking “like I ate a bunch of blueberries or blackberries — my lips were turning blue,” explains Emmie, now 7. Her mom, Amanda, wasted ... Read More about Emmie’s journey with type 1 diabetes and celiac disease
Save that shot and your child’s teeth: The benefits of mouthguards
Competitive sports can get intense. They can also get physical, with athletes inadvertently colliding and balls moving fast at all kinds of angles. We spoke with Zameera Fida, DMD, an associate in the Department of Dentistry at Boston Children’s Hospital, about the importance of mouthguards and what you should do when not only your child resists but also ... Read More about Save that shot and your child’s teeth: The benefits of mouthguards
Making a difference in children’s lives: A guide to the 2022 election season
Voting is your right and your way to make a difference in children’s lives. When you cast your vote, you’re letting elected officials know where you stand on issues such as access to health care, behavioral health, and child nutrition programs. In this spirit of civic engagement, Boston Children’s Hospital encourages all eligible citizens to make their voices ... Read More about Making a difference in children’s lives: A guide to the 2022 election season
Advocating for herself: Drew takes lymphedema in stride
Five-year-old Drew Rossi has no problem explaining why she wears a daily compression garment. “I have lymphedema,” she tells anyone who asks about the compression sock on her left leg. “She took this diagnosis and ran with it,” says her father, Don. “She’s already a great advocate.” Don and his wife, Kerri, knew that something ... Read More about Advocating for herself: Drew takes lymphedema in stride
Breaking down barriers: How interpreters can enhance patient care
Sharing medical concerns with clinicians can be hard for anyone — a challenge that’s amplified in patients when English isn’t their first language. The results are troubling: One recent study by Boston Children’s pediatric hospitalist and researcher Alisa Khan, MD, MPH, found that patients and families who have limited English proficiency are three to five ... Read More about Breaking down barriers: How interpreters can enhance patient care
COVID-19’s devastating toll: An increase in adolescent suicides and mental health crises
The past decade has seen worrisome increases in self-harm, suicidal ideation, and suicide attempts among adolescents. Two new studies from Boston Children’s Hospital show that the situation became even more acute with the onset of COVID-19. Epidemiologist Maimuna Majumder, PhD, and colleagues at the Computational Health Informatics Program (CHIP) at Boston Children’s partnered with public health ... Read More about COVID-19’s devastating toll: An increase in adolescent suicides and mental health crises
Outdoors and indoors — How to keep your child active in winter
Don’t let frigid temperatures, snow and ice, and fewer hours of sunlight prevent your child from being active. Instead of giving into the winter blues, embrace the season and ensure that fun physical fitness activities are part of your child’s daily routine. There’s good reason to stay active: “Exercise increases aerobic fitness, strengthens muscles and ... Read More about Outdoors and indoors — How to keep your child active in winter