Finding hope in hard times: Max’s journey with ulcerative colitis and primary sclerosing cholangitis
When Rachel’s son, Max, had a string of persistent symptoms that caused him to be in and out of their local pediatrician’s office, Rachel knew something deeper was going on. “He would wake up from a deep sleep with intense abdominal pain, fever, and vomiting, he was very sick.” Their pediatrician thought Max just had ... Read More
From PediaSure to pizza: Benjamin’s journey with esophageal stricture
This fall, Benjamin Hawkins and his family visited a local orchard to go apple picking. It’s a beloved tradition for many people, but this visit was extra special for Benjamin: For the first time in his life, he could take a big bite out of the apple he’d just plucked from a tree. In fact, ... Read More
Bladder surgery after Ewing sarcoma helps Paralympian get back on the slopes
Thomas Walsh’s email signature includes the phrase, “No struggle, no progress.” It’s a motto that Thomas, 27, has lived by since he was a teenager. An avid skier who has been competing since he was just 5 years old, he faced a different kind of opponent when he was diagnosed with Ewing sarcoma at age ... Read More
Back from the bench: How my AVM was a new beginning
It’s crazy how something you once thought was the worst thing that could ever happen to you turns out to be one of the best. My AVM is one of those things. My name is Davidson Jump. I’m from a small town in Ohio where football — high school football especially — is a big ... Read More
Maternal-fetal care helps ‘All Smiles Myles’ beat a CPAM
Myles Gifford is “fearless and defiant,” says his mother, Katy. “We’ll be in big trouble when he’s a teenager,” she laughs. “But it’s benefited him so far.” In fact, Myles, now more than 18 months old, needed to draw on his perseverant personality almost as soon as he was born. Katy, her husband, Mike, and ... Read More
With support for genetic condition trisomy 18, Brooklyn ‘tells her own story’
Erin and Tim Haggan quickly realized they would always be seeking answers after learning the child they were expecting had trisomy 18. It is a life-threatening chromosomal condition, and only about 10 percent of children live beyond their first year. Those who survive grow slowly and often have congenital heart defects (CHD) and other organ anomalies. The couple ... Read More