‘Our silver lining’: Mila is thriving after CDH repair
For Katie and Louie, last St. Patrick’s Day wasn’t an occasion for revelry. Instead, it was the day an ultrasound revealed that their daughter, Mila, would be born with a congenital diaphragmatic hernia (CDH). In this condition, the diaphragm — the layer of muscle and tissue between the chest and abdominal cavity — forms with ... Read More
Bringing Xavien home: One family’s journey with bronchopulmonary dysplasia
Xavien Velazquez is getting ready to celebrate his first birthday. It’s a milestone for every child but especially meaningful for this little boy who has spent more than half his life away from home receiving care for bronchopulmonary dysplasia (BPD), a chronic lung disease characterized by respiratory distress that is most often seen in newborns ... Read More
Unstoppable: Cairo’s journey for kidney care began even before birth
Like lots of babies, Cairo Carter was born screaming — and his parents were thrilled. “We just wanted him to scream so we knew he could breathe,” explains his mother, Alaila. The family cried tears of joy and relief, but they understood that the moment was just the first step of a long journey. “We ... Read More
From South Africa to Boston: Kyleigh’s four-year search for good heart health
Kyleigh Kista had three open-heart surgeries in just the first 18 months of her life. But instead of progressing, her health was rapidly deteriorating by the time she reached 3. Her doctors said there was little else they could do, except make her a candidate for a heart and lung transplant. It was shattering news ... Read More
‘They just cared about Levi’: Finding answers for a complex vascular ring
The first sign that Levi Blair Winkler would no longer have problems swallowing was when, only three days after a complex surgery, he wolfed down four chicken nuggets and an apple. Just as encouraging for his parents, Rachel and Gabe, was that he stopped talking about the bug in his throat. That’s how Levi often ... Read More
Always an athlete: Drew and Legg-Calve-Perthes disease
When he looks back on the diagnosis that forced him to stop playing sports entirely for more than a year, 11-year-old Drew Coperine is philosophical. “There is a bright side,” he says, “there is an end to it.” But when he first learned that he had Legg-Calve-Perthes disease, a degenerative hip condition, it was hard ... Read More