How growing up with sickle cell disease is shaping Nancy’s future
Imagine appearing completely healthy while managing a life-threatening condition. Most people who meet Nancy Blankson would never know she has sickle cell disease (SCD). Her symptoms are not easily visible. It’s a challenge she lives with every day along with periodic pain crises, which at times, she says, can be virtually unbearable. Nevertheless, the 20-year-old ... Read More
Pleuropulmonary blastoma: Caring for Cal
Each time the UPS truck makes its way up Becky Baker’s driveway in Lyons, New York, her 3-year-old grandson, Cal, is certain there’s a package for him. Today, the delivery is in fact for Cal — but not exactly the drivable mini Jeep he was hoping for. “Those are your diapers, buddy,” his grandmother says, ... Read More
A malunion fracture, baseball, and M&M cookies: Tyler’s story
Tyler Weygand loves baseball, and he’s good at it. Good enough that few balls ever get past him in the infield. So good that for nearly ten years, his parents and coaches in Saratoga, NY didn’t realize he could not rotate his left arm due to a malunion fracture. A fracture that healed out of ... Read More
Sending kids to school with celiac disease: One mom shares her story
As a neonatologist, it’s my job to understand and treat babies who need critical care. But as a mom whose two children live with celiac disease, it’s my job to find people who understand their specific medical needs and will advocate for them as much as possible. That’s why I’m so grateful for the Celiac ... Read More
Back to school in 2021: Three families share their stories
It’s been a long year-and-a-half for students since schools first shut down due to COVID-19. Thrust into a situation none were prepared for, students, parents, and teachers have struggled emotionally and academically. After a long period of untraditional schooling, what can parents and students expect, and how can they gear up for the coming school ... Read More
A kiss from their sister: A family’s journey with cleft lip care
Kelly and Ben’s experience with cleft lip care at Boston Children’s Hospital spans multiple years and multiple children. Two of their daughters, Molly and Annie — five years apart in age — were born with an incomplete unilateral cleft lip. The couple won’t shy from admitting that receiving the diagnosis doesn’t get easier. “It’s a ... Read More