Archive for heart center
Treatment for a complex congenital heart defect gives Alyvia ‘endless energy’
She may be just 3 years old, but Alyvia Parker is already making a difference for other kids with congenital heart defects (CHD). This month, she was a guest of honor at Gulfport City Hall, where, thanks to her and her mom’s advocacy, their hometown lawmakers proclaimed it Congenital Heart Defect Awareness Week. The two also ... Read More about Treatment for a complex congenital heart defect gives Alyvia ‘endless energy’
Reconstructing a chest wall, one virtual step at a time
It takes a village of clinicians and engineers to reconstruct a chest wall. It also takes a lot of 3D modeling. A young girl needed to have her chest wall restructured to stop life-threatening airway obstruction. To ensure the complicated operation would be efficient, Emily Eickhoff, a Boston Children’s biomedical engineer, partnered with a team ... Read More about Reconstructing a chest wall, one virtual step at a time
From Pakistan to Boston: Faiz finally found help for his complex heart condition
Don’t let his shy smile fool you. In his hometown of Lahore, Pakistan, 6-year-old Muhammad Butt is known by the nickname “Faiz the fighter.” Faiz had long defied the predictions of local doctors who said the heart surgery he needed would be complicated and instead advised his parents to enjoy the time they had with ... Read More about From Pakistan to Boston: Faiz finally found help for his complex heart condition
After vascular ring surgery, playing and eating are a breeze for Louis
You can’t blame 10-year-old Louis McFaye for eating three hot dogs really fast. Until last summer, he struggled to eat even a single hot dog cut into tiny pieces. That’s because he had a vascular ring, an abnormal formation of the aorta — the body’s largest blood vessel — that compressed his esophagus and trachea. Throughout ... Read More about After vascular ring surgery, playing and eating are a breeze for Louis
A heart valve that grows along with a child could reduce invasive surgeries
Clinical trials have started for the first prosthetic pulmonary valve replacement that is specifically designed for pediatric patients and can expand over time inside a child’s anatomy. Instead of having invasive replacement surgeries every few years, as is the practice now, a child can have the valve fitted to their individual body size and, if ... Read More about A heart valve that grows along with a child could reduce invasive surgeries
The secret to safer heart surgery lies in modernizing an old technique
Of the many features in the recently-opened Hale Family Building at Boston Children’s, maybe one of the most impactful for patients and clinicians is an innovation that puts a new spin on an old way of conducting perfusion in open-heart surgery. Used in cardiac operating rooms (ORs) until only a few decades ago, wall water systems had ... Read More about The secret to safer heart surgery lies in modernizing an old technique
With support for genetic condition trisomy 18, Brooklyn ‘tells her own story’
Erin and Tim Haggan quickly realized they would always be seeking answers after learning the child they were expecting had trisomy 18. It is a life-threatening chromosomal condition, and only about 10 percent of children live beyond their first year. Those who survive grow slowly and often have congenital heart defects (CHD) and other organ anomalies. The couple ... Read More about With support for genetic condition trisomy 18, Brooklyn ‘tells her own story’
Adjusting to sitosterolemia took time, but Justin is now on a healthy path
After Justin Zhao was diagnosed with the rare metabolic disorder sitosterolemia five years ago, the toughest part of treatment was watching his three siblings eat chocolate when he couldn’t. Sitosterolemia is a genetic disease that causes the fatty substances, or lipids, from plant-based foods such as nuts and vegetable oils to build up in the arteries, increasing ... Read More about Adjusting to sitosterolemia took time, but Justin is now on a healthy path
A new view of heart health: Mutations accumulate in the heart starting in childhood
Why do so many people get heart disease when they get older? We know that factors like high blood pressure or high cholesterol contribute to heart disease risk, but they don’t explain all cases. A first-of-its-kind study from Boston Children’s Hospital offers a new lens on heart health. It shows that the cells of our ... Read More about A new view of heart health: Mutations accumulate in the heart starting in childhood
A new lens on cardiac surgery could help prevent arrhythmia
Sometimes, a change in perspective can lead to a medical breakthrough. A type of microscopy typically used to detect cancer and other diseases has been adapted to reveal the location of unseen conduction tissue around the heart. The Boston Children’s clinician behind this innovation now aims to prove the safety and effectiveness of fiber-optic confocal ... Read More about A new lens on cardiac surgery could help prevent arrhythmia