Archive for international
Weathering the storm of Apert syndrome: João’s story
After a “perfect” pregnancy in 2017, Natalia and Igor of Brazil were excited to meet their third child. They were shocked when João was whisked away moments after delivery. “Up until the day before he was born, everything seemed very normal,” says Natalia. “But once he arrived, we could see immediately that something was wrong: ... Read More
Superando as dificuldades da síndrome de Apert: a história do João
Depois de uma gravidez “perfeita” em 2017, os brasileiros Natália e Igor estavam emocionados por conhecer seu terceiro filho. Eles ficaram chocados quando os médicos arrebataram João uns instantes após o parto. “Até o momento em que ele nasceu, tudo parecia muito normal”, afirma Natália. “Mas quando ele chegou, imediatamente percebemos que havia algo errado: ... Read More
Matthew, the ‘wee marvel’: One of the first ALD gene therapy recipients
When the Elliott brothers are asked how many siblings they have, they always say, “four.” It’s a way of honoring the memory of their eldest brother, Marc, who died in 2010 from adrenoleukodystrophy (ALD). ALD is a degenerative condition that destroys the protective sheath surrounding the brain’s neurons. Gradually, as the disease progresses, symptoms grow ... Read More
From Toronto to Boston: Osteochondritis dissecans, hockey, and hope
Hockey is a fast and physical sport. Players need to think and act quickly as their team members, opponents, and the puck zip around the ice. Wherever the puck goes, high-speed collisions often follow. Osteochondritis dissecans is a joint disorder in which a segment of bone and cartilage starts to separate from the rest of ... Read More
From South Africa to Boston: Kyleigh’s four-year search for good heart health
Kyleigh Kista had three open-heart surgeries in just the first 18 months of her life. But instead of progressing, her health was rapidly deteriorating by the time she reached 3. Her doctors said there was little else they could do, except make her a candidate for a heart and lung transplant. It was shattering news ... Read More
One family, two very different clubfoot experiences
Theresah Boateng and her daughter Eno Agyapomaa Agyemang both have strong wills and outgoing personalities. Both were born with a foot deformity called clubfoot, and both received treatment at Boston Children’s Hospital. Yet their experiences differ in many ways. Theresah’s treatment started when she was 15 years old and lasted more than two years. Eno’s ... Read More
Saving baby Marcela: A mother’s mission to finally hold her daughter
The translations of this page are translated from English into another language using Google Translate, a third party tool. Please note that such translations from the English language version may contain errors and/or inaccuracies as a result of the translation. Boston Children’s Hospital disclaims all liability for any errors or inaccuracies that may result from ... Read More
Where the world comes for answers: Meet some of our international patients
Families travel to Boston Children’s Hospital from around the corner and around the globe. This year, we highlighted three of these fantastic kids. Priyanshu’s father searched the world for the care his son needed for his complex heart condition. Photos: Priyanshu (India) A few months after he was born, Priyanshu was diagnosed with double outlet right ... Read More
To #SavePriyanshu: A father’s reach across the world to save his son
Any parent can relate: to the ends of the earth is just the beginning of how far you will go to help your child. Perhaps no one knows this better than Sagar, a father from India whose efforts to save his son stretched across the world and eventually led him to Boston Children’s Hospital. Sagar ... Read More
Saving Laila: Family travels from Egypt for answers about rare genetic condition
When Aya Hendawy got off the plane that had brought her from Egypt to Boston, she didn’t linger in the airport or consider which tourist attractions to visit. Instead, she took a car directly to the Emergency Department at Boston Children’s Hospital, her daughter Laila in tow. “I asked them to please try to save ... Read More