Archive for heart patient
After surgery for heart condition tetralogy of Fallot, James is all joy
Warriors come in all shapes and sizes. Some even smile. In the Irvine family, the lead warrior is a happy one: 6-month-old James, whose cheeriness hides the difficult medical journey he had in the first few months of life. “I have been told by many people that James is an inspiration,” says his mom, Heidi. ... Read More about After surgery for heart condition tetralogy of Fallot, James is all joy
Twenty years after a groundbreaking biventricular repair, Faith gives back by helping children with CHD
Faith Brackett doesn’t remember every detail of the time she was among the first children to have a new life-saving heart surgery. She was 7, after all, when she had a biventricular repair — a procedure that creates two functioning ventricles in a heart relying on just one. But she does remember how the surgery finally gave ... Read More about Twenty years after a groundbreaking biventricular repair, Faith gives back by helping children with CHD
A lifetime of treatment inspires Ruth to advocate care for others
Ruth Ngwaro offers guidance to children who have heart disease. Perhaps her most useful bit of advice is telling them to not look too far ahead in their lifelong journeys and instead focus on what they can do each day. She would know: Throughout childhood and well into adulthood, Ruth was in and out of ... Read More about A lifetime of treatment inspires Ruth to advocate care for others
Un verdadero corazón de oro: El viaje de Jeremiah hacia un trasplante de corazón
Con las sirenas sonando, Angelie y su esposo atravesaron el tráfico a toda velocidad, ansiosos por llegar a tiempo a la ciudad. La escolta policial que tenían delante les despejó el camino, lo que les permitió trasladarse rápidamente al Boston Children’s Hospital, donde los esperaba su hijo de 6 años, Jeremiah, apodado JJ. Si Angelie ... Read More about Un verdadero corazón de oro: El viaje de Jeremiah hacia un trasplante de corazón
A true heart of gold: Jeremiah’s heart transplant journey
With sirens wailing, Angelie and her husband sped through traffic, anxious to get to the city in time. The police escort ahead of them cleared the way, allowing for a speedy commute to Boston Children’s Hospital where their 6-year-old son, Jeremiah — nicknamed JJ — was waiting for them. If Angelie hadn’t waved down the ... Read More about A true heart of gold: Jeremiah’s heart transplant journey
Chloe navigates Marfan syndrome with a positive attitude — and a responsive care team
Chloe Burian has always defied expectations. Despite surgeries and other treatments for several conditions that stem from the genetic disorder Marfan syndrome, the 12-year-old remains upbeat. “Nothing bothers her,” says Chloe’s mom, Audrey. “She goes through life with a smile.” Still, there were moments of doubt along the way, especially when Audrey and her husband, Rudy, ... Read More about Chloe navigates Marfan syndrome with a positive attitude — and a responsive care team
A ‘super’ new heart surgery for a super kid
When you’re the first person in the world to undergo a new type of heart surgery, you don’t have to use the procedure’s clinical name. You can give it any name you want, even your own. That’s what 7-year-old Easton Schlein’s family has done. While his Boston Children’s cardiac surgery team calls the groundbreaking procedure a “reverse ... Read More about A ‘super’ new heart surgery for a super kid
After complex heart surgery, Yah’ir is all smiles
Christina Moreland and Jimmy Austin want their 6-month-old son, Yah’ir, to have a bright future, one where he can pursue all of his dreams. “He can do whatever he wants to do,” Christina says. There’s just one caveat, an understandable one considering that Yah’ir is recovering from complex heart surgery. “As long as he doesn’t ... Read More about After complex heart surgery, Yah’ir is all smiles
Treatment for a complex congenital heart defect gives Alyvia ‘endless energy’
She may be just 3 years old, but Alyvia Parker is already making a difference for other kids with congenital heart defects (CHD). This month, she was a guest of honor at Gulfport City Hall, where, thanks to her and her mom’s advocacy, their hometown lawmakers proclaimed it Congenital Heart Defect Awareness Week. The two also ... Read More about Treatment for a complex congenital heart defect gives Alyvia ‘endless energy’
From Pakistan to Boston: Faiz finally found help for his complex heart condition
Don’t let his shy smile fool you. In his hometown of Lahore, Pakistan, 6-year-old Muhammad Butt is known by the nickname “Faiz the fighter.” Faiz had long defied the predictions of local doctors who said the heart surgery he needed would be complicated and instead advised his parents to enjoy the time they had with ... Read More about From Pakistan to Boston: Faiz finally found help for his complex heart condition