Patient Stories
Lucas receives gene therapy for DMD and finds his super muscles
Lucas Toro has a lot in common with Gekko, the cartoon character from PJ Masks. They’re both “little guys” whose strength surprises people. And they both use their muscles for good. Getting strong is a new feeling for Lucas — one he’s using to blaze new trails for other kids. In September 2023, he became ... Read More about Lucas receives gene therapy for DMD and finds his super muscles
Patient Stories
‘The reason I became a nurse’: Maeve’s memories of laryngeal cleft repair
Being a gastroenterology nurse is more than a profession for Maeve Lee. When she cares for patients with feeding tubes, she’s also paying it forward. More than two decades ago, Maeve experienced many of the same challenges her patients face today. Medical mystery At first, Maeve seemed like a perfectly healthy newborn, but then she ... Read More about ‘The reason I became a nurse’: Maeve’s memories of laryngeal cleft repair
Clinical Care
Three ways to ensure your child has the proper asthma medication
Children who have asthma should always have access to medication. But a manufacturer’s decision to stop producing a popular asthma drug has many families scrambling to find alternative medications that are covered by health insurance. Prescriptions sometimes change for families because a medication is discontinued or there are coverage changes by health insurers and pharmacies, ... Read More about Three ways to ensure your child has the proper asthma medication
Patient Stories
Celebrating the unexpected, Miley’s family navigates Apert syndrome
Miley is the first girl born into her family in almost a generation. Hearing the delivery team announce, “It’s a girl,” is a moment her mom, Nicole, and her dad, Mike, will always remember. “We just cried,” says Nicole. “I’ll never forget that moment.” But what they also discovered at delivery was something else they ... Read More about Celebrating the unexpected, Miley’s family navigates Apert syndrome
Clinical Care
How Boston Children’s physicians have teamed up to tackle obesity and food insecurity
When nutritious, high-quality food is not easily accessible, families are often left to purchase what is available — usually, highly processed, nutrient-poor food. Children in these households — who also have food insecurity and various socio-economic stressors — face additional barriers and are at risk for developing chronic diseases, such as obesity. To address such ... Read More about How Boston Children’s physicians have teamed up to tackle obesity and food insecurity
Patient Stories
‘Empowered to be there for Teagan’: New parents learn about hearing loss
Teagan O’Brien is a bright, spunky 4-year-old who loves reading, dancing, and playing outdoors. Her parents, Kim and Donnie, are firefighters who throw themselves into any new situation. Since they adopted Teagan three-and-a-half years ago, they’ve thrown themselves into supporting her with help from her team at Boston Children’s Hospital. Teagan was already a patient ... Read More about ‘Empowered to be there for Teagan’: New parents learn about hearing loss
Research
Mending injured hearts: Lessons from newborns?
When the heart is injured, as in a myocardial infarction, the damaged heart muscle cannot regenerate — instead, scar tissue forms. Cardiomyocytes, the heart muscle cells that generate contractile force, are lost for good. Yet, in mouse models, the hearts of newborns regenerate readily after injury. How are newborn hearts able to recover? What are ... Read More about Mending injured hearts: Lessons from newborns?
Patient Stories
Finding comfort and answers for twin-twin transfusion syndrome: Shannon’s story
Shannon’s journey through a challenging pregnancy with TTTS (twin-twin transfusion syndrome) was, as she puts it, an emotional rollercoaster. In addition to the usual first-time parent jitters and the unexpected news of twins, Shannon and Mike navigated the emotional ups and downs of the rare pregnancy complication. TTTS put their twins at severe risk of ... Read More about Finding comfort and answers for twin-twin transfusion syndrome: Shannon’s story
Clinical Care
Medical care for youth with neurodevelopmental disabilities: A call for change
According to national data, one in six children has a neurodevelopmental disability (NDD) such as autism, intellectual disability, or ADHD. Their medical care is often inadequate, sometimes leaving conditions untreated and neglecting preventive care — with poorer outcomes as the result. Clinicians may not take time to communicate with children, teens, and young adults with ... Read More about Medical care for youth with neurodevelopmental disabilities: A call for change
Health and Parenting
Questions to ask about your child’s orthopedic care
Maybe your child has an orthopedic injury and needs surgery, or maybe they need to be treated with a different method. Either way, asking questions can help you understand their doctor’s recommendations and how to prepare for whatever comes next. “Families often find themselves unprepared for their child’s mobility limitations as they heal from surgery ... Read More about Questions to ask about your child’s orthopedic care