Archive for fetal medicine
A lifetime of care: Looking back with nurse Donna Morash
On August 30, Donna Morash, a registered nurse in the Boston Children’s Hospital Advanced Fetal Care Center (AFCC), will retire after 46 years of service to families. We asked her to share some of her favorite memories from her career at Boston Children’s. Why did you originally choose to work at Boston Children’s? I was ... Read More
Fetal treatment for vein of Galen malformations
Vein of Galen malformations (VOGMs) are rare, life-threatening vascular malformations that often cause heart failure in neonates. The preferred postnatal treatment for VOGM is transarterial embolization [1]. Although often diagnosed in utero, currently no in utero treatments exist. The Institutional Review Boards (IRBs) at Boston Children’s Hospital and Brigham & Women’s Hospital have agreed that ... Read More
A note for my nurse
In honor of Nurses’ Week, we asked a few of our patients and their families to share what their favorite nurse means to them. Jack — Leah Frain, FNP “Leah is a kind and beautiful lady. She helps kids stop getting sick. I like giving her hugs. And kisses, too! My favorite memory of Leah ... Read More
Daphne’s story: Lifting the fog on bladder exstrophy
The day of their 18-week prenatal appointment was the first day of the most difficult 18 months of Pam and Jon’s life. When the ultrasound technician couldn’t see their baby’s bladder, they were sent home to try again later. They had so many questions, plus a 2-year-old daughter, their careers, and a house to take ... Read More