Archive for spina bifida
On her own terms: Robot-assisted procedure gives Sage more independence
At 19, Sage Nault has had multiple surgeries, aimed at addressing challenges related to myelomeningocele, the most severe form of spina bifida. But it’s her most recent operation that might have the greatest impact on her quality of life. Known as a Mitrofanoff appendicovesicostomy and a Malone antegrade continence enema (MACE), the combined procedure has ... Read More
Tough yet flexible: Biologically inspired adhesive may improve fetal surgery
In children with spina bifida, the neural tube that forms the spinal cord and brain doesn’t close during early prenatal development. That leaves the nerves of the spinal cord exposed to potential damage from fetal movement and the surrounding amniotic fluid. While surgeons can repair spina bifida soon after birth, the ideal would be to ... Read More
Another level of gratitude: Spina bifida care for Liam
Most parents first walk through the doors of Boston Children’s Hospital seeking answers about their child’s health. But until recently, when Mary Holleran arrived at the hospital, she was simply beginning another day at work. A nurse practitioner, she’s been on staff at Boston Children’s for more than a decade, much of it spent caring ... Read More
Urodynamics testing: What to expect
If your child has been diagnosed with a colorectal or pelvic malformation, they may also experience urological problems such as vesicoureteral reflux, hydronephrosis, or neurogenic bladder. These conditions can make it difficult to store or empty urine properly, leading to incontinence and accidents. “For these reasons, a urologist is often involved in the care of ... Read More