Health and Parenting
Helping your kids understand and cope with anti-Asian racism
Over the past year, there has been an alarming increase in anti-Asian sentiment and discrimination in the United States. The advocacy and hate reporting group Stop AAPI (Asian American Pacific Islander) Hate reports more than 6,600 hate incidents — including harassment, shunning, and physical attacks — since the start of the COVID-19 pandemic in March 2020. ... Read More about Helping your kids understand and cope with anti-Asian racism
Clinical Care
Single Ventricle Cardiac Home Monitoring Program empowers families to care for fragile newborns at home
A single ventricle heart condition is a congenital cardiac defect in which only one of the heart’s two ventricles is functioning properly. It is most often corrected with three surgeries: the first, shortly after birth, the second, when a baby is 4 to 6 months old, and the third in the toddler years. The Single ... Read More about Single Ventricle Cardiac Home Monitoring Program empowers families to care for fragile newborns at home
Health and Parenting
Can we explain sudden infant deaths? It’s complicated.
Since the early 1990s, “Back to Sleep” campaigns have urged parents to place infants to bed on their backs to prevent suffocation and sudden infant death syndrome (SIDS). The results were clear: from 1992 to 1996, SIDS fell by more than half. But since then, rates of what is now called sudden unexpected infant death (SUID) ... Read More about Can we explain sudden infant deaths? It’s complicated.
Health and Parenting
Could returning to sports after COVID-19 harm kids’ mental health?
After a year away from playing, athletes everywhere are excited to jump back into the sports they love. And for the most part, participating in sports is great for kids’ mental health. Yet for some, the demands of training and competition can cause stress and anxiety. While their teammates celebrate their return to play, some ... Read More about Could returning to sports after COVID-19 harm kids’ mental health?
Clinical Care
Nurses Week 2021: Integrating new therapies into nursing practice and patient care delivery
A revolution in pharmacological gene therapy is underway, as indicated by a significant acceleration in the creation of new therapies to treat genetic disorders at the molecular level. Boston Children’s Hospital Nursing and extended team members, in collaboration with hospital researchers and scientists, biotech, and biopharma partners, have developed a set of specific processes to ... Read More about Nurses Week 2021: Integrating new therapies into nursing practice and patient care delivery
Research
Study links urinary incontinence in female athletes to low energy availability
Urinary incontinence (UI) is a common experience for female athletes that can significantly impact their enjoyment of and participation in sports. Previous studies have shown that female athletes who experience urinary incontinence are more likely to drop out of their sports. Noting a large number of female athletes presenting with urinary incontinence, physicians in the ... Read More about Study links urinary incontinence in female athletes to low energy availability
Clinical Care
Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
For children needing parenteral nutrition (PN) — nutrition given through an intravenous line (IV) — the journey from the hospital to home was once long and arduous. But the prospects for these patients are much brighter today, thanks to the care provided by the Boston Children’s Hospital Home Parenteral Nutrition (HNP) Program. The program — ... Read More about Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
Research
Teaming up to fast track a novel gene therapy for Diamond-Blackfan anemia
Looking at Lindsay Krieg, it’s impossible to tell she has spent her entire 29 years in an out of hospitals managing a rare blood disorder. “It’s routine for me,” she says. “It’s all I’ve ever known.” Diamond-Blackfan anemia (DBA) prevents Lindsay’s bone marrow from producing the red blood cells essential for carrying oxygen from her ... Read More about Teaming up to fast track a novel gene therapy for Diamond-Blackfan anemia
Patient Stories
Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Norman Flores is near the top of his class at his Montessori preschool. He can recognize a Tesla just from the car’s symbol. And he’s picked up an extensive vocabulary from his parents, Sarah and Erick, and older brother, Edward. When Sarah and Erick share these accomplishments, they’re not just being proud parents — they’re ... Read More about Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Research
Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Moyamoya is a rare blood vessel condition that has an outsized impact on children, as it is responsible for about 6 percent of pediatric strokes in the United States. Surgical revascularization is the only treatment and is very effective. However, clinicians face challenges in identifying new or worsening disease before a disabling stroke occurs, predicting ... Read More about Groundbreaking research identifies noninvasive biomarker for moyamoya in children