Clinical Care
Nurses Week 2021: Integrating new therapies into nursing practice and patient care delivery
A revolution in pharmacological gene therapy is underway, as indicated by a significant acceleration in the creation of new therapies to treat genetic disorders at the molecular level. Boston Children’s Hospital Nursing and extended team members, in collaboration with hospital researchers and scientists, biotech, and biopharma partners, have developed a set of specific processes to ... Read More about Nurses Week 2021: Integrating new therapies into nursing practice and patient care delivery
Research
Study links urinary incontinence in female athletes to low energy availability
Urinary incontinence (UI) is a common experience for female athletes that can significantly impact their enjoyment of and participation in sports. Previous studies have shown that female athletes who experience urinary incontinence are more likely to drop out of their sports. Noting a large number of female athletes presenting with urinary incontinence, physicians in the ... Read More about Study links urinary incontinence in female athletes to low energy availability
Clinical Care
Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
For children needing parenteral nutrition (PN) — nutrition given through an intravenous line (IV) — the journey from the hospital to home was once long and arduous. But the prospects for these patients are much brighter today, thanks to the care provided by the Boston Children’s Hospital Home Parenteral Nutrition (HNP) Program. The program — ... Read More about Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
Research
Teaming up to fast track a novel gene therapy for Diamond-Blackfan anemia
Looking at Lindsay Krieg, it’s impossible to tell she has spent her entire 29 years in an out of hospitals managing a rare blood disorder. “It’s routine for me,” she says. “It’s all I’ve ever known.” Diamond-Blackfan anemia (DBA) prevents Lindsay’s bone marrow from producing the red blood cells essential for carrying oxygen from her ... Read More about Teaming up to fast track a novel gene therapy for Diamond-Blackfan anemia
Patient Stories
Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Norman Flores is near the top of his class at his Montessori preschool. He can recognize a Tesla just from the car’s symbol. And he’s picked up an extensive vocabulary from his parents, Sarah and Erick, and older brother, Edward. When Sarah and Erick share these accomplishments, they’re not just being proud parents — they’re ... Read More about Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Research
Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Moyamoya is a rare blood vessel condition that has an outsized impact on children, as it is responsible for about 6 percent of pediatric strokes in the United States. Surgical revascularization is the only treatment and is very effective. However, clinicians face challenges in identifying new or worsening disease before a disabling stroke occurs, predicting ... Read More about Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Health and Parenting
A modified brace and a new treatment option for infantile scoliosis
While bracing is a common treatment for adolescents with moderate idiopathic scoliosis, infantile scoliosis is typically treated with casting. But putting an infant in a cast requires general anesthesia, which carries risks. And children must remain in their casts 24/7, for weeks or months at a stretch. Parents can only give them a full bath ... Read More about A modified brace and a new treatment option for infantile scoliosis
Health and Parenting
Organized sports and COVID-19: Are we there yet?
After a long, challenging year, many student athletes have returned to play this spring with joy and relief. But, organized sports have been linked to COVID-19 outbreaks in several states. The CDC warns that those who play close-contact and inside sports are at very high risk of infection. Even as they relax mandates to wear ... Read More about Organized sports and COVID-19: Are we there yet?
Health and Parenting
Talking to your child about slurs: When words hurt
Imagine the following scenarios: You’re walking down the street with your teenage son and an adult in a passing car yells a racial slur out the window at you. You’re at your local playground you overhear your daughter direct an anti-gay slur at another child. As a parent, what do you do? “These conversations are ... Read More about Talking to your child about slurs: When words hurt
Research
Predicting the best treatment for vesicoureteral reflux in kids: The power of machine learning
The result of abnormal formation of the normal valve between the kidney and bladder, vesicoureteral reflux (VUR) can lead to recurrent febrile urinary tract infections (UTIs) and kidney scarring in children. Previous research has shown that when taken continuously, prophylactic antibiotics can reduce the risk of recurrent UTI in about half of this population. However, ... Read More about Predicting the best treatment for vesicoureteral reflux in kids: The power of machine learning