Scarlette: Hoping for a bright future with PK deficiency
Two-year-old Scarlette Walker loves pink. For her January visit to the Hematology Clinic at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, she wore a shocking pink hat and pink dress. “She picked them out herself,” says her mom, Olivia. She even has a pink alter ego. “She pretends she is a pink helicopter named Dizzy. If ... Read More about Scarlette: Hoping for a bright future with PK deficiency
Eva rides out the side effects of aggressive Wilms tumor treatment
Eva Quiroz loves horses. The 10 year old takes riding lessons, and this activity puts a smile on her face. Anyone watching her contentedly guiding a horse around the ring would just assume she has always been a healthy child, says her mom Carla. They would see no hint of what Eva has been through ... Read More about Eva rides out the side effects of aggressive Wilms tumor treatment
Stetson travels from Texas for bladder exstrophy care
As first-time parents, Rachael and Leroy Calk expected to have questions after their son, Stetson, was born. What they didn’t expect was to find themselves faced with a surprising diagnosis when their baby was just a few hours old — and to begin a journey for answers about his care. Although Rachael’s pregnancy had been ... Read More about Stetson travels from Texas for bladder exstrophy care
Henry’s bladder exstrophy journey
Just a few months into his young life, Henry Packer has traveled from the Netherlands to Utah to Massachusetts — and has gone from being a medical mystery to making a best friend with the same rare condition. It’s all part of his ongoing journey with bladder exstrophy, a congenital anomaly in which a baby’s ... Read More about Henry’s bladder exstrophy journey
When surgery shapes your life: Moyamoya patient turned doctor
Elizabeth Kwak is living proof of how far the treatment of moyamoya has come. Twenty-four years ago, Elizabeth had pial synangiosis, a surgical treatment for moyamoya that was pioneered by Boston Children’s Hospital neurosurgeon Dr. R. Michael Scott in 1985. Today, Elizabeth is a fourth-year medical student at Drexel University College of Medicine. She talks ... Read More about When surgery shapes your life: Moyamoya patient turned doctor
Maya is moving ahead after thyroid cancer
For Maya Rao, 15, a playful accident last Thanksgiving led to the discovery of thyroid cancer. As she and her older sister, Deepti, fooled around, happy to be reunited for the holiday, Deepti’s long hair — gathered in a bun — softly hit Maya on her neck. It seemed innocuous enough, but then she developed ... Read More about Maya is moving ahead after thyroid cancer
My journey from patient to employee
When I was 13 years old, I remember eating my breakfast and next thing I knew, my mom was repeatedly asking me why I wasn’t responding to her. I was having my first seizure. The start of my journey This was the beginning of my journey with epilepsy. For two and a half years, I ... Read More about My journey from patient to employee
Stem cell transplant leads Ali to remission, and a new home
The journey that led Ali Mercy to Dana-Farber/Boston Children’s began in 2010, when Ali was diagnosed with acute lymphocytic leukemia (ALL). At that time, he was treated in the United Arab Emirates (UAE), where his family lived. Chemotherapy initially put Ali’s ALL into remission, but three years later, it returned — this time having metastasized to ... Read More about Stem cell transplant leads Ali to remission, and a new home
Ava’s mental health journey
Ava remembers filling a small pink notebook with all her worries in just one month when she was 5 years old. Ava’s anxiety would not let her fully experience life, because she was constantly in fear of the world around her. She says, “I was being controlled by my fear rather than my own decisions.” Celebrating ... Read More about Ava’s mental health journey
Noah the brave: A cross-country quest for a biventricular repair
If you walked down Binney Street next to Boston Children’s hospital this fall, you might’ve noticed something a bit out of the ordinary. Parked on the sidewalk, just out of the way of passers-by, sat a large RV. On the back of the camper, a large photo of a smiling 5-year-old Noah Alderson told part ... Read More about Noah the brave: A cross-country quest for a biventricular repair