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Your destination for kids' health

Five kids, who had limb-salvage surgery for bone cancer, pose smiling.

Bone cancer surgery: A difficult choice

Patient Stories
Nolan and Natasha might never have met if they hadn’t been diagnosed with bone cancer. Nolan, 13, is a natural athlete who lives in Maine. Natasha, 11, lives in Rhode Island and loves music and theater. As kids go, the two are pretty different — except for their osteosarcoma diagnoses and the surgery to remove ... Read More about Bone cancer surgery: A difficult choice
Tagged: bone tumors, cancer, ewing sarcoma, orthopedics, osteosarcoma
Isolde, who has 3PD, on a family trip

Isolde’s story: A concussion leads to 3PD

Patient Stories
When Isolde Edson was injured in the fall of 2018, during the last junior varsity soccer game of the season, she had no idea she’d still be dealing with the repercussions nearly two years later. “During a home game at the end of the season, I jumped up to kick the ball, and a girl ... Read More about Isolde’s story: A concussion leads to 3PD
Tagged: brain injury, concussion, vestibular system
black and white photo of curtis, who had a thyroidectomy, in a hospital bed

Experience matters: For Curtis’s family, choosing a thyroid surgeon was simple

Patient Stories
For many parents, being told their child needs a total thyroidectomy — surgical removal of the entire thyroid gland — comes as a frightening shock. But for Curtis Lynch’s family, the procedure is already quite familiar. Several members have also undergone thyroidectomy in hopes of mitigating their genetic risk for thyroid cancer. Curtis’s family has a ... Read More about Experience matters: For Curtis’s family, choosing a thyroid surgeon was simple
Tagged: surgery, thyroid cancer
sydney, who has renovascular hypertension, with arms outstretched and in a pink jacket

Leaning into Sydney: A team approach to renovascular hypertension

Patient Stories
In most ways, Sydney Murphy is a typical 3-year-old girl: She watches the movie The Princess and the Frog on repeat, names most of her dolls after the main character, Tiana, and loves the color pink. But she’s also wise beyond her years. “She knows how to use a blood pressure cuff and is really ... Read More about Leaning into Sydney: A team approach to renovascular hypertension
Tagged: hypertension, midaortic syndrome, sickle cell disease
aubree, who has oeis, poses with a pink bow in her hair

Answers for Aubree: Finding support for OEIS

Patient Stories
Michelle and Stephen Strickland are used to having questions about their infant daughter, Aubree’s, health. After all, Aubree was born last year with a rare and complex condition called cloacal exstrophy, or OEIS syndrome, in which many of the internal abdominal structures and organs are exposed outside the body. OEIS can include an omphalocele, rectal ... Read More about Answers for Aubree: Finding support for OEIS
Tagged: colorectal and pelvic malformations, oeis
jack, who has cerebral palsy, jumps his horse at a competition

‘Anything is possible’: The sky’s the limit for teen with cerebral palsy

Patient Stories
Jack Goldberg is on a mission. “I want other kids to see that if you work hard and put your mind to something, anything can be possible,” he says. “The sky’s the limit.” He should know. At 13, he competed in the National Finals to become one of Canada’s top-ranked pony jumpers in his division. ... Read More about ‘Anything is possible’: The sky’s the limit for teen with cerebral palsy
Tagged: cerebral palsy, epilepsy, orthopedics
Jared, who has scoliosis, in a red jacket on the Boston Children's skybridge overlooking an empty street.

Spinal fusion surgery during COVID-19

Patient Stories
If things had gone according to plan, Jared Cohen would have had spinal fusion surgery during his April vacation. His mom, Sara, planned to homeschool him for the remainder of spring semester and he would have all summer to recover. By fall, he’d be more than ready to return to school. Then COVID-19 happened. In ... Read More about Spinal fusion surgery during COVID-19
Tagged: coronavirus, orthopedics, scoliosis, spinal fusion surgery, spine division
keith wearing a red hat

Coming to Boston Children’s during COVID-19: Keith’s story

Patient Stories
At just 4 years old, Keith Bennett has spent more time in the hospital than most kids ever will. Diagnosed with a chronic kidney disease called nephrotic syndrome, he visits Boston Children’s Hospital several times a week — and has continued to do so throughout the COVID-19 pandemic. Now, as Boston Children’s begins to move ... Read More about Coming to Boston Children’s during COVID-19: Keith’s story
Tagged: coronavirus, genetics and genomics, nephrology
Young man who had ALL and his provider, both wearing masks, give the thumbs up sign

Cancer won’t stop me, and neither will COVID-19

Patient Stories
Most people my age look at COVID-19 as a burden on their everyday lives of seeing friends, hanging out, and going to college. I see it differently.    As an active cancer patient being treated for T-cell acute lymphoblastic leukemia (ALL), I am immunocompromised. This puts me at especially high risk for contracting COVID-19, and my ... Read More about Cancer won’t stop me, and neither will COVID-19
Tagged: cancer, coronavirus, leukemia
Kenny, who was born prematurely, plays with his mom in his hospital bed

For Kenny’s family, it’s a beautiful day

Patient Stories
As recent immigrants to Boston from Honduras, Jessy and Edgar didn’t have an easy life, but they were happy. They were both working full-time, raising their teen son, and finding their place in the U.S. They were moving forward. Four years after their arrival, the family was elated to be expecting another son. When Kendall ... Read More about For Kenny’s family, it’s a beautiful day
Tagged: icu, prematurity

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