For Echo, treatment for midaortic syndrome was ‘MAGIC’
Most 7-year-olds don’t have high blood pressure, let alone blood pressure that hovers around 180/110 mm Hg. (“Normal” blood pressure for kids that age ranges between 95/60 and 110/73 mm Hg.) At first Echo Roney’s parents thought her rising blood pressure might be linked to her diagnosis of a genetic condition called neurofibromatosis 1. But ... Read More about For Echo, treatment for midaortic syndrome was ‘MAGIC’
Kira’s story: how a diagnosis of fatty liver disease nourished a lasting lifestyle change
Kira’s journey with fatty liver disease began about six years ago, when imaging for other medical reasons showed areas of concern with her liver. Fatty liver disease occurs when excess fat is stored in the liver; it can lead to progressive liver disease and is the most common pediatric liver disease in the country. The ... Read More about Kira’s story: how a diagnosis of fatty liver disease nourished a lasting lifestyle change
Saving baby Marcela: A mother’s mission to finally hold her daughter
The translations of this page are translated from English into another language using Google Translate, a third party tool. Please note that such translations from the English language version may contain errors and/or inaccuracies as a result of the translation. Boston Children’s Hospital disclaims all liability for any errors or inaccuracies that may result from ... Read More about Saving baby Marcela: A mother’s mission to finally hold her daughter
Making food fun: Jacob’s journey with feeding difficulties
Most parents might discourage their child from playing with their food. But for Lorraine Scanlon, getting her son Jacob to have fun at the table is all part of taking the pressure out of eating. In fact, it’s an approach recommended by his health care team. Jacob, now 8, has had feeding challenges since he ... Read More about Making food fun: Jacob’s journey with feeding difficulties
Care for post-COVID symptoms helps get figure skater back in the rink
Drew Kenney is no stranger to the ice. As a local and national competitive figure skater, the 16-year-old executes double salchows, double flips, and axels with ease. So when she began to feel winded — and then started falling — at the rink last fall, she knew something was wrong. “At first we thought she ... Read More about Care for post-COVID symptoms helps get figure skater back in the rink
Like father, like daughter: Finding care for cavernous malformations
After Charlotte Miller underwent neurosurgery, her parents, Daniel and Eliza were a little nervous to tell her that part of her head had been shaved. But the spunky 5-year-old wasn’t fazed. Instead, she pointed to her father’s head and laughed, “Now I’m going bald like you, Daddy!” A sense of humor isn’t all Charlotte and ... Read More about Like father, like daughter: Finding care for cavernous malformations
After two ACL tears, a skier reconnects with her body and her sport
The memory remains vivid in Sophia’s mind. Racing down a slalom course at top speed, she hit a patch of bad snow. “The next thing I knew, I was launched up in the air. My legs were above me and I lost sight of my right leg. I felt my right knee twist and I ... Read More about After two ACL tears, a skier reconnects with her body and her sport
After a marathon year, let’s make organ donation part of our new normal
Six years ago, an organ donor saved my daughter’s life. Cora was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS), which was fatal if not treated. After more than four years living with HLHS — and six open-heart surgeries — Cora’s only chance of survival was a heart transplant. On the ... Read More about After a marathon year, let’s make organ donation part of our new normal
How growing up with sickle cell disease is shaping Nancy’s future
Imagine appearing completely healthy while managing a life-threatening condition. Most people who meet Nancy Blankson would never know she has sickle cell disease (SCD). Her symptoms are not easily visible. It’s a challenge she lives with every day along with periodic pain crises, which at times, she says, can be virtually unbearable. Nevertheless, the 20-year-old ... Read More about How growing up with sickle cell disease is shaping Nancy’s future
Pleuropulmonary blastoma: Caring for Cal
Each time the UPS truck makes its way up Becky Baker’s driveway in Lyons, New York, her 3-year-old grandson, Cal, is certain there’s a package for him. Today, the delivery is in fact for Cal — but not exactly the drivable mini Jeep he was hoping for. “Those are your diapers, buddy,” his grandmother says, ... Read More about Pleuropulmonary blastoma: Caring for Cal