Archive for hypertension
Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
This past July, Iris Huot, her older sister, Audrey, and their parents, Jessica and Austin, gathered around their dining room table. To an outsider, it might seem like an ordinary dinner, but for the Huots, it was a moment of perspective — and gratitude. “It was the first time in eight weeks that we had ... Read More about Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
For Echo, treatment for midaortic syndrome was ‘MAGIC’
Most 7-year-olds don’t have high blood pressure, let alone blood pressure that hovers around 180/110 mm Hg. (“Normal” blood pressure for kids that age ranges between 95/60 and 110/73 mm Hg.) At first Echo Roney’s parents thought her rising blood pressure might be linked to her diagnosis of a genetic condition called neurofibromatosis 1. But ... Read More about For Echo, treatment for midaortic syndrome was ‘MAGIC’
Maythum finally finds answers for midaortic syndrome
Maythum Mehdi was just 5 years old when he told his mother, Batul, that he was having trouble seeing: When he played on the computer, the screen appeared blurry. Right away, Batul — who was then training to be a cardiology nurse — sought medical attention. “I knew that wasn’t a good sign,” she says. ... Read More about Maythum finally finds answers for midaortic syndrome
Matt’s story: An innovative approach to midaortic syndrome
Until he was 12-and-a-half, Matt Sarracco had hardly missed a day of school. In fact, he had won awards for his near-perfect attendance. So it was concerning when, at a routine physical, his blood pressure soared to extremely high levels. “At first we thought the cuff must be broken,” says his mother, Kelly. But subsequent ... Read More about Matt’s story: An innovative approach to midaortic syndrome
Leaning into Sydney: A team approach to renovascular hypertension
In most ways, Sydney Murphy is a typical 3-year-old girl: She watches the movie The Princess and the Frog on repeat, names most of her dolls after the main character, Tiana, and loves the color pink. But she’s also wise beyond her years. “She knows how to use a blood pressure cuff and is really ... Read More about Leaning into Sydney: A team approach to renovascular hypertension
Staff Spotlight: Meet Jonette Jean-Louis
Jonette Jean-Louis is the program coordinator for the Midaortic Syndrome and Renovascular Hypertension Center at Boston Children’s Hospital. Midaortic syndrome is a rare but serious condition in which the part of the aorta (the heart’s largest blood vessel) that runs through the chest and abdomen becomes narrow. This can lead to lower blood flow in ... Read More about Staff Spotlight: Meet Jonette Jean-Louis
Four things to know about your child’s kidneys
If you’re like most parents, you probably know that the kidneys filter waste from the body and produce urine. But fewer people understand the full extent of the role that these bean-shaped organs play in our health. “When we meet with families, we typically educate them on all the responsibilities that kidneys have in the ... Read More about Four things to know about your child’s kidneys
Solving the mystery of Sophie’s high blood pressure
Sophie Lawrence loves “Baby Shark.” Like many other toddlers, she listens to the popular children’s song on repeat, bopping her head and mimicking the accompanying hand gestures. “Something about it just really calms her when she’s upset,” says her mother, Samantha. Indeed, Sophie was rocking out to “Baby Shark” during a recent appointment with Dr. ... Read More about Solving the mystery of Sophie’s high blood pressure