New study ties residual lesion score (RLS) to cardiac surgery outcomes
How well a patient does after surgery for congenital heart disease (CHD) depends on a large number of variables, ranging from patient characteristics to preoperative status to anatomic complexity to perioperative factors. One of the most important predictors of adverse events or reintervention is the presence of residual lesions — structural cardiac abnormalities that remain ... Read More
Suicide prevention in teens: Can we intervene through primary care?
The past year has seen a disturbing rise in suicidal thoughts and attempts among adolescents, with a spike of suicidal teens going to emergency departments (EDs). This adds to a growing trend: From 2007 to 2016, ED visits for deliberate self-harm more than quadrupled nationwide among children age 5 to 17. In a recent review ... Read More
You’re not alone in asking: Five common questions about your baby’s first year
Having a baby often comes with a lot of two things: love and questions. While every infant and family are different, many pediatricians agree that there are common themes in what parents want to know in their child’s first year. We spoke with providers from Briarpatch Pediatrics and Wareham Pediatric Associates of Boston Children’s Primary ... Read More
Single Ventricle Cardiac Home Monitoring Program empowers families to care for fragile newborns at home
A single ventricle heart condition is a congenital cardiac defect in which only one of the heart’s two ventricles is functioning properly. It is most often corrected with three surgeries: the first, shortly after birth, the second, when a baby is 4 to 6 months old, and the third in the toddler years. The Single ... Read More
Nurses Week 2021: Integrating new therapies into nursing practice and patient care delivery
A revolution in pharmacological gene therapy is underway, as indicated by a significant acceleration in the creation of new therapies to treat genetic disorders at the molecular level. Boston Children’s Hospital Nursing and extended team members, in collaboration with hospital researchers and scientists, biotech, and biopharma partners, have developed a set of specific processes to ... Read More
Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
For children needing parenteral nutrition (PN) — nutrition given through an intravenous line (IV) — the journey from the hospital to home was once long and arduous. But the prospects for these patients are much brighter today, thanks to the care provided by the Boston Children’s Hospital Home Parenteral Nutrition (HNP) Program. The program — ... Read More
Newborn genetic screening for pediatric cancer risk could save lives
Numerous genetic mutations increase children’s risk for various cancers. When they are detected early, cancers can potentially be caught at an early, more treatable stage — or avoided entirely. Could adding such “cancer predisposition” genes to routine newborn “heel-stick” screening save lives? Lisa Diller, MD, chief medical officer at the Dana-Farber/Boston Children’s Cancer and Blood ... Read More
Boston Children’s Simulator Program steps up during COVID-19
In the early days of the COVID-19 pandemic, hospitals scrambled to adapt and prepare. Amid the chaos, the Boston Children’s Hospital Simulator Program, SIMPeds, sprang into action. SIMPeds is a world leader in running live simulations of care scenarios, allowing health care providers to rehearse tough or unanticipated situations in advance. Its SIMEngineering division is ... Read More
Cancer care in transgender patients: Things to consider
Increasingly, transgender youth and adults are undergoing (or planning) gender-affirming surgery and taking masculinizing or feminizing hormones. If they have cancer, these treatments can have implications for their care, and cancer treatments in turn can have implications for their gender-affirming care. Oncologists should take gender identity into account in making decisions about cancer treatment. This ... Read More
Minimally invasive surgery safe and effective for craniosynostosis
Traditional treatment for children with craniosynostosis — a condition in which the bones of the skull grow together too early in the child’s development — usually involves an extensive open craniectomy surgery with a incision to release the fused bones. But a study from physicians in the Cleft and Craniofacial Center at Boston Children’s Hospital ... Read More