Archive for heart patient
After a marathon year, let’s make organ donation part of our new normal
Six years ago, an organ donor saved my daughter’s life. Cora was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS), which was fatal if not treated. After more than four years living with HLHS — and six open-heart surgeries — Cora’s only chance of survival was a heart transplant. On the ... Read More about After a marathon year, let’s make organ donation part of our new normal
Tagged: advocacy, heart, heart center, heart patient, transplant
To #SavePriyanshu: A father’s reach across the world to save his son
Any parent can relate: to the ends of the earth is just the beginning of how far you will go to help your child. Perhaps no one knows this better than Sagar, a father from India whose efforts to save his son stretched across the world and eventually led him to Boston Children’s Hospital. Sagar ... Read More about To #SavePriyanshu: A father’s reach across the world to save his son
From ECMO to star athlete: Kobe’s story
Kobe Perry is fast. This year, the 12-year-old from New Hampshire placed #2 in the United States in the indoor 60-meter sprint and at #10 in the 200-meter for boys in his age group. “Watching Kobe run now, you would never know that he had a heart condition when he was a toddler and had ... Read More about From ECMO to star athlete: Kobe’s story
Tagged: heart, heart center, heart patient
A repair for Charleston’s complex heart
Trey and Jandie Steele both work in medical device sales. They have spent lots of time in hospital operating rooms and are comfortable discussing complex medical procedures with doctors and surgeons. And yet, when their second child, Charleston, was diagnosed with a number of congenital heart defects one week after her birth, they felt blindsided ... Read More about A repair for Charleston’s complex heart
From ICU patient to nursing student: Atiana’s heart journey
Atiana Lancaster was 13 and playing the last few games of lacrosse season in 2015 when she started having unusual — and worrying — symptoms. “I had horrible headaches, tiredness, chest pain, and trouble breathing, so I had to keep going off the field when I was playing,” she says. “At the time, I thought ... Read More about From ICU patient to nursing student: Atiana’s heart journey
Tagged: arrhythmia, critical care, emergency medicine, heart, heart center, heart patient
The brightest rainbow follows the darkest storm: Our PVS journey
Caroline is our rainbow baby, born after the loss of another child, the light and color arising after a storm passes. A rainbow baby lifts a family in desperate need of lifting. It is a beautiful thing that I hope you never experience. Caroline was born on Dec. 10, 2015. Just three months later, my ... Read More about The brightest rainbow follows the darkest storm: Our PVS journey
Treating vascular rings: Sisters travel more than 3,000 miles for care
Nicky Dickerhoff is no stranger to caring for children: Not only is she a neonatal nurse practitioner, but she and her husband, Jake, have eight kids themselves. “We’re experienced parents,” she laughs. So when their daughter Harper briefly stopped breathing at just 3 weeks old, Nicky was skeptical at the initial diagnosis of reflux. Repeated ... Read More about Treating vascular rings: Sisters travel more than 3,000 miles for care
Tagged: heart, heart center, heart patient, MFCC, surgery, vascular rings
Appreciating the small things: A New York family’s journey with CHD
The Harris family of Monroe, New York, are no strangers to congenital heart disease (CHD). Eighteen-year-old Jack Jr. grew up living with CHD, but had always been active. His father, Jack Sr., had also lived an active adulthood, completely unaware of his future CHD diagnosis. When they each found themselves in need of heart surgery, ... Read More about Appreciating the small things: A New York family’s journey with CHD
Tagged: bach, cardiac surgery, congenital heart defect, heart, heart center, heart patient
Heart strong: Two families bond over shared challenges
Four years ago, Ali Marcus walked through the door of a coffee shop in Connecticut and met the woman who would soon become her close friend, Britt Sheiber. The two were meeting at the suggestion of a mutual friend: Britt had just learned at a prenatal visit that one of her twins would be born ... Read More about Heart strong: Two families bond over shared challenges
Tagged: cardiac surgery, heart, heart center, heart patient
Unraveling the mystery of Rylan’s respiratory problems
Rylan is Destinee Davidson’s second child, but in some ways, he feels like her first. “Our older son, Bryce, has always been healthy,” she explains. “With Rylan, I feel like a first-time mom because everything is so new.” Rylan has been keeping Destinee and her husband, Bradford, on their toes since the day he was ... Read More about Unraveling the mystery of Rylan’s respiratory problems