Archive for heart patient
From South Africa to Boston: Kyleigh’s four-year search for good heart health
Kyleigh Kista had three open-heart surgeries in just the first 18 months of her life. But instead of progressing, her health was rapidly deteriorating by the time she reached 3. Her doctors said there was little else they could do, except make her a candidate for a heart and lung transplant. It was shattering news ... Read More about From South Africa to Boston: Kyleigh’s four-year search for good heart health
‘They just cared about Levi’: Finding answers for a complex vascular ring
The first sign that Levi Blair Winkler would no longer have problems swallowing was when, only three days after a complex surgery, he wolfed down four chicken nuggets and an apple. Just as encouraging for his parents, Rachel and Gabe, was that he stopped talking about the bug in his throat. That’s how Levi often ... Read More about ‘They just cared about Levi’: Finding answers for a complex vascular ring
Along the way to heart surgery, Liam found a name for his new teddy bear
After a complicated delivery in April 2021, Chelsea Allis had recovered and was finally able to bond with her infant son, Liam. But life became unsettled again only two months later, when a doctor performing a routine checkup on Liam detected a possible heart condition. Then, only a day before seeing a cardiologist to learn ... Read More about Along the way to heart surgery, Liam found a name for his new teddy bear
Wanting to give back, four heart patients now work as heart pros
They belong to a unique group. As children, they needed surgery to repair congenital heart conditions. Rather than being afraid, they instead were curious about the science behind their treatment. What they learned motivated them to discover more and ultimately pursue careers in medicine. Now healthy adults and working for the Benderson Family Heart Center at Boston ... Read More about Wanting to give back, four heart patients now work as heart pros
Saving baby Marcela: A mother’s mission to finally hold her daughter
The translations of this page are translated from English into another language using Google Translate, a third party tool. Please note that such translations from the English language version may contain errors and/or inaccuracies as a result of the translation. Boston Children’s Hospital disclaims all liability for any errors or inaccuracies that may result from ... Read More about Saving baby Marcela: A mother’s mission to finally hold her daughter
After a marathon year, let’s make organ donation part of our new normal
Six years ago, an organ donor saved my daughter’s life. Cora was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS), which was fatal if not treated. After more than four years living with HLHS — and six open-heart surgeries — Cora’s only chance of survival was a heart transplant. On the ... Read More about After a marathon year, let’s make organ donation part of our new normal
From ECMO to star athlete: Kobe’s story
Kobe Perry is fast. This year, the 12-year-old from New Hampshire placed #2 in the United States in the indoor 60-meter sprint and at #10 in the 200-meter for boys in his age group. “Watching Kobe run now, you would never know that he had a heart condition when he was a toddler and had ... Read More about From ECMO to star athlete: Kobe’s story
A repair for Charleston’s complex heart
Trey and Jandie Steele both work in medical device sales. They have spent lots of time in hospital operating rooms and are comfortable discussing complex medical procedures with doctors and surgeons. And yet, when their second child, Charleston, was diagnosed with a number of congenital heart defects one week after her birth, they felt blindsided ... Read More about A repair for Charleston’s complex heart
From ICU patient to nursing student: Atiana’s heart journey
Atiana Lancaster was 13 and playing the last few games of lacrosse season in 2015 when she started having unusual — and worrying — symptoms. “I had horrible headaches, tiredness, chest pain, and trouble breathing, so I had to keep going off the field when I was playing,” she says. “At the time, I thought ... Read More about From ICU patient to nursing student: Atiana’s heart journey
The brightest rainbow follows the darkest storm: Our PVS journey
Caroline is our rainbow baby, born after the loss of another child, the light and color arising after a storm passes. A rainbow baby lifts a family in desperate need of lifting. It is a beautiful thing that I hope you never experience. Caroline was born on Dec. 10, 2015. Just three months later, my ... Read More about The brightest rainbow follows the darkest storm: Our PVS journey