Patient Stories
Transitioning to adult care for sickle cell disease: Ariyanna’s journey
Ariyanna Agnew sits in a waiting room at Beth Israel Deaconess Medical Center (BIDMC). The 22-year-old, who has been a patient of the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center Sickle Cell Disease Program for more than a decade, is seeing an adult hematologist for the first time. It’s a milestone event that would ordinarily ... Read More about Transitioning to adult care for sickle cell disease: Ariyanna’s journey
Patient Stories
What it’s like to have brain surgery: Peyton’s story
During the summer before my junior year of high school, I started getting a lot of dull headaches at the base of my head and upper neck. I got so used to them that I built up a tolerance to the pain — I didn’t see them as a big deal, or would make excuses for ... Read More about What it’s like to have brain surgery: Peyton’s story
Our Community
What is health equity and how does it affect children?
Put simply, health equity is a commitment to ensuring every person can obtain the highest level of health possible, no matter where they live or who they are. In 2020, many hospitals around the country — including Boston Children’s — made public commitments to health equity for their patients. This was part of a national ... Read More about What is health equity and how does it affect children?
Patient Stories
Freak accident leads to Dylan’s passion for neurosurgery
It was the summer of 2019. Dylan Keusch had just graduated from prep school and was planning to major in Industrial Labor Relations at Cornell University in the fall. His life felt pretty perfect. “Everything was going great — I was a national club team swimmer at the peak of my career, I was headed ... Read More about Freak accident leads to Dylan’s passion for neurosurgery
Patient Stories
Meghan’s journey with UESL: Finding treatment for a rare form of liver cancer
In the spring of 2017, Meghan Tompkins and her parents, Danni and Michael, arrived at the Dana Farber/Boston Children’s Cancer and Blood Disorder Center. They were there for an appointment after Meghan’s doctors identified a suspicious spot on her liver. Meghan, then 13, only knew that she was having gastrointestinal symptoms — no one had uttered ... Read More about Meghan’s journey with UESL: Finding treatment for a rare form of liver cancer
Health and Parenting
Behavioral health: What parents should know
Even before a worldwide pandemic uprooted life as we knew it, our children have been grappling with an unprecedented health crisis. In the span of 10 years, emergency rooms have seen a 60 percent increase in mental-health-related visits in patients under age 18. COVID-19’s disruption of routines and social outlets has only worsened this problem. ... Read More about Behavioral health: What parents should know
Research
Diversifying therapeutic antibodies: From one, come many with potential different uses
A new method for producing antibodies against disease could result in a wider variety of drugs for infectious diseases, immune disease, and even cancer. The immune system naturally produces enormous varieties of antibodies to fight diseases. Therapeutic antibodies — antibodies created against specific therapeutic targets — have been used for decades to either rev up ... Read More about Diversifying therapeutic antibodies: From one, come many with potential different uses
Research
Game-changing surgical procedure results in zero-percent TEF re-recurrence rate
A tracheaesophageal fistula (TEF) is a congenital defect in which an abnormal connection forms between a child’s esophagus and trachea. It often occurs with esophageal atresia. Even after surgical repair, TEFs recur in about 10 to 15 percent of infants and children. They rarely close spontaneously and typically require surgical or endoscopic intervention. Key takeaways: ... Read More about Game-changing surgical procedure results in zero-percent TEF re-recurrence rate
Patient Stories
Maisie’s story: Our journey with Apert syndrome
Our daughter Maisie is 4 years old. She loves riding her bike, baking, jumping on the trampoline, and keeping up with her older sister, Eliza. She’s also especially skilled at peeling hard boiled eggs. We learned prenatally at 18 weeks that something was going on with Maisie’s development. My doctors suspected craniosynostosis, a condition where the ... Read More about Maisie’s story: Our journey with Apert syndrome
Health and Parenting
COVID-19 vaccines for kids: What has to happen first
Now that adults and older teens are receiving COVID-19 vaccines, some younger kids are wondering why they can’t get vaccinated too. While testing has begun in children 6 months to age 12, we aren’t ready to begin vaccinating most kids yet. But we do know the steps the companies are taking to be sure their ... Read More about COVID-19 vaccines for kids: What has to happen first