Clinical Care
Colleen Dansereau, the Gene Therapy Program's senior director of clinical operations.

In a thriving gene therapy program, nursing leadership is the driving force

Gene therapy was made possible by decades of technological advances. But to execute gene therapy at scale? That would not be possible without the foresight, organization, and innovation of nursing leadership at Boston Children’s Hospital. The gene therapy implementation framework they have built has become a gold standard for the field. Founded in 2010, the ... Read More about In a thriving gene therapy program, nursing leadership is the driving force
Research
Drs. Caleb Nelson and Eric Bortnick

Simulation-based training program improves evaluation of undescended testicles

Could a lifelike manikin torso help improve pediatricians’ understanding of undescended testicles? That’s the hope of Eric Bortnick, MD, a fellow in Boston Children’s Department of Urology whose new simulation- and video-based educational tool aims to improve the diagnosis and management of this condition. Also known as cryptorchidism, undescended testicles are common congenital anomalies in ... Read More about Simulation-based training program improves evaluation of undescended testicles
Health and Parenting
A mom helps her little girl color

May 2024 coloring pages

Don’t let this month’s coloring pages “bug” you! MAC_30438_ColoringPages_May_Bugs_Flowers_Horiz-1Download MAC_30438_ColoringPages_May_Bugs_Flowers_Horiz-2Download MAC_30438_ColoringPages_May_Bugs_Flowers_Horiz-3Download Images: Adobe Stock/Illustration: David Chrisom Get more coloring pages, news, and tips for your family from our weekly newsletter. Sign up now! Share this:
Patient Stories
Two young children sitting on a living room floor.

Guided by her own experience, one mom navigates Stickler syndrome with her children

Aimee is more than just Mum to three-year-old Arwen and one-year-old Cedric; she’s their guide to navigating Stickler syndrome, a genetic connective tissue disorder that can cause an underdeveloped jaw and airway obstruction (collectively known as Robin sequence), as well as cleft palate, vision and hearing difficulties, and other findings. As a carrier herself, Aimee ... Read More about Guided by her own experience, one mom navigates Stickler syndrome with her children
Patient Stories
Wynn smiles as his father holds him

‘Part of the process’: How a second opinion helped Wynn take control of bladder function

Wynton “Wynn” Smith-Webb is “the most inquisitive kid you’ll ever meet,” laughs his mother, Amber. At just 3 years old, he’s intrigued by science, nature, travel, and even medicine. It’s a mindset he might have picked up from Amber, a professor who says she lives “knee-deep” in data every day. So when Wynn recently began ... Read More about ‘Part of the process’: How a second opinion helped Wynn take control of bladder function
Research
An outline of a head and brain.

Optimal care, lower costs: Examining the benefits of out-of-network care for pediatric moyamoya

Moyamoya disease is a rare condition that affects the blood vessels in the brain, especially in children. Narrowing and blockage of vessels significantly increases the risk of stroke and requires surgical revascularization for treatment. Although research shows that outcomes of revascularization are better at high-volume centers, insurers often hesitate to approve out-of-network care. However, a ... Read More about Optimal care, lower costs: Examining the benefits of out-of-network care for pediatric moyamoya
Patient Stories
Figure skater Max takes off, spins, and lands a quad during practice.

Jumping higher, spinning faster: Max’s figure skating story

Thousands of fans around the globe have watched it, but very few people can do it. The quadruple Salchow, also known as the quad, requires that a skater launch themself into the air, spin four times, and land on one leg — ideally without falling or wobbling. The best figure skaters make skills like the ... Read More about Jumping higher, spinning faster: Max’s figure skating story
Patient Stories
Lucas, who has duchenne muscular dystrophy, poses in front of a mural of a galaxy

Lucas receives gene therapy for DMD and finds his super muscles

Lucas Toro has a lot in common with Gekko, the cartoon character from PJ Masks. They’re both “little guys” whose strength surprises people. And they both use their muscles for good. Getting strong is a new feeling for Lucas — one he’s using to blaze new trails for other kids. In September 2023, he became ... Read More about Lucas receives gene therapy for DMD and finds his super muscles
Patient Stories
Maeve, who was treated for laryngeal cleft as a child, stands in her nurse scrubs in front of Boston Children's.

‘The reason I became a nurse’: Maeve’s memories of laryngeal cleft repair

Being a gastroenterology nurse is more than a profession for Maeve Lee. When she cares for patients with feeding tubes, she’s also paying it forward. More than two decades ago, Maeve experienced many of the same challenges her patients face today. Medical mystery At first, Maeve seemed like a perfectly healthy newborn, but then she ... Read More about ‘The reason I became a nurse’: Maeve’s memories of laryngeal cleft repair
Clinical Care
A woman holds a spacer attached to an asthma inhaler while a child takes in the medication.

Three ways to ensure your child has the proper asthma medication

Children who have asthma should always have access to medication. But a manufacturer’s decision to stop producing a popular asthma drug has many families scrambling to find alternative medications that are covered by health insurance. Prescriptions sometimes change for families because a medication is discontinued or there are coverage changes by health insurers and pharmacies, ... Read More about Three ways to ensure your child has the proper asthma medication