Clinical Care
Nurses Week 2021: Parenteral nutrition: Nurses help lead the journey from hospital to home
For children needing parenteral nutrition (PN) — nutrition given through an intravenous line (IV) — the journey from the hospital to home was once long and arduous. But the prospects for these patients are much brighter today, thanks to the care provided by the Boston Children’s Hospital Home Parenteral Nutrition (HNP) Program. The program — ... Read More
Research
Teaming up to fast track a novel gene therapy for Diamond-Blackfan anemia
Looking at Lindsay Krieg, it’s impossible to tell she has spent her entire 29 years in an out of hospitals managing a rare blood disorder. “It’s routine for me,” she says. “It’s all I’ve ever known.” Diamond-Blackfan anemia (DBA) prevents Lindsay’s bone marrow from producing the red blood cells essential for carrying oxygen from her ... Read More
Patient Stories
Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Norman Flores is near the top of his class at his Montessori preschool. He can recognize a Tesla just from the car’s symbol. And he’s picked up an extensive vocabulary from his parents, Sarah and Erick, and older brother, Edward. When Sarah and Erick share these accomplishments, they’re not just being proud parents — they’re ... Read More
Research
Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Moyamoya is a rare blood vessel condition that has an outsized impact on children, as it is responsible for about 6 percent of pediatric strokes in the United States. Surgical revascularization is the only treatment and is very effective. However, clinicians face challenges in identifying new or worsening disease before a disabling stroke occurs, predicting ... Read More
Health and Parenting
A modified brace and a new treatment option for infantile scoliosis
While bracing is a common treatment for adolescents with moderate idiopathic scoliosis, infantile scoliosis is typically treated with casting. But putting an infant in a cast requires general anesthesia, which carries risks. And children must remain in their casts 24/7, for weeks or months at a stretch. Parents can only give them a full bath ... Read More
Health and Parenting
Organized sports and COVID-19: Are we there yet?
After a long, challenging year, many student athletes have returned to play this spring with joy and relief. But, organized sports have been linked to COVID-19 outbreaks in several states. The CDC warns that those who play close-contact and inside sports are at very high risk of infection. Even as they relax mandates to wear ... Read More
Health and Parenting
Talking to your child about slurs: When words hurt
Imagine the following scenarios: You’re walking down the street with your teenage son and an adult in a passing car yells a racial slur out the window at you. You’re at your local playground you overhear your daughter direct an anti-gay slur at another child. As a parent, what do you do? “These conversations are ... Read More
Research
Predicting the best treatment for vesicoureteral reflux in kids: The power of machine learning
The result of abnormal formation of the normal valve between the kidney and bladder, vesicoureteral reflux (VUR) can lead to recurrent febrile urinary tract infections (UTIs) and kidney scarring in children. Previous research has shown that when taken continuously, prophylactic antibiotics can reduce the risk of recurrent UTI in about half of this population. However, ... Read More
Research
Sex steroid treatment changes HDL cholesterol levels in transgender youth
In an important study in transgender youth, researchers at Boston Children’s Hospital and colleagues have discovered that HDL cholesterol levels change within six months after starting gender-affirming medical treatment. HDL levels dropped an average 7 points in transmasculine patients and they rose by about 11 points in transfeminine youth. The HDL shifts do not indicate ... Read More
Health and Parenting
Remember these seven things before bringing your newborn home from the hospital
Congratulations, you just had a baby! Now what? Whether it’s your first, second, or eighth child, the initial weeks of life with a newborn can be a sleep-deprived blur. Hopefully, your first few days postpartum come with the support of knowledgeable, compassionate nurses and hospital staff. So before being discharged home with your bundle of ... Read More