Archive for nicu
My son is a NICU GraD: Here’s what I’ve learned
My husband and I aren’t first-time parents, but when our twins were born nine weeks early a year ago, everything we thought we knew went out the window. The thing is, it wasn’t Cal and Theo’s early arrival that was the biggest shock; it was the challenges that came afterward. Life with newborns and a ... Read More about My son is a NICU GraD: Here’s what I’ve learned
Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
Jennifer worked as a hairdresser until just days before delivering her son, Isaac, last December, even though she had planned to stop a week earlier. Beating expectations must run in the family because Isaac has been doing just that since before he was even born. He has amazed everyone around him with how well he ... Read More about Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
For Ana Sofia: How one mom found prenatal care for fetal pleural effusion
Alexandra is the first to admit she asks a lot of questions and needs to know details. “I’m curious about everything, and I want to know everything,” she says. “I do my research. I’m a pretty resourceful person.” It’s something she says can be off-putting to some people, but it’s also what saved her daughter’s ... Read More about For Ana Sofia: How one mom found prenatal care for fetal pleural effusion
Rowan the Remarkable: Defying the odds with CPAM
This is the story of a baby named Rowan and his remarkable journey of beating the odds after doctors discovered a potentially fatal mass on his lung in utero. This is also the story of his mother, Casey, who fought for him every step of the way, and the medical professionals whose collaboration and planning ... Read More about Rowan the Remarkable: Defying the odds with CPAM
Bedside tech predicts newborns’ outcomes after therapeutic hypothermia
Hypoxic-ischemic encephalopathy (HIE), brain injury caused by oxygen deprivation around birth, is a common cause of admission to the neonatal intensive care unit. Therapeutic hypothermia is now becoming the standard treatment to minimize brain injury; cooling the newborn’s head or whole body for three days slows cellular metabolism and allows brain cells to avoid and ... Read More about Bedside tech predicts newborns’ outcomes after therapeutic hypothermia
How Robin sequence paved a dad’s road to the Boston Marathon: Chad and Izzy’s story
Go to any marathon starting line and you’re bound to find someone who was “never a runner” until something — or someone — motivated them to tie up their laces. Chad Goyette is one such runner. But today, he’s fresh off the Atlanta Marathon and gearing up to run Boston. His inspiration? His daughter, Izzy. ... Read More about How Robin sequence paved a dad’s road to the Boston Marathon: Chad and Izzy’s story
I’ve been there, too: What my baby’s tumor taught me as a NICU nurse
I had a toddler at home when I found out I was pregnant with my twins, Hannah and Sophie. Since I had already had a baby, I thought I knew what to expect during my pregnancy. I also work in the neonatal intensive care unit (NICU) at Boston Children’s Hospital, so I thought I was ... Read More about I’ve been there, too: What my baby’s tumor taught me as a NICU nurse
Optimizing care for bronchopulmonary dysplasia, infant by infant
Preterm newborns with bronchopulmonary dysplasia (BPD) can require ongoing mechanical ventilation to support their lungs. But babies with BPD aren’t just newborns with underdeveloped lungs. Each has a unique presentation. And every part of their care is important, with the ultimate goal of enabling them to grow, develop, and go home to their families. The ... Read More about Optimizing care for bronchopulmonary dysplasia, infant by infant
Bringing Xavien home: One family’s journey with bronchopulmonary dysplasia
Xavien Velazquez is getting ready to celebrate his first birthday. It’s a milestone for every child but especially meaningful for this little boy who has spent more than half his life away from home receiving care for bronchopulmonary dysplasia (BPD), a chronic lung disease characterized by respiratory distress that is most often seen in newborns ... Read More about Bringing Xavien home: One family’s journey with bronchopulmonary dysplasia
A legend for Zora: How genomic testing provides answers in the face of grief
So often after a perinatal loss, parents are left with uncertainty about what caused their baby’s death and the haunting question, “what if.” To help grieving families find answers to these questions, Dr. Monica Wojcik and her colleagues in the Division of Newborn Medicine are conducting genomic autopsies to learn if and what genetic factors ... Read More about A legend for Zora: How genomic testing provides answers in the face of grief