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zebrafish help discover drug for Diamond Blackfan anemia

A potential Diamond-Blackfan anemia treatment swims into view

Clinical, Research
Zebrafish, besides being popular in aquariums, make good stand-ins for studying human diseases. They share about 70 percent of their genes with humans, and can be studied at a mass scale, enabling scientists to test hundreds, even thousands of drugs at a time simply by adding the drug to their water. One such test came ... Read More about A potential Diamond-Blackfan anemia treatment swims into view
Tagged: anemia, blood, rare disease, zebrafish
Katherine Warren, MD, co-authored three sets of guidelines onassessing pediatric brain tumors.

Unlocking a treatment for diffuse intrinsic pontine glioma

Clinical, Research
Diffuse intrinsic pontine glioma (DIPG) is a highly aggressive and one of the most difficult-to-treat childhood tumors. It’s the second most common malignant brain tumor, as well as the leading cause of brain tumor death among children. “It’s essentially 100 percent fatal,” says Katherine Warren, MD, clinical director for Pediatric Neuro-Oncology at Dana-Farber/Boston Children’s Cancer and ... Read More about Unlocking a treatment for diffuse intrinsic pontine glioma
Tagged: cancer, rare disease
rare disease clinical trials concept

Low enrollment stymies completion of rare disease clinical trials

Clinical, Research
Rare diseases are anything but rare when taken together. In the United States alone, they affect nearly 30 million people. Yet clinical trials for rare diseases are frequently incomplete or go unpublished in the medical literature, finds a study published today in the journal PLOS Medicine. Analyzing 659 trials, researchers at Boston Children’s Hospital found ... Read More about Low enrollment stymies completion of rare disease clinical trials
Tagged: clinical trials, rare disease
Kaza, who is researching heart surgery in neonatal patients, poses in scrubs

Healing hearts under a watchful eye

Clinical, Research
Cardiac surgery is performed using visual landmarks inside the heart. There are specialized conduction tissues that run underneath the surface, which are important for the heart’s rhythmic beating. Cardiac surgeons operate with these landmarks in mind to avoid injury to conduction tissue, but locating these tissues can be challenging. Fiberoptic confocal microscopy technology inside the ... Read More about Healing hearts under a watchful eye
Tagged: cardiac research, cardiac surgery, research
packaged food for a diet study

Diet trials often amend their outcome measures as they go

Clinical, Research
Ever wonder why science can’t settle simple diet-related questions? In part it’s because most clinical trials involving diet, even those published in good journals, lack the rigor of most drug trials. They’re often small, of short duration, and unable to rigorously control subjects’ adherence to the test diets. Moreover, a study published today in JAMA ... Read More about Diet trials often amend their outcome measures as they go
Tagged: clinical trials, nutrition, obesity
Darcey, who has Li-Fraumeni syndrome, poses in front of the hospital

Hope in the shadow of Li-Fraumeni syndrome

Clinical, Research
Jake was diagnosed with his first cancer — osteosarcoma — in 2007 when he was only 16 years old. Meanwhile, his mom was being treated for recurrent cancer and his brother also would soon be diagnosed with cancer. Within the space of a few years, all three family members had died. This was not the ... Read More about Hope in the shadow of Li-Fraumeni syndrome
Tagged: cancer, oncology, osteosarcoma, rare disease
EEG in babies can predict autism

Babies’ EEG patterns predict whether they will develop autism

Clinical, Research
Signs of autism spectrum disorder (ASD) typically start to become apparent only in a child’s second year of life or later, but earlier identification could allow children to receive interventions as babies, when they have greater brain plasticity and thus may receive more benefit. A new study in Nature Communications finds that periodic EEGs in ... Read More about Babies’ EEG patterns predict whether they will develop autism
Tagged: autism spectrum disorder, developmental medicine, diagnostics, eeg, neuroscience
two transfusion bags

In high-risk neuroblastoma, two stem cell transplants may be better than one

Clinical, Research
Since the early 1990s, chemotherapy followed by an autologous stem cell transplant has been the standard of care for high-risk neuroblastoma, a childhood cancer that starts in nerve cells outside the brain, especially in the tissues of the adrenal glands, and sometimes the neck, chest, or pelvis. Before children receive chemotherapy to destroy the neuroblastoma, ... Read More about In high-risk neuroblastoma, two stem cell transplants may be better than one
Tagged: cancer, neuroblastoma, stem cell transplant
Families support research for better low-grade glioma treatments

Exploring targeted treatments for children with low-grade brain tumors

Clinical, Research
Children diagnosed with low-grade astrocytomas, the most common type of pediatric brain tumor, have close to 90 percent overall survival rates. However, the growth of the tumors, as well as the standard treatments (neurosurgery and chemotherapy) required to control them, can cause serious side effects, including damaging developing brains and bodies. Researchers at Dana-Farber/Boston Children’s Cancer and Blood ... Read More about Exploring targeted treatments for children with low-grade brain tumors
Tagged: cancer, glioblastoma, research
combined treatment for ewing sarcoma

Chemical screening suggests a two-pronged treatment for pediatric Ewing sarcoma

Clinical, Research
For children with Ewing sarcoma, an aggressive bone cancer, a combination of two different classes of drugs may work synergistically to turn off the drivers fueling this disease, finds a new study. The combination appears to be more powerful than relying on either treatment alone. The study, published online last month in Clinical Cancer Research, is the latest in a ... Read More about Chemical screening suggests a two-pronged treatment for pediatric Ewing sarcoma
Tagged: adolescent medicine, cancer, ewing sarcoma, rare disease

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