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remdesivir FDA approval

Remdesivir: What to know about the first drug approved to treat COVID-19

Clinical Care, Specialty Care
In late October, the U.S. Food and Drug Administration (FDA) officially approved the antiviral drug remdesivir (Veklury) for COVID-19. The approval has been controversial, with many scientists questioning the strength of the evidence and proposing that the drug undergo further clinical trials before receiving full FDA approval . What does this mean for children who ... Read More about Remdesivir: What to know about the first drug approved to treat COVID-19
Tagged: clinical trials, coronavirus, research
cardiovascular genetics

Coordinated care and research for genetic cardiovascular disorders

Clinical Care, Specialty Care
Genetic cardiovascular disease in children sometimes comes to light in a crisis — a sudden collapse, sudden breathing difficulty, a sudden death in the family. Or it may be part of a diverse collection of symptoms, mostly having nothing to do with the heart. Sometimes it is picked up incidentally. “From an incidental ECG finding ... Read More about Coordinated care and research for genetic cardiovascular disorders
Tagged: arrhythmia, cardiac research, cardiomyopathy, congenital heart defect, electrophysiology, genetics and genomics, heart, heart center, research, tissue engineering
Jean Connor trains other nurses on the CAMEO tool

The CAMEO tool: Capturing the complex nature of pediatric nursing

Clinical Care, Specialty Care
By any measure, nursing is a complex profession. On any given day, nurses must draw on a wide range of cognitive skills and clinical tools to care for their patients, and by extension, their patients’ families. As patients become increasingly complex, so do the specific proficiencies necessary to complete their jobs. Measuring the cognitive complexity ... Read More about The CAMEO tool: Capturing the complex nature of pediatric nursing
Tagged: complex care, heart, heart center, nicu, nursing
Members of the cardiac MIS-C team pose in the Heart Center

MIS-C: The tip of an iceberg? Looking at cardiac care for this rare syndrome

Clinical Care, Specialty Care
In the early days of the COVID-19 outbreak, it seemed that children were far less likely to develop serious problems from the disease than adults. Then in mid-March, hospitals started reporting an unusual inflammatory syndrome in children that seemed to be related to COVID-19, now known as multisystem inflammatory syndrome in children (MIS-C). MIS-C can ... Read More about MIS-C: The tip of an iceberg? Looking at cardiac care for this rare syndrome
Tagged: cardiac research, coronavirus, heart, heart center, mis-c
lungs with drug coming in

Trial tests dornase alfa, a cystic fibrosis drug, for severe COVID pneumonia

Clinical Care, Specialty Care
Boston Children’s Hospital and Brigham and Women’s Hospital will soon begin testing an existing drug, dornase alfa, in patients with severe COVID-19 pneumonia and respiratory failure. The randomized, controlled clinical trial aims to enroll 60 adults and children over age 3 who require mechanical ventilation. Key takeaways:·      A randomized trial is testing whether a cystic ... Read More about Trial tests dornase alfa, a cystic fibrosis drug, for severe COVID pneumonia
Tagged: blood, clinical trials, coronavirus, pneumonia, pulmonology, research, thrombosis
Position of designed cuff between the 20mm conduit and the PA branches with 38mm diameter including extension into RPA

Utilizing engineering tools from the aerospace industry to repair hearts

Clinical Care, Specialty Care
When an 18-year-old patient from North Carolina recently presented at Boston Children’s Heart Center with an enlarged right atrium that made the flow through his Fontan circulation very inefficient, David Hoganson, MD, decided to utilize a new set of tools borrowed from the aerospace industry. “We have been collaborating with Dassault Systemes for over a ... Read More about Utilizing engineering tools from the aerospace industry to repair hearts
Tagged: cardiac surgery, heart center, single ventricle defects
assessing pediatric glioma

Guidance for assessing treatment response in pediatric brain tumors

Clinical Care, Specialty Care
Assessing patients’ response to cancer therapy can be challenging, especially in neuro-oncology. Generally, we assess treatment response by a change in tumor size on MRI scan. However, with brain tumors, changes on MRI scan can be difficult to interpret. A decrease in tumor size may indicate treatment is having an effect; however, a drug can ... Read More about Guidance for assessing treatment response in pediatric brain tumors
Tagged: brain tumor, cancer, dipg, glioma, imaging, neurosurgery, oncology
ADHD letters , COVID virus, and illustrations of children in separate boxes

Caring for pediatric ADHD patients through telehealth

Clinical Care, Specialty Care
Key takeaways·      In the current health crisis, online visits should be used to monitor current patients and make new diagnoses.·      Providers should guide families to resources for at-home behavioral modification techniques.·      Telehealth office visits are likely to remain after the current crisis subsides. It comes as no surprise to the pediatric neurology community at Boston ... Read More about Caring for pediatric ADHD patients through telehealth
Tagged: ADHD, coronavirus, research, telehealth
treating inflammation in MIS-C COVID-19

Treating inflammation in MIS-C: An evidence-based approach

Clinical Care, Specialty Care
Multisystem inflammatory syndrome in children (MIS-C) is a complex, post-COVID-19 spectrum of illness that has affected a small number of children and adolescents. Symptoms can include features of Kawasaki disease, cardiac dysfunction, hypotension and toxic-shock-like signs, abnormal blood coagulation, and prominent GI symptoms. At its core is a hyperinflammatory response that we do not yet ... Read More about Treating inflammation in MIS-C: An evidence-based approach
Tagged: autoimmune disease, coronavirus, immune disorders, immunotherapy, infectious diseases, kawasaki disease, mis-c, research
COVID lung image in children

Radiology of COVID-19 infection in children: Imaging findings and recommendations

Clinical Care, Specialty Care
Key takeaways:·       Lung images in children with COVID-19 show unique features, including the halo sign.·       Chest X-ray and CT images differ significantly from early to late infection.·       New imaging guidelines recommend when to perform imaging studies on children with COVID-19. As more children become infected with the coronavirus causing COVID-19, lung imaging shows that the ... Read More about Radiology of COVID-19 infection in children: Imaging findings and recommendations
Tagged: coronavirus, diagnostics, imaging, research

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