Seeds of hope for Annie: one family’s story of epilepsy care
Ten-year-old Annie Dinan experienced her first noticeable seizure just before her fourth birthday while riding in the car with her family. “I had never seen a seizure in my entire life,” her mom, Lindsay, says of witnessing Annie lose then quickly regain consciousness. “But somehow, I knew exactly what it was.” Refusing to settle Following ... Read More about Seeds of hope for Annie: one family’s story of epilepsy care
Nurses Week 2022: Leading the way in advancing nursing documentation
Boston Children’s Hospital nurses are dedicated to providing high-quality care to patients and families, which is best accomplished through maximizing time with patients for assessment and direct care. However, studies have shown that the long documentation process in an electronic health record (EHR) too often detracts from direct patient care and is a common barrier ... Read More about Nurses Week 2022: Leading the way in advancing nursing documentation
Climate and children’s health: A conversation with Dr. Aaron Bernstein
When Boston Children’s Hospital pediatrician Dr. Aaron Bernstein was in medical school, he was told that climate change — an interest of his since 7th grade — belonged in the realm of politics, not medicine. One professor told him flat out, “You’re trying to fit a square peg in a round hole.” But another professor ... Read More about Climate and children’s health: A conversation with Dr. Aaron Bernstein
Nutrition equity: How to give nutrition advice to diverse families
If nutrition advice were easy to follow, the number of children with type 2 diabetes and obesity would be going down, not up. But as many pediatricians and nutritionists know, food cravings, picky eaters, and hectic schedules pose serious challenges. Add language barriers, a lack of accessible food choices, or food insecurity to the mix, ... Read More about Nutrition equity: How to give nutrition advice to diverse families
Miles for Jack: Robin sequence and the bond between a family and doctor
For runners and non-runners alike, next week’s Boston Marathon is extra special. It marks a beloved tradition for the city, and for many, it’s a chance to once again run for those who can’t and bring awareness to causes worth fighting for. For 6-year-old Jack Ryan, this year’s marathon is a chance to cheer on ... Read More about Miles for Jack: Robin sequence and the bond between a family and doctor
When a critically ill child is homeless
On a single night in 2020, roughly 172,000 in families with children and 34,000 unaccompanied youth under age 25 were homeless, according to government figures. Many more families are housing insecure amid skyrocketing rents. A large body of research finds that both situations put children at increased risk for health problems. Parents may have ... Read More about When a critically ill child is homeless
Targeting treatments for vascular anomalies, courtesy of cancer genetics
Vascular anomalies — overgrowths or malformations of the capillaries, veins, arteries, and/or lymphatic vessels — often confound physicians, especially in acute settings. They encompass a diverse group of conditions, all of them rare, and can affect multiple body systems. Many physicians have never encountered vascular anomalies and may be unaware of the risks they sometimes ... Read More about Targeting treatments for vascular anomalies, courtesy of cancer genetics
Using genetics to glimpse newborns’ future with congenital heart disease
Aside from infections, congenital heart disease (CHD) is the leading cause of infant mortality. Informed by babies she sees in the NICU, Sarah Morton, MD, PhD, attending physician in the Division of Newborn Medicine at Boston Children’s, has devoted her career to understanding CHD’s genetic causes. Her findings are shedding light on what parents and ... Read More about Using genetics to glimpse newborns’ future with congenital heart disease
Kids with special health care needs can take small steps toward dental visits
This is the second of a two-part series offering dental advice to the parents of children with special health care needs. A visit to the dentist can be an overwhelming experience for children with special health care needs. Like many people, they might feel uncomfortable with dental picks and drills. Or, favoring the rhythm of ... Read More about Kids with special health care needs can take small steps toward dental visits
Parents: Start dental care early for children with special health care needs
This is the first of a two-part series offering dental tips to the parents of children with special health care needs. The texture of a toothbrush’s bristles can be enough to make dental hygiene an uncomfortable undertaking for children with special health care needs. And because children with autism spectrum disorders, cerebral palsy, Down syndrome, and other conditions are ... Read More about Parents: Start dental care early for children with special health care needs