Archive for congenital heart defect
A biventricular repair helps California girl thrive
Even before their daughter, Elyse, was born, Amanda and Ian Primavera knew their road would be a little rocky. But they had no idea how hard they’d have to push to get the care they wanted for their daughter. Ultimately, an online support group and a little perseverance helped them find the answers and treatment ... Read More about A biventricular repair helps California girl thrive
Regina’s journey with HLHS: Four years later
Regina was just 25 days old the first time she made the trip from her home in Mexico to Boston. Regina was born with a serious congenital heart defect called hypoplastic left heart syndrome (HLHS), resulting in the underdevelopment of the left side of her heart. Her doctors in Mexico told her parents it was ... Read More about Regina’s journey with HLHS: Four years later
Tissue models and a gene therapy for a deadly heart arrhythmia
Catecholaminergic polymorphic ventricular tachycardia (CPVT) is a leading cause of sudden death from cardiac arrest in children and young adults. Marked by racing, irregular heartbeats, the inherited arrhythmia is typically silent until a child suddenly collapses and faints, at an average age of 12. The trigger is an adrenaline surge, caused by exercise or emotional ... Read More about Tissue models and a gene therapy for a deadly heart arrhythmia
Expanding on a lifetime of heart care: The BACH Program
As more patients born with congenital heart disease (CHD) live well into adulthood and older age, there is an increasing demand for clinicians who understand their complex and unique needs. Since its inception more than 25 years ago, the Boston Adult Congenital Heart (BACH) Program has been a leader in adult congenital heart disease (ACHD) ... Read More about Expanding on a lifetime of heart care: The BACH Program
Tagged: bach, congenital heart defect, heart