Archive for cardiac surgery
Heart strong: Two families bond over shared challenges
Four years ago, Ali Marcus walked through the door of a coffee shop in Connecticut and met the woman who would soon become her close friend, Britt Sheiber. The two were meeting at the suggestion of a mutual friend: Britt had just learned at a prenatal visit that one of her twins would be born ... Read More
Unraveling the mystery of Rylan’s respiratory problems
Rylan is Destinee Davidson’s second child, but in some ways, he feels like her first. “Our older son, Bryce, has always been healthy,” she explains. “With Rylan, I feel like a first-time mom because everything is so new.” Rylan has been keeping Destinee and her husband, Bradford, on their toes since the day he was ... Read More
A complex repair for Ruby’s heart
When Rebecca and Michael Stewart learned their baby would be born with a congenital heart condition, they reacted as any expectant parents would, with shock and fear. But they quickly moved into action, focused on finding the best care for their daughter before her birth. “At about 22 weeks into my pregnancy, Ruby was diagnosed ... Read More
Utilizing engineering tools from the aerospace industry to repair hearts
When an 18-year-old patient from North Carolina recently presented at Boston Children’s Heart Center with an enlarged right atrium that made the flow through his Fontan circulation very inefficient, David Hoganson, MD, decided to utilize a new set of tools borrowed from the aerospace industry. “We have been collaborating with Dassault Systemes for over a ... Read More
Five things parents should know about vascular rings
If your child has a high-pitched cough, breathes loudly, wheezes, has difficulty eating or swallowing, or always seems to be coming down with pneumonia or respiratory infections, the problem could be more complex than you realize. Although rare, abnormal formations of the blood vessels called vascular rings can compress the trachea, esophagus, or both. While ... Read More
Vascular rings: A complex cause of noisy breathing
Patients who present with noisy breathing, wheezing, a barking cough, and frequent respiratory infections are often misdiagnosed with asthma or croup, but a more complex problem could be responsible. Such symptoms can signal tracheomalacia (also known as tracheobronchomalacia), a condition in which the airway narrows or collapses when a child breathes. But clinicians should consider ... Read More
Someday, this prosthetic heart valve might be the only one a child needs
More than 330,000 children worldwide are born with a heart valve defect, and millions of others develop rheumatic heart disease requiring early valve replacement. Current prosthetic heart valves are fixed in size, so typically need to be replaced every few years as a child grows. For children receiving their first replacement before age 2, that ... Read More
Staff Spotlight: Meet Sue-mei Portugues
Sue-mei Portugues is the global patient access manager for the Department of Cardiac Surgery at Boston Children’s Hospital. What’s your role at the hospital? I assist some of the families that come from all over the world for cardiac surgeries throughout the second opinion process. I’m often the first person they connect with when they reach ... Read More
PICU Up! Program aims to increase mobility in ICUs
For decades, clinicians believed the most appropriate care for critically ill pediatric patients was sedation and rest. But in recent years, the tides have changed. Studies in adults have shown that sedation and immobility lead to increased mortality and morbidity, longer stays in the intensive care unit (ICU), increased risk of ICU delirium, and a ... Read More
Noah the brave: A cross-country quest for a biventricular repair
If you walked down Binney Street next to Boston Children’s hospital this fall, you might’ve noticed something a bit out of the ordinary. Parked on the sidewalk, just out of the way of passers-by, sat a large RV. On the back of the camper, a large photo of a smiling 5-year-old Noah Alderson told part ... Read More