Archive for MFCC
The best decision: Triplet Jayden is thriving after CDH repair
Jayden is barely a year old, but he’s already been through more ups and downs than some adults. Born at just 27 weeks — along with his brothers Jacob and Jamari — he’s overcome tremendous odds, not just as a triplet and preemie, but because he was born with a serious condition called congenital diaphragmatic ... Read More about The best decision: Triplet Jayden is thriving after CDH repair
From ECMO to an active childhood: Nolan’s journey with congenital diaphragmatic hernia
Nolan Griffin knows how to use a stethoscope and rarely enters Boston Children’s Hospital without his medical kit. But Nolan isn’t a doctor — at least not yet. For now, the busy 2-year-old is a patient in the hospital’s Congenital Diaphragmatic Hernia Center, where he’s been receiving care since before he was born. Although Nolan’s ... Read More about From ECMO to an active childhood: Nolan’s journey with congenital diaphragmatic hernia
The sooner the better: An argument for fetal MRI before 16 weeks
To date, fetal magnetic resonance imaging (MRI) has been limited to the mid-second or the third trimester of pregnancy. This timing has been based on the belief that MRIs performed too early couldn’t produce diagnostic images because of the small fetal size and normal fetal motion. In addition, although practice guidelines indicate that first-trimester imaging ... Read More about The sooner the better: An argument for fetal MRI before 16 weeks
Years in the making: Team performs successful fetal intervention for VOGM
On an ordinary Wednesday in March, a team of specialists from two institutions made the extraordinary happen: a first-of-its-kind intervention for a rare, life-threatening type of blood vessel anomaly called a vein of Galen malformation (VOGM) — performed in utero. The ultrasound-guided embolization involves deploying tiny metal coils into the affected vein via a microcatheter ... Read More about Years in the making: Team performs successful fetal intervention for VOGM
Changing the world: Baby Denver leads the way after first-of-its-kind procedure for VOGM
Denver Coleman is less than 2 months old, but she’s already helped blaze a trail for other children and families, a feat she accomplished before she was even born. Denver, who was diagnosed with a vein of Galen malformation — a type of rare blood vessel abnormality inside the brain — in utero, is the ... Read More about Changing the world: Baby Denver leads the way after first-of-its-kind procedure for VOGM
After complex heart surgery, Yah’ir is all smiles
Christina Moreland and Jimmy Austin want their 6-month-old son, Yah’ir, to have a bright future, one where he can pursue all of his dreams. “He can do whatever he wants to do,” Christina says. There’s just one caveat, an understandable one considering that Yah’ir is recovering from complex heart surgery. “As long as he doesn’t ... Read More about After complex heart surgery, Yah’ir is all smiles
Maternal-fetal care helps ‘All Smiles Myles’ beat a CPAM
Myles Gifford is “fearless and defiant,” says his mother, Katy. “We’ll be in big trouble when he’s a teenager,” she laughs. “But it’s benefited him so far.” In fact, Myles, now more than 18 months old, needed to draw on his perseverant personality almost as soon as he was born. Katy, her husband, Mike, and ... Read More about Maternal-fetal care helps ‘All Smiles Myles’ beat a CPAM
‘I did it!’ Micah is thriving after maternal-fetal care for a CPAM
Dr. Marla Lipsyc-Sharf is no stranger to the field of medicine: As a medical oncology fellow, she’s familiar with the human body and the health challenges that can arise. But it still came as a shock when — 20 weeks into a healthy pregnancy — she and her husband, Jeremiah, learned during an ultrasound that ... Read More about ‘I did it!’ Micah is thriving after maternal-fetal care for a CPAM
Unstoppable: Cairo’s journey for kidney care began even before birth
Like lots of babies, Cairo Carter was born screaming — and his parents were thrilled. “We just wanted him to scream so we knew he could breathe,” explains his mother, Alaila. The family cried tears of joy and relief, but they understood that the moment was just the first step of a long journey. “We ... Read More about Unstoppable: Cairo’s journey for kidney care began even before birth
From Virginia to Boston for a kidney transplant: Joshy’s story
Joshy Buchheit is a lot like most 4-year-old boys. He loves playing in the mud, riding his scooter, and keeping up with his three older brothers, Joseph, Ethan, and Evan. But what sets Joshy apart is that he was born with end-stage renal disease (ESRD) and had a kidney transplant when he was just 20 ... Read More about From Virginia to Boston for a kidney transplant: Joshy’s story