Archive for congenital diaphragmatic hernia
From ECMO to an active childhood: Nolan’s journey with congenital diaphragmatic hernia
Nolan Griffin knows how to use a stethoscope and rarely enters Boston Children’s Hospital without his medical kit. But Nolan isn’t a doctor — at least not yet. For now, the busy 2-year-old is a patient in the hospital’s Congenital Diaphragmatic Hernia Center, where he’s been receiving care since before he was born. Although Nolan’s ... Read More
‘Our silver lining’: Mila is thriving after CDH repair
For Katie, last St. Patrick’s Day wasn’t an occasion for revelry. Instead, it was the day an ultrasound revealed that their daughter, Mila, would be born with a congenital diaphragmatic hernia (CDH). In this condition, the diaphragm — the layer of muscle and tissue between the chest and abdominal cavity — forms with a hole ... Read More
Making it through the fight: Scarlett’s CDH journey
Like her name suggests, Scarlett Virginia Moulton “has a lot of fire,” says her mother, Olivia. “She always has a smile on her face. We tell her every day how strong she is and she just smiles. It’s almost like she knows she’s made it through the big fight.” That fight began even before Scarlett was ... Read More
From Cape Verde for coordinated CDH care
Most parents have never heard of congenital diaphragmatic hernia (CDH), a rare and potentially life-threatening condition in which a baby is born with a hole in the diaphragm, the muscle that the body uses to breathe. This can cause the intestines and other abdominal organs to move into the chest, which prevents normal lung development. ... Read More
From fear to hope with CDH
Lyndsay MacNeil is a nurse, but even she — like most parents — had never heard of congenital diaphragmatic hernia (CDH) until she was pregnant with her daughter Shayne. During a routine ultrasound, her clinicians at Brigham and Women’s Hospital detected an anomaly in the fetus, which they suspected was CDH. In this serious condition, ... Read More
Incredible Teddy: Thriving with CDH
Andi Lodico left for the hospital at 1 a.m., in labor with her second child. She didn’t return home for two months. Just a few weeks earlier, she and her husband, Phil, had been at a routine ultrasound appointment when they received some troubling news. Their baby, Teddy, appeared to have a rare and potentially ... Read More
Alivia’s journey with CDH
Alivia Gannon recently got the kind of information every kid wants to hear: She won’t have to return to the Congenital Diaphragmatic Hernia Program at Boston Children’s Hospital for another five years. For Alivia and her parents, Erin and Richard, the news is particularly welcome: Although the active 12-year-old is now the picture of health, ... Read More