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Your destination for kids' health

A mother holding her baby.

Rowan the Remarkable: Defying the odds with CPAM

Patient Stories
This is the story of a baby named Rowan and his remarkable journey of beating the odds after doctors discovered a potentially fatal mass on his lung in utero. This is also the story of his mother, Casey, who fought for him every step of the way, and the medical professionals whose collaboration and planning ... Read More about Rowan the Remarkable: Defying the odds with CPAM
Tagged: Fetal Care and Surgery Center, fetal medicine, MFCC, nicu, surgery
A woman stands outside the front of Boston Children's Hospital.

Twenty years after a groundbreaking biventricular repair, Faith gives back by helping children with CHD

Patient Stories
Faith Brackett doesn’t remember every detail of the time she was among the first children to have a new life-saving heart surgery. She was 7, after all, when she had a biventricular repair — a procedure that creates two functioning ventricles in a heart relying on just one.  But she does remember how the surgery finally gave ... Read More about Twenty years after a groundbreaking biventricular repair, Faith gives back by helping children with CHD
Tagged: biventricular repair, cardiac surgery, cardiology, congenital heart defect, heart, heart center, heart patient, hlhs
A young boy sitting at a table with two fingers in the air.

It takes a village and the world: Tariq’s care for Tourette syndrome

Patient Stories
When your child is sick but you can’t figure out the cause or how to fix it, it can leave you feeling helpless and frustrated. It can also test how far you’ll go for answers. Just ask Salem of the United Arab Emirates (UAE), who moved with his family to Boston so his son Tariq ... Read More about It takes a village and the world: Tariq’s care for Tourette syndrome
Tagged: brain health, international, neurology, second opinion
caden in a motor boat on a lake

New possibilities: How Caden learned to manage chronic pain — and found an unexpected path

Patient Stories
In October 2020, Caden Deutsch started feeling sick. Although the 17-year-old had been coping with juvenile idiopathic arthritis since he was in sixth grade, this was different. By the following year, what had begun as brief episodes of gastrointestinal discomfort had progressed to constant, excruciating pain. “I’d been living with chronic joint pain for years, ... Read More about New possibilities: How Caden learned to manage chronic pain — and found an unexpected path
Tagged: motility, pain
A Red Sox player autographs the back of a woman's T-shirt.

A lifetime of treatment inspires Ruth to advocate care for others

Patient Stories
Ruth Ngwaro offers guidance to children who have heart disease. Perhaps her most useful bit of advice is telling them to not look too far ahead in their lifelong journeys and instead focus on what they can do each day. She would know: Throughout childhood and well into adulthood, Ruth was in and out of ... Read More about A lifetime of treatment inspires Ruth to advocate care for others
Tagged: arrhythmia, bach, cardiology, congenital heart defect, heart, heart center, heart patient
Jeremiah sostiene sus manos frente a su pecho, formando un corazón con los dedos.

Un verdadero corazón de oro: El viaje de Jeremiahs hacia un trasplante de corazón

Patient Stories
Con las sirenas sonando, Angelie y su esposo atravesaron el tráfico a toda velocidad, ansiosos por llegar a tiempo a la ciudad. La escolta policial que tenían delante les despejó el camino, lo que les permitió trasladarse rápidamente al Boston Children’s Hospital, donde los esperaba su hijo de 6 años, Jeremiahs, apodado JJ. Si Angelie ... Read More about Un verdadero corazón de oro: El viaje de Jeremiahs hacia un trasplante de corazón
Tagged: cardiac surgery, heart, heart center, heart patient, transplant
Jeremiah holds his hands in front of his chest, making a heart shape with his fingers.

A true heart of gold: Jeremiahs’ heart transplant journey

Patient Stories
With sirens wailing, Angelie and her husband sped through traffic, anxious to get to the city in time. The police escort ahead of them cleared the way, allowing for a speedy commute to Boston Children’s Hospital where their 6-year-old son, Jeremiahs — nicknamed JJ — was waiting for them. If Angelie hadn’t waved down the ... Read More about A true heart of gold: Jeremiahs’ heart transplant journey
Tagged: congenital heart defect, heart, heart center, heart patient, transplant
A young child leaning on a table.

Care for a prince: One family’s inspiring journey for encephalocele repair

Patient Stories
To hear Peter and Eunice of Kenya tell the story of their son, Prince, is to hear about the power of hope, the best of humanity, and the interconnectivity that makes the world a small place after all. Hope in the hopeless In March 2022, Eunice was about five months into her pregnancy when a ... Read More about Care for a prince: One family’s inspiring journey for encephalocele repair
Tagged: brain health, craniofacial, encephalocele, international, neurosurgery
A kindergarten-age boy on the playground wearing his bone-anchored hearing system.

Learning to speak with the help of a bone-anchored hearing system: Owen’s story

Patient Stories
Why does 4-year-old Owen love Ghost Spider? For one thing, her suit has purple highlights. For another, her hand forms the sign for ‘I love you’ whenever she casts a web. These reasons say a lot about Owen: a loving kid who knows American Sign Language (ASL) and whose favorite color is purple. For several ... Read More about Learning to speak with the help of a bone-anchored hearing system: Owen’s story
Tagged: hearing, otolaryngology
Jayden (left) with his brothers following his successful surgery for CDH.

The best decision: Triplet Jayden is thriving after CDH repair

Patient Stories
Jayden is barely a year old, but he’s already been through more ups and downs than some adults. Born at just 27 weeks — along with his brothers Jacob and Jamari — he’s overcome tremendous odds, not just as a triplet and preemie, but because he was born with a serious condition called congenital diaphragmatic ... Read More about The best decision: Triplet Jayden is thriving after CDH repair
Tagged: congenital diaphragmatic hernia, MFCC, prematurity, surgery

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