Archive for anorectal malformation
‘Supported and heard’: Harven gets care for an anorectal malformation
Like lots of 3-year-olds, Harven Gifford has a great imagination. Lately, he’s taken to roaring loudly and pretending that he’s a lion. But it wasn’t long ago that his parents, Heather and Brian, had to be Harven’s voice, when an unexpected health concern turned them into strong advocates for their son. Although Harven’s delivery went ... Read More about ‘Supported and heard’: Harven gets care for an anorectal malformation
Jada’s story: After cloacal exstrophy repair, an unexpected gift
Koda Wilder Ladchuk was born slightly premature, healthy, and happy. But this isn’t just a story about 4-month-old Koda. It’s also a story about his mother, Jada, and an incredible outcome no one could have predicted — not even Jada herself. Jada, now 25, was born with cloacal exstrophy (also known as OEIS syndrome), a ... Read More about Jada’s story: After cloacal exstrophy repair, an unexpected gift
Finally heard: How finding a doctor who listened helped change Carter’s life
In some ways, Carter Sousa is like any other 13-year-old: He’s obsessed with videos, loves animals, and enjoys hanging out with his friends. But for much of his childhood, Carter and his parents found themselves struggling with a frustrating and embarrassing problem that seemed to have no clear solution. Soon after he was born, Carter ... Read More about Finally heard: How finding a doctor who listened helped change Carter’s life
Treatment for anorectal malformation gives Steven freedom and confidence
Steven York has “come a very long way,” says his mother, Beth — both literally and figuratively. In just seven years, he’s traveled from China to a new home in South Carolina, made multiple visits to Boston, and undergone a series of complex but ultimately life-changing surgical procedures. According to his adoption and hospital notes, ... Read More about Treatment for anorectal malformation gives Steven freedom and confidence
‘Finally in the right place’: Peyton’s journey to Boston
When Peyton Miklas comes to Boston Children’s Hospital for an appointment, she isn’t just seeing Dr. Belinda Dickie, co-director of the Colorectal and Pelvic Malformation Center, or one of the other clinicians who care for her. The 18-month-old is also excited to visit with her buddy Bryson. The toddlers — who were born within a day of ... Read More about ‘Finally in the right place’: Peyton’s journey to Boston
Bryson’s story: Getting support for an anorectal malformation
The wait while a child has surgery can be excruciating for any parent, and Carrie and Brian Mueller are no exception. Even though it wasn’t the first procedure their son, Bryson, had undergone, they were still nervous when the time came for them to hand him over his clinical team. But before a nurse could ... Read More about Bryson’s story: Getting support for an anorectal malformation