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mikey visits with dr carlos estrada, who reconstructed his bladder

Building a better bladder: Reconstructive urologic surgery helps Mikey thrive

Patient Stories
When Mikey Tibbetts’ parents, Johanna and Matt, take him trick-or-treating, the process can last for hours. “He knows everyone and wants to stop and talk,” laughs Johanna. “We call him the mayor.” Indeed, the “super-smart” 9-year-old has even memorized the entire map of his hometown in southeastern Massachusetts. Mikey’s popularity extends to Boston Children’s Hospital, ... Read More about Building a better bladder: Reconstructive urologic surgery helps Mikey thrive
Tagged: surgery, urinary tract infection, urology
emma hugs her dog after treatment for achalasia

Innovative POEM procedure gives Emma an option for achalasia

Patient Stories
Like a lot of teenagers, Emma Reiner loves pizza — so it shouldn’t have been a surprise when she recently enjoyed four slices in one sitting. But for Emma, the meal was an accomplishment. For more than a year, she had felt nauseous after taking just a few bites of food. “It felt like the ... Read More about Innovative POEM procedure gives Emma an option for achalasia
Tagged: gastroenterology, motility
echo, who has midaortic syndrome, holds her hands together in the shape of a heart

For Echo, treatment for midaortic syndrome was ‘MAGIC’

Patient Stories
Most 7-year-olds don’t have high blood pressure, let alone blood pressure that hovers around 180/110 mm Hg. (“Normal” blood pressure for kids that age ranges between 95/60 and 110/73 mm Hg.) At first Echo Roney’s parents thought her rising blood pressure might be linked to her diagnosis of a genetic condition called neurofibromatosis 1. But ... Read More about For Echo, treatment for midaortic syndrome was ‘MAGIC’
Tagged: hypertension, midaortic syndrome, surgery
Woman and teenage girl standing next to each other smiling

Kira’s story: how a diagnosis of fatty liver disease nourished a lasting lifestyle change

Patient Stories, Specialty Care
Kira’s journey with fatty liver disease began about six years ago, when imaging for other medical reasons showed areas of concern with her liver. Fatty liver disease occurs when excess fat is stored in the liver; it can lead to progressive liver disease and is the most common pediatric liver disease in the country. The ... Read More about Kira’s story: how a diagnosis of fatty liver disease nourished a lasting lifestyle change
Tagged: liver disease, nutrition
Isabel holds her infant daughter Marcela in the rooftop garden at Boston Children's Hospital.

Saving baby Marcela: A mother’s mission to finally hold her daughter

Patient Stories
The translations of this page are translated from English into another language using Google Translate, a third party tool. Please note that such translations from the English language version may contain errors and/or inaccuracies as a result of the translation. Boston Children’s Hospital disclaims all liability for any errors or inaccuracies that may result from ... Read More about Saving baby Marcela: A mother’s mission to finally hold her daughter
Tagged: cardiac surgery, congenital heart defect, heart, heart center, heart patient, international, surgery
jacob stands in front of a cabin

Making food fun: Jacob’s journey with feeding difficulties

Patient Stories
Most parents might discourage their child from playing with their food. But for Lorraine Scanlon, getting her son Jacob to have fun at the table is all part of taking the pressure out of eating. In fact, it’s an approach recommended by his health care team. Jacob, now 8, has had feeding challenges since he ... Read More about Making food fun: Jacob’s journey with feeding difficulties
Tagged: autism spectrum disorder, diet, feeding therapy, gastroenterology, nutrition
two side-by-side images of drew ice skating at an indoor rink

Care for post-COVID symptoms helps get figure skater back in the rink

Patient Stories
Drew Kenney is no stranger to the ice. As a local and national competitive figure skater, the 16-year-old executes double salchows, double flips, and axels with ease. So when she began to feel winded — and then started falling — at the rink last fall, she knew something was wrong. “At first we thought she ... Read More about Care for post-COVID symptoms helps get figure skater back in the rink
Tagged: coronavirus
chalotte sits on a swing and smiles

Like father, like daughter: Finding care for cavernous malformations

Patient Stories
After Charlotte Miller underwent neurosurgery, her parents, Daniel and Eliza were a little nervous to tell her that part of her head had been shaved. But the spunky 5-year-old wasn’t fazed. Instead, she pointed to her father’s head and laughed, “Now I’m going bald like you, Daddy!” A sense of humor isn’t all Charlotte and ... Read More about Like father, like daughter: Finding care for cavernous malformations
Tagged: cavernous malformation, neurosurgery
Sophia, back on her skis after two ACL injuries.

After two ACL tears, a skier reconnects with her body and her sport

Patient Stories
The memory remains vivid in Sophia’s mind. Racing down a slalom course at top speed, she hit a patch of bad snow. “The next thing I knew, I was launched up in the air. My legs were above me and I lost sight of my right leg. I felt my right knee twist and I ... Read More about After two ACL tears, a skier reconnects with her body and her sport
Tagged: acl, female athletes, mental health, orthopedics, sports behavioral health, sports injury, sports medicine
cora in bed with a wally doll as she awaited her heart transplant

After a marathon year, let’s make organ donation part of our new normal

Patient Stories
Six years ago, an organ donor saved my daughter’s life. Cora was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS), which was fatal if not treated. After more than four years living with HLHS — and six open-heart surgeries — Cora’s only chance of survival was a heart transplant. On the ... Read More about After a marathon year, let’s make organ donation part of our new normal
Tagged: advocacy, heart, heart center, heart patient, transplant

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