Blog

The art of showing up: Six ways to support a friend who has a child in the hospital

“Let me know if there’s anything I can do.” Nine little words spoken with the best of intentions but aren’t necessarily all that helpful for someone faced with having a child in the hospital. But why? “People really want to do good things,” says Annie Banks, a social worker with the Hale Family Center for ... Read More

Innovative flatfoot surgery releases Quinn’s inner athlete

By the time he was 10, Quinn’s parents had tried almost everything. Dawn would sometimes massage his feet  to relieve the pain and tightness caused by flexible flatfoot, a condition in which a child has very little or no arch in their feet. Joseph did physical therapy exercises with him at night. But despite their ... Read More

Tim Springer: Scientist, entrepreneur, and mentor

As an undergraduate in 1966, immunologist, biochemist, and biophysicist Timothy A. Springer, PhD, looked askance at science. The Vietnam War was going on, and he saw science as a means of making Agent Orange and napalm. Questioning his own Ivy League education, he left Yale to spend a year as a VISTA volunteer on a ... Read More

If your baby or toddler needs peritoneal dialysis: Tips for parents

Marybeth Bentson and Theresa Pak have helped a lot of families cope with childhood kidney disease. As long-time nurses in the Division of Nephrology at Boston Children’s Hospital, the two have cared for children at every stage of kidney disease, including children on dialysis. Dialysis filters a child’s blood when their kidneys are unable to ... Read More

Using germs against themselves: How vaccines work

Germs are all around us. When a germ (in the form of virus or bacteria) enters your body, it tries to make you sick. Some germs cause minor colds, but others can cause serious disease. Fortunately, your immune system is your body’s internal defense system. It protects you by creating immune cells (T cells) and ... Read More

Beyond COVID-19: Why kids need other vaccines, too

As you consider immunizing your child, it’s natural to have questions about the safety and effectiveness of vaccines. But the detection of polio in New York illustrates how diseases that were once thought to have been eradicated can reemerge when vaccination efforts lag. While COVID-19 vaccines have understandably drawn attention during recent years, it’s important to remember ... Read More

Adjusting to sitosterolemia took time, but Justin is now on a healthy path

After Justin Zhao was diagnosed with the rare metabolic disorder sitosterolemia five years ago, the toughest part of treatment was watching his three siblings eat chocolate when he couldn’t. Sitosterolemia is a genetic disease that causes the fatty substances, or lipids, from plant-based foods such as nuts and vegetable oils to build up in the arteries, increasing ... Read More

Preventing ‘chemo brain’ with antioxidants targeting the spinal fluid

Up to three-quarters of patients receiving cancer chemotherapy suffer from “chemo brain” — a side effect that makes it harder to remember things, maintain attention, and learn new information. When it strikes children, whose brains are still developing, effects are sometimes long lasting, affecting their schoolwork and self-esteem. “One of the most distressing potential side ... Read More

Matthew, the ‘wee marvel’: One of the first ALD gene therapy recipients

When the Elliott brothers are asked how many siblings they have, they always say, “four.” It’s a way of honoring the memory of their eldest brother, Marc, who died in 2010 from adrenoleukodystrophy (ALD). ALD is a degenerative condition that destroys the protective sheath surrounding the brain’s neurons. Gradually, as the disease progresses, symptoms grow ... Read More

Children with psychotic symptoms may merit genetic testing, finds study

A 6-year-old boy began seeing ghosts, aliens in trees, and colored footprints. More disturbingly, he heard voices coming from the walls and the school intercom telling him to hurt himself and others. Joseph Gonzalez-Heydrich, MD, a psychiatrist at Boston Children’s Hospital, put him on antipsychotic medications at age 9. The frightening hallucinations stopped. While children ... Read More