Archive for Katie Paradis
‘To do what’s best for Marley’: One family’s experience with a vein of Galen malformation
Last summer, Savannah and Brian were eagerly awaiting the birth of their first child. Savannah was scheduled to deliver their daughter Marley in late September, and they couldn’t wait to hold her, feed her, dress her up, and relish in the new-baby joy. But the Georgia couple soon learned that parenthood tends to throw plans ... Read More
Talking with – not at – young people about substance use
Teens and young adults using drugs and alcohol is not new. Neither is the challenge of speaking with them about the dangers and implications. However, what is changing are the substances young people are using and the ways they’re exposed to them. We’re also learning more about how drugs, alcohol, and nicotine affect growing bodies ... Read More
Remember these seven things before bringing your newborn home from the hospital
Congratulations, you just had a baby! Now what? Whether it’s your first, second, or eighth child, the initial weeks of life with a newborn can be a sleep-deprived blur. Hopefully, your first few days postpartum come with the support of knowledgeable, compassionate nurses and hospital staff. So before being discharged home with your bundle of ... Read More
Sonny’s story: How an online Apert syndrome community set one family on a path to Boston
Sonny Daniel has had a busy summer. Between traveling, camp, and time with family and friends, this 4-year-old has constantly been on the go — something his parents, Kellie and Josh, are incredibly grateful for. Their gratitude stems a lot from seeing how far Sonny’s come in his journey with Apert syndrome, a genetic disorder that ... Read More
Why families need routines (even in the summer)
They say you don’t know what you have until it’s gone. Maybe no one has realized this more over the last few years than children and young people who lost all semblance of normalcy with the onset of the COVID-19 pandemic. Even if the benefits of their day-to-day routines were more subliminal in the “before ... Read More
Escaping the fire: How mental health care providers can fight burnout
It might feel like an occupational buzzword lately, but “burnout” is nothing new. It has plagued clinicians and other medical professionals for decades, but the COVID-19 pandemic and intensely spotlighted behavioral health crisis have only fueled the inferno. And maybe no one knows this better than the mental health professionals who have been on the frontline of both battles. ... Read More
Summertime Sadness: Helping children manage summer depression
Summer’s here, which means school is out and the sun is in. It’s everyone’s favorite season. Unless it’s not. Summer can bring with it feelings of depression or anxiety, which can be especially frustrating for young people who may think they’re supposed to unequivocally love this time of year. We spoke with Dr. Deepika Shaligram, ... Read More
Bringing Xavien home: One family’s journey with bronchopulmonary dysplasia
Xavien Velazquez is getting ready to celebrate his first birthday. It’s a milestone for every child but especially meaningful for this little boy who has spent more than half his life away from home receiving care for bronchopulmonary dysplasia (BPD), a chronic lung disease characterized by respiratory distress that is most often seen in newborns ... Read More
Shining a light on the SPF gap: Why sun protection is so important for children of color
With summer just around the corner, it’s important to understand the risks that come along with those long, hot days in the sun. It’s also important to recognize some pretty dangerous misconceptions about sun protection — namely that Black children and other children of color don’t need to worry about skin protection and skin cancers. ... Read More
Seeds of hope for Annie: one family’s story of epilepsy care
Ten-year-old Annie Dinan experienced her first noticeable seizure just before her fourth birthday while riding in the car with her family. “I had never seen a seizure in my entire life,” her mom, Lindsay, says of witnessing Annie lose then quickly regain consciousness. “But somehow, I knew exactly what it was.” Refusing to settle Following ... Read More