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A lifetime of treatment inspires Ruth to advocate care for others

Posted on by | Patient Stories
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Ruth Ngwaro offers guidance to children who have heart disease. Perhaps her most useful bit of advice is telling them to not look too far ahead in their lifelong journeys and instead focus on what they can do each day. She would know: Throughout childhood and well into adulthood, Ruth was in and out of ... Read More
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Un verdadero corazón de oro: El viaje de Jeremiahs hacia un trasplante de corazón

Posted on by | Patient Stories
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Con las sirenas sonando, Angelie y su esposo atravesaron el tráfico a toda velocidad, ansiosos por llegar a tiempo a la ciudad. La escolta policial que tenían delante les despejó el camino, lo que les permitió trasladarse rápidamente al Boston Children’s Hospital, donde los esperaba su hijo de 6 años, Jeremiahs, apodado JJ. Si Angelie ... Read More
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A true heart of gold: Jeremiahs’ heart transplant journey

Posted on by | Patient Stories
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With sirens wailing, Angelie and her husband sped through traffic, anxious to get to the city in time. The police escort ahead of them cleared the way, allowing for a speedy commute to Boston Children’s Hospital where their 6-year-old son, Jeremiahs — nicknamed JJ — was waiting for them. If Angelie hadn’t waved down the ... Read More
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Care for a prince: One family’s inspiring journey for encephalocele repair

Posted on by | Patient Stories
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To hear Peter and Eunice of Kenya tell the story of their son, Prince, is to hear about the power of hope, the best of humanity, and the interconnectivity that makes the world a small place after all. Hope in the hopeless In March 2022, Eunice was about five months into her pregnancy when a ... Read More
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Surgery beats sclerotherapy for rectal prolapse in children ages 5 and older

Posted on by | Clinical Care
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Rectal prolapse — the protrusion of the lining of a child’s rectum through the anal sphincter — can occur for many reasons. In the pediatric population, it most commonly occurs in children under 4 years old but can affect older children as well. Children with colorectal and pelvic malformations tend to be at increased risk ... Read More
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Learning to speak with the help of a bone-anchored hearing system: Owen’s story

Posted on by | Patient Stories
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Why does 4-year-old Owen love Ghost Spider? For one thing, her suit has purple highlights. For another, her hand forms the sign for ‘I love you’ whenever she casts a web. These reasons say a lot about Owen: a loving kid who knows American Sign Language (ASL) and whose favorite color is purple. For several ... Read More
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The best decision: Triplet Jayden is thriving after CDH repair

Posted on by | Patient Stories
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Jayden is barely a year old, but he’s already been through more ups and downs than some adults. Born at just 27 weeks — along with his brothers Jacob and Jamari — he’s overcome tremendous odds, not just as a triplet and preemie, but because he was born with a serious condition called congenital diaphragmatic ... Read More
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My story of bouncing back from osteochondritis dissecans

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Injuries suck — no better way of putting it. The physical pain is terrible on its own, but emotionally they can hurt even more. The frustration that comes with something that is out of your control is like nothing else. It makes you realize how much you take your health for granted until you lose ... Read More
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Helping aspiring clinicians understand a virtual heart before they work with a real one

Posted on by | Clinical, Research
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Jonathan Awori, MD, MS, MFA, isn’t embarrassed to say it took him a long time to completely understand the intricate workings of the heart. He says he isn’t alone; many aspiring doctors and nurses don’t immediately grasp the heart’s complexity from two-dimensional textbooks or even 3D-printed models.  Now that he’s a pediatric cardiology fellow at ... Read More
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Predicting brace adherence could change the game in scoliosis treatment

Posted on by | Clinical, Research
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When it comes to preventing scoliosis progression, is it possible to make bracing more effective? For decades, spine specialists focused on improving the braces themselves, making them lighter, less obtrusive, and easier to put on and take off. (The Boston Brace, developed at Boston Children’s Hospital in the early 1970s, is one example.) Key takeaways ... Read More
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