Archive for Staff Writer
Finding answers and care for a rare movement disorder: Aisha’s experience with deep brain stimulation
For nearly a decade, Aisha’s family looked for answers about a disease they couldn’t name. Born in Bahrain in 2006, Aisha was about a year old when her mother, Mariam, noticed involuntary movements in her face and lips. As she grew, Aisha showed delays in walking, speech, and other developmental milestones. Despite years of appointments ... Read More about Finding answers and care for a rare movement disorder: Aisha’s experience with deep brain stimulation
العثور على إجابات ورعاية لاضطراب حركي نادر: تجربة Aisha مع التحفيز العميق للدماغ
لقرابة عقد، بحثت عائلة Aisha عن إجابات لمرض عجزوا عن تسميته، بدأ منذ طفولتها المبكرة. ولدت Aisha في البحرين عام 2006، وكانت تبلغ من العمر عامًا واحدًا تقريبًا عندما لاحظت والدتها، Mariam، حركات لاإرادية في وجهها وشفتيها. ومع نموها، ظهر لدى Aisha تأخر في المشي والكلام والجوانب التطورية الأخرى. ورغم سنوات من المراجعات والفحوصات الطبية ... Read More about العثور على إجابات ورعاية لاضطراب حركي نادر: تجربة Aisha مع التحفيز العميق للدماغ
Rh alloimmunization: A family’s experience across two pregnancies
After her second child was born 14 years ago, Erin was convinced she’d never have another baby. Not because of her age or because she didn’t want to grow her family, but because of the painful prenatal experience that had stayed with her for years. Erin had developed alloimmunization, a condition in which the immune ... Read More about Rh alloimmunization: A family’s experience across two pregnancies
Choosing fetoscopic spina bifida care for Hadley
When Katie and Derek learned in 2024 that their daughter Hadley would be born with spina bifida, they quickly set out to find the best care available. And as so often happens in parenting, their most important decision was to trust their instincts. Doing so led them to be among the first in New England ... Read More about Choosing fetoscopic spina bifida care for Hadley
Understanding and treating Mason’s congenital nevus
Kim and Ryan noticed their son’s birthmark almost immediately after he was born. They knew birthmarks were common, but Mason’s was different — it covered a large portion of his right leg and calf. Their doctor classified it as a giant congenital melanocytic nevus and suggested they monitor it closely, but that didn’t answer all ... Read More about Understanding and treating Mason’s congenital nevus
All in it for Hudson: A family’s shared path with cavernous malformations
Three-year-old Hudson loves trucks and PAW Patrol. He’s a delightful blend of sweet, fun, and feisty, and — after a seizure on New Year’s Day led to an extended stay at Boston Children’s Hospital — he’s an inspiration to his parents, Gabrielle and Matthew. To Matthew specifically, Hudson provides a new look at his own ... Read More about All in it for Hudson: A family’s shared path with cavernous malformations
Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
Jennifer worked as a hairdresser until just days before delivering her son, Isaac, last December, even though she had planned to stop a week earlier. Beating expectations must run in the family because Isaac has been doing just that since before he was even born. He has amazed everyone around him with how well he ... Read More about Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
Superando as dificuldades da síndrome de Apert: a história do João
Depois de uma gravidez “perfeita” em 2017, os brasileiros Natália e Igor estavam emocionados por conhecer seu terceiro filho. Eles ficaram chocados quando os médicos arrebataram João uns instantes após o parto. “Até o momento em que ele nasceu, tudo parecia muito normal”, afirma Natália. “Mas quando ele chegou, imediatamente percebemos que havia algo errado: ... Read More about Superando as dificuldades da síndrome de Apert: a história do João
Five things to know about the flu
It’s flu season again. In fact, about half of every year, from September to March, is “flu season.” Despite the fact that we spend half of our lives in flu season, there are lots of misconceptions about this common and sometimes deadly virus. Here are five important facts about the flu that not everyone knows: 1. You ... Read More about Five things to know about the flu
Daphne’s story: Lifting the fog on bladder exstrophy
The day of their 18-week prenatal appointment was the first day of the most difficult 18 months of Pam and Jon’s life. When the ultrasound technician couldn’t see their baby’s bladder, they were sent home to try again later. They had so many questions, plus a 2-year-old daughter, their careers, and a house to take ... Read More about Daphne’s story: Lifting the fog on bladder exstrophy