Archive for neurosurgery
Decades in the making: JR’s journey with craniofacial care
Last fall, JR Foley posted on Facebook to thank members of the Craniofacial Program at Boston Children’s Hospital for seeing him through corrective jaw surgery. The post wasn’t JR’s first note of thanks, and it wasn’t his first surgery, either. JR’s been receiving care at Boston Children’s Hospital for more than 30 years. Treating the ... Read More about Decades in the making: JR’s journey with craniofacial care
‘Mom, my brain feels better.’ One mother’s story of her daughter’s fight with epilepsy
Liliane has a lot to be grateful for this holiday season. Until just this year, her 16-year-old daughter Emily, who has epilepsy, suffered relentless seizures that left her temporarily unable to speak or stand. The seizures began when Emily was 4, and living her life around them was all she knew. But today, Emily is ... Read More about ‘Mom, my brain feels better.’ One mother’s story of her daughter’s fight with epilepsy
Beyond fluid buildup: Rethinking congenital hydrocephalus
Hydrocephalus is classically seen as a plumbing problem, the result of too much cerebrospinal fluid (CSF) in the brain or dysregulation of fluid flow. It is usually treated with shunts to drain the CSF, or with ETV/CPC, which makes a small hole to drain the CSF and burns off the choroid plexus tissue that produces ... Read More about Beyond fluid buildup: Rethinking congenital hydrocephalus
Like father, like daughter: Finding care for cavernous malformations
After Charlotte Miller underwent neurosurgery, her parents, Daniel and Eliza were a little nervous to tell her that part of her head had been shaved. But the spunky 5-year-old wasn’t fazed. Instead, she pointed to her father’s head and laughed, “Now I’m going bald like you, Daddy!” A sense of humor isn’t all Charlotte and ... Read More about Like father, like daughter: Finding care for cavernous malformations
Surgery for Chiari malformation: “I was just happy to have an answer”
Abby Buckley loves being active, whether that means hiking, cycling, or playing sports like javelin, shotput, and discus. But in eighth grade, a bad concussion sidelined her — and led to an unexpected diagnosis. A magnetic resonance imaging (MRI) scan showed that she didn’t just have a concussion. She also had a Chiari malformation, a ... Read More about Surgery for Chiari malformation: “I was just happy to have an answer”
Austin’s story: Raising awareness after treatment for pediatric stroke
In May, 11-year-old Austin Rizzo led the pack in a two-mile road race of his own creation. But the race, named the Banana Split 2-Miler after his favorite fruit, was more than just a fun way to pass time — it was aimed at raising money to support research into pediatric stroke. It’s a topic ... Read More about Austin’s story: Raising awareness after treatment for pediatric stroke
New technique designed specifically for children gives surgeons another moyamoya treatment option
Moyamoya is rare blood vessel condition that is a major cause of pediatric stroke. Surgical revascularization can be very effective; however, anterior cerebral territory ischemia can occur after treatment, particularly in children with delayed disease progression. The current surgical treatments for anterior cerebral territory ischemia in pediatric patients are challenging: Complex, high-risk procedures haven’t been ... Read More about New technique designed specifically for children gives surgeons another moyamoya treatment option
Another shot for Conner: Getting back in the game after brain surgery
Watch Conner Hicks coach basketball at Midlakes Middle School in Clifton Springs, New York, and you’ll see a young man with a passion for the game. Talk to the players on his team and you’ll hear about a dedicated and enthusiastic role model. What you probably won’t notice is the 19-year-old’s fight with a brain ... Read More about Another shot for Conner: Getting back in the game after brain surgery
Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Moyamoya is a rare blood vessel condition that has an outsized impact on children, as it is responsible for about 6 percent of pediatric strokes in the United States. Surgical revascularization is the only treatment and is very effective. However, clinicians face challenges in identifying new or worsening disease before a disabling stroke occurs, predicting ... Read More about Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life
Karlijn Kuiper was visiting her home country of the Netherlands a few years ago when the trouble began. At first, her family noticed she would zone out. “She had these strange spells where she would just stare,” remembers her mother, Marieke. At first, it didn’t occur to Karlijn’s family that they could be seizures. Like ... Read More about Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life