Archive for cardiac neurodevelopment
Healing the heart, mind, and spirit
For most of her life, Siena Tancredi worried about her heart beating too fast. She has long QT syndrome, an inherited condition that affects the heart’s electrical rhythm and can cause fast, erratic heartbeats. From the time she was diagnosed at age 10 and into adulthood, she avoided any situation that would potentially cause her heart ... Read More about Healing the heart, mind, and spirit
Whether she’s embracing school, sports, or music, Lindsey shows how Williams syndrome can be managed
One of the first things Lindsey Franco will tell you is, “I like being me. I like being happy.” The 19-year-old has a lot to be happy about. She attends a post-high school transition program that helps young adults expand their social and life skills. There, she does all the things she enjoys, including playing ... Read More about Whether she’s embracing school, sports, or music, Lindsey shows how Williams syndrome can be managed
Research aims to pinpoint genetic connection between autism and heart disease
Cardiology and neurodevelopmental researchers have more questions than answers about the possible genetic links between congenital heart disease (CHD) and autism spectrum disorder (ASD). A study that’s underway at Boston Children’s aims to pin down those elusive answers by taking a close look at the genetics of children with neurodevelopment and cardiovascular conditions. The researchers want to see ... Read More about Research aims to pinpoint genetic connection between autism and heart disease
MIS-C’s long-term effects on mental and neurologic health
Children and adolescents who have had multisystem inflammatory syndrome in children (MIS-C) after exposure to COVID-19 are recommended to have follow-up heart function testing. A new study from Boston Children’s Hospital suggests they should also be monitored for long-term neurologic and psychosocial complications. “If parents are noticing changes in their child’s behavior or functioning, it ... Read More about MIS-C’s long-term effects on mental and neurologic health
Fetal brain imaging predicts neurodevelopment of babies with congenital heart disease
Children with congenital heart disease (CHD) often have neurodevelopmental impairment. Until fairly recently, this was thought to stem from complications of cardiac surgery or reduced oxygen supply to the brain due to the heart defect. Now we know that some babies with CHD have impaired brain development in utero because of low oxygen supply to ... Read More about Fetal brain imaging predicts neurodevelopment of babies with congenital heart disease
Camp Journey and a horse named Evan build Luca’s confidence
Until this summer, 8-year-old Luca Castellano had never been on a horse. But after participating in Camp Journey, a therapeutic riding camp for kids with congenital heart conditions, he was riding and caring for a horse like a pro. “Luca pretty much fell in love with a horse named Evan,” says his mom, Rebecca. Camp ... Read More about Camp Journey and a horse named Evan build Luca’s confidence
Improving developmental care for infants in the Cardiac Intensive Care Unit
Infants born with congenital heart disease (CHD) are some of the most fragile patients, often requiring surgery or other interventions in the first few months after birth. They also face a higher risk of developmental delays, learning disabilities, and behavioral problems than children born with a healthy heart. To help mitigate these developmental challenges, a ... Read More about Improving developmental care for infants in the Cardiac Intensive Care Unit
Four things I learned at the Cardiac Neurodevelopmental Family Symposium
I’m sure most parents treat clinic visits as I do… an opportunity to get every last drop of information out of your child’s doctors while you have their undivided attention. So, when the opportunity presents, you take advantage of a full day of learning about your kiddo. I had that chance recently — along with ... Read More about Four things I learned at the Cardiac Neurodevelopmental Family Symposium