A fall from a swing uncovers a rare cervical spine condition: Charlotte’s story
If it were any other year, Charlotte Gillis would have celebrated her 10th birthday in mid-July with a big party. But in June 2024, a fall from a swing had left her temporarily paralyzed. Though her mobility returned within a few hours, she was still in a neck brace, still wobbly on her feet, and ... Read More about A fall from a swing uncovers a rare cervical spine condition: Charlotte’s story
Every heart has a story. See how we care for them all.
It’s easy to think of the heart as a common denominator — everyone has one — but no two hearts are alike. Every heart is different. Every heart has a story. For many children and adults, that story includes coming to Boston Children’s for specialized heart care. Some were born with complex congenital heart defects, while ... Read More about Every heart has a story. See how we care for them all.
Unstoppable: Flatfoot correction helps Jacob take control
The first time Dr. Susan Mahan examined Jacob’s feet, she pressed on a tender spot near one of his arches. “You see that?” Jacob’s mother, Lucie, remembers her saying. “That bone isn’t supposed to be there.” Jacob was 13 and had spent a frustrating year trying to figure out why basketball, his greatest source of ... Read More about Unstoppable: Flatfoot correction helps Jacob take control
My son is a NICU GraD: Here’s what I’ve learned
My husband and I aren’t first-time parents, but when our twins were born nine weeks early a year ago, everything we thought we knew went out the window. The thing is, it wasn’t Cal and Theo’s early arrival that was the biggest shock; it was the challenges that came afterward. Life with newborns and a ... Read More about My son is a NICU GraD: Here’s what I’ve learned
Crossing the ocean: Kathryn learns how to manage chronic pain
When Kathryn Chechile, 11, “graduated” from Boston Children’s Pediatric Pain and Rehabilitation Center (PPRC) last year, she painted a tile to hang on the wall of the Center’s space. It’s a fun ritual for patients who complete the intensive day program aimed at helping kids manage chronic pain. Kathryn’s design features a girl looking out ... Read More about Crossing the ocean: Kathryn learns how to manage chronic pain
From swallowing troubles to doughnuts: How vascular ring treatment helped Everly
By the time she was a year old, Everly Parisee was frequently wheezing. Then she had trouble swallowing foods. Her parents sought help from local pediatricians and specialists, who, in turn, couldn’t pinpoint a diagnosis. It turns out Everly had a type of vascular ring — a rare congenital defect that can constrict critical parts of the ... Read More about From swallowing troubles to doughnuts: How vascular ring treatment helped Everly
Faced with a rare type of liver cancer, Ramie focuses on the positive
When Ramie Darling learned that his liver cancer had recurred, he thought for a while and then simply said, “OK.” Asked by his parents if he understood the situation, he replied, “I know I need more treatment. But whenever there’s a ‘down’ in life, I just think of the ‘ups.’” It’s an attitude that has ... Read More about Faced with a rare type of liver cancer, Ramie focuses on the positive
A small act of kindness: Blood donations get Sadie off the sidelines after her aplastic anemia diagnosis
In March of 2024, Sadie’s life was interrupted. A busy high school senior with classes to attend, soccer matches to play, and a much-anticipated trip to France on the horizon, Sadie was very active and felt generally healthy. But when a follow-up appointment at her pediatrician’s office led to an urgent referral to Boston Children’s ... Read More about A small act of kindness: Blood donations get Sadie off the sidelines after her aplastic anemia diagnosis
Then and now: Catching up with some of our short bowel syndrome kids
Also known as “short gut,” short bowel syndrome is a life-threatening condition in which a lack of functioning intestine can make it difficult to absorb the nutrients needed to survive and thrive. Thanks to advances in medical and surgical treatments — many of which have been made by the team in Boston Children’s Center for Advanced ... Read More about Then and now: Catching up with some of our short bowel syndrome kids
A heavy-medaled gymnast and his close call with leg-length discrepancy
Ask 15-year-old Kaleb what he likes about gymnastics and with a sly smile, he’ll say, “flipping around.” That’s Kaleb: understated, funny. But watch him in action, and you’ll see a focused gymnast who earned two medals in the 2024 Men’s Eastern National Championships. He probably won’t mention that two years ago, a surgeon told his ... Read More about A heavy-medaled gymnast and his close call with leg-length discrepancy