My journey from patient to employee
When I was 13 years old, I remember eating my breakfast and next thing I knew, my mom was repeatedly asking me why I wasn’t responding to her. I was having my first seizure. The start of my journey This was the beginning of my journey with epilepsy. For two and a half years, I ... Read More about My journey from patient to employee
Stem cell transplant leads Ali to remission, and a new home
The journey that led Ali Mercy to Dana-Farber/Boston Children’s began in 2010, when Ali was diagnosed with acute lymphocytic leukemia (ALL). At that time, he was treated in the United Arab Emirates (UAE), where his family lived. Chemotherapy initially put Ali’s ALL into remission, but three years later, it returned — this time having metastasized to ... Read More about Stem cell transplant leads Ali to remission, and a new home
Ava’s mental health journey
Ava remembers filling a small pink notebook with all her worries in just one month when she was 5 years old. Ava’s anxiety would not let her fully experience life, because she was constantly in fear of the world around her. She says, “I was being controlled by my fear rather than my own decisions.” Celebrating ... Read More about Ava’s mental health journey
Noah the brave: A cross-country quest for a biventricular repair
If you walked down Binney Street next to Boston Children’s hospital this fall, you might’ve noticed something a bit out of the ordinary. Parked on the sidewalk, just out of the way of passers-by, sat a large RV. On the back of the camper, a large photo of a smiling 5-year-old Noah Alderson told part ... Read More about Noah the brave: A cross-country quest for a biventricular repair
After hip dysplasia, Emma smashes her cast
When she could walk again, Emma Wilkinson and her parents threw a big party. Diagnosed with hip dysplasia at the age of 4, Emma had spent 10 weeks in a spica cast that made almost all physical activity impossible. Now, baseball bat in hand, she took aim at a piñata replica of her cast while ... Read More about After hip dysplasia, Emma smashes her cast
Foot deformity and amputation: Maria’s tough choice
Whenever she could, Maria Dupuis found a way to walk. She walked when she had to wear a cast from her chest to her ankles. She walked when the curve in her spine reached 94 degrees. When her right foot pointed up to the sky rather than straight ahead, she walked on her heel. Maria ... Read More about Foot deformity and amputation: Maria’s tough choice
Congenital scoliosis: Maria’s story
Growing up in a big family helped. When Maria Dupuis came home from the hospital after surgery to correct her scoliosis, her sisters played Subway Surfer with her and her brothers braided her hair. Having so many siblings around to play with probably motivated her to get up and start walking sooner. And when other ... Read More about Congenital scoliosis: Maria’s story
BACH Program: Heart care for patients of all ages
At 73, Fran Sansalone might not seem like a typical Boston Children’s Hospital patient. But she’s one of a growing number of adults who visit the Heart Center regularly. Fran has been a patient in the Boston Adult Congenital Heart (BACH) Program for the past 18 years. Like other adults born with a congenital heart ... Read More about BACH Program: Heart care for patients of all ages
Giving back: Cole’s ‘Socks for Smiles’
When Cole was 10, he experienced his first seizure. Two years later, he has multiple seizures a day and is treated at the Boston Children’s Hospital Epilepsy Center. In the spring of 2019, Cole and his family were inpatient at the hospital for an electroencephalogram (EEG) to check on his epilepsy. While he was in ... Read More about Giving back: Cole’s ‘Socks for Smiles’
Mary’s journey with genetic epilepsy
Lots of people don’t like the heat. It makes them feel uncomfortable and sluggish. But for Mary, being outside on a hot day means risking a seizure. So can running in gym class or having a fever. That’s because Mary has genetic epilepsy, a form of Dravet syndrome — a rare epilepsy syndrome caused by ... Read More about Mary’s journey with genetic epilepsy