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Carolann, who had ear surgery after a concussion, poses with her dog

Carolann’s story: When it’s more than a concussion

Patient Stories
Cheerleading had always been a big part of Carolann Hurley’s life. So when she was dropped by accident as a sophomore in high school and diagnosed with a concussion, she had no intention of stopping. It wasn’t her first concussion. But this time was different — she kept blacking out and was having frequent migraines ... Read More about Carolann’s story: When it’s more than a concussion
Tagged: brain injury, concussion, surgery, vestibular system
lucie, who has chronic pain, stands looking at a lake

No longer just ‘getting through the day’: Addressing Lucie’s chronic pain

Patient Stories
Lucie Robert had always been an engaged and active kid: At just 10 years old, she loved Nordic skiing, dancing, and playing the cello. Yet she was also prone to injury, sometimes on crutches because of minor twists and sprains. Even after a series of minor dislocations led to a diagnosis of Ehlers-Danlos syndrome (EDS) ... Read More about No longer just ‘getting through the day’: Addressing Lucie’s chronic pain
Tagged: pain
Evan and West, both who have congenital heart disease, pose with Evan's brother in a kitchen

Heart strong: Two families bond over shared challenges

Patient Stories
Four years ago, Ali Marcus walked through the door of a coffee shop in Connecticut and met the woman who would soon become her close friend, Britt Sheiber. The two were meeting at the suggestion of a mutual friend: Britt had just learned at a prenatal visit that one of her twins would be born ... Read More about Heart strong: Two families bond over shared challenges
Tagged: cardiac surgery, heart, heart center, heart patient
Nathan, who was diagnosed with OMS, smiles from his hospital bed

One in 5 million: Nathan’s rare diagnosis and happy recovery

Patient Stories
Nathan Asselin was a happy baby with no apparent health problems when he became ill just before his birthday in April of this year. “He didn’t seem himself the night before, then he woke up with a fever on the day of his birthday,” says his mother, Danielle. “He sat on the floor eating his ... Read More about One in 5 million: Nathan’s rare diagnosis and happy recovery
Tagged: adrenal gland disorders, cancer, neurology, opsoclonus-myoclonus-syndrome
rylan, who has a laryngeal cleft, sits outside. he is wearing a brown jacket and smiling

Unraveling the mystery of Rylan’s respiratory problems

Patient Stories
Rylan is Destinee Davidson’s second child, but in some ways, he feels like her first. “Our older son, Bryce, has always been healthy,” she explains. “With Rylan, I feel like a first-time mom because everything is so new.” Rylan has been keeping Destinee and her husband, Bradford, on their toes since the day he was ... Read More about Unraveling the mystery of Rylan’s respiratory problems
Tagged: cardiac surgery, heart, heart center, heart patient, laryngeal cleft, total anomalous pulmonary venous return
maythum, who had midaortic syndrome, at his college graduation. he has two cakes and is wearing a blue shirt

Maythum finally finds answers for midaortic syndrome

Patient Stories
Maythum Mehdi was just 5 years old when he told his mother, Batul, that he was having trouble seeing: When he played on the computer, the screen appeared blurry. Right away, Batul — who was then training to be a cardiology nurse — sought medical attention. “I knew that wasn’t a good sign,” she says. ... Read More about Maythum finally finds answers for midaortic syndrome
Tagged: hypertension, midaortic syndrome, nephrology, surgery
ava, who received car t-cell therapy, waves at the camera. she is wearing a bicycle helmet.

CAR T-cell therapy helps young hockey fan ice pediatric leukemia

Patient Stories
Due to COVID-19, Ava Girolimetti wasn’t sure if she would be starting middle school this year in a classroom, on a computer screen, or a combination of both. But thanks to CAR T-cell therapy for acute lymphoblastic leukemia (ALL), she knew she would be there cancer-free. The rising sixth grader can make this claim as ... Read More about CAR T-cell therapy helps young hockey fan ice pediatric leukemia
Tagged: acute lymphoblastic leukemia, cancer, car t-cell therapy
Gabriel with a yellow top and blue casts on both his legs to correct his clubfeet.

Diagnosed with clubfeet before he was born: Gabriel’s story

Patient Stories
Cheryl Bratt and her wife, Sue, expected a routine visit when they went in for their 18-week ultrasound. Cheryl, a professor, had scheduled the test before her morning class. The radiologist was reassuring through the entire ultrasound — until the end. “Then she told us the baby had clubfeet and we needed to see a specialist.” Just ... Read More about Diagnosed with clubfeet before he was born: Gabriel’s story
Tagged: clubfoot, lower extremity, orthopedics
James, who had a stroke, shows an arm and that reads "stronger, tougher"

Seeing what’s possible: Pediatric stroke doesn’t slow James down

Patient Stories
James Veling is only 6 years old, but he has a whole bag of medals. He’s won them by placing in various Spartan obstacle races and 5Ks, sometimes besting multiple adults in the process. James is following in the footsteps of his father, David — literally. “I started running a few years ago, partly as ... Read More about Seeing what’s possible: Pediatric stroke doesn’t slow James down
Tagged: stroke
adella stands near a waterfall after recovering from thyroid cancer

From Alabama for answers: Adella’s thyroid journey

Patient Stories
She may only be 12 years old, but Adella Jackson has already expanded her family’s perspective. “She’s broadened our horizons,” says her mother, Cindy. “If it wasn’t for Adella, we never would have gotten to visit Boston, for example.” The Jacksons, who hail from Alabama, have loved exploring the city’s rich history and art museums ... Read More about From Alabama for answers: Adella’s thyroid journey
Tagged: surgery, thyroid cancer

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