A lot better than surgery: Jesse’s treatment for pectus excavatum
Like many growing boys, Jesse Zuniga went through a growth spurt when he was 12. Around that time, his pediatrician noticed an indentation in his chest. Neither he nor his mother, Sarah, had heard of pectus excavatum or vacuum bell therapy before. Soon they would be experts in both. Also known as concave chest or ... Read More
“I am a superhero”: Joecel and his mom work to address feeding challenges
Joecel Castillo loves Spiderman, Batman, He-Man — and pancakes. They’re the sorts of favorites that might show up on any 5-year-old’s list, but Joecel isn’t just any 5-year-old. In fact, until recently, pancakes wouldn’t have been among his favorite things. Very few foods would have been. “He wouldn’t even eat his own birthday cake,” says ... Read More
Austin’s story: Raising awareness after treatment for pediatric stroke
In May, 11-year-old Austin Rizzo led the pack in a two-mile road race of his own creation. But the race, named the Banana Split 2-Miler after his favorite fruit, was more than just a fun way to pass time — it was aimed at raising money to support research into pediatric stroke. It’s a topic ... Read More
A surprising diagnosis leads to treatment for Liam’s liver cancer
For Liam Dickerson, what started as a simple sick day turned into a journey he never could have expected. In 2018, he wasn’t feeling well and paid a visit to his high school’s nurse. Although he was experiencing chest and under arm pain, the nurse worried that he might have appendicitis and recommended he see ... Read More
From ECMO to star athlete: Kobe’s story
Kobe Perry is fast. This year, the 12-year-old from New Hampshire placed #2 in the United States in the indoor 60-meter sprint and at #10 in the 200-meter for boys in his age group. “Watching Kobe run now, you would never know that he had a heart condition when he was a toddler and had ... Read More
Amazing Grace: Toddler receives life-changing care for cloacal anomaly
Grace Brown loves playing with her six brothers and sisters, watching educational TV shows, and just being an average toddler. But by some accounts, she shouldn’t be here at all. “We were told before she was even born that she wasn’t likely to survive,” says her mother, K’Shayla. After Grace — and her twin sister, ... Read More
Another shot for Conner: Getting back in the game after brain surgery
Watch Conner Hicks coach basketball at Midlakes Middle School in Clifton Springs, New York, and you’ll see a young man with a passion for the game. Talk to the players on his team and you’ll hear about a dedicated and enthusiastic role model. What you probably won’t notice is the 19-year-old’s fight with a brain ... Read More
Beating the odds with biliary atresia: Sarah’s story
Five-year-old Sarah Sirpenski loves watching TV shows about baking and is eager to try her hand at it herself. She likes to spend time in her family’s kitchen, measuring out imaginary cups of sugar and other ingredients, say her parents, Kate and Dan. One of her doctors even calls her “corn muffin” — although that ... Read More
I had a seizure. Here’s what I learned.
I was 11 when I had my seizure. I’m 15 now. I’ve learned a lot since that night, and I owe a lot of what I know to Dr. Alex Rotenberg and the team at Boston Children’s Hospital. They helped me understand what caused my seizure and how to prevent another one. But I’ve also ... Read More
Worth the wait: Evan’s transition story
On June 1, 2021, Evan Bonnevie stood outside Boston Children’s Hospital, nervous with anticipation. But he wasn’t there for an appointment. Instead, he was one of two patients who had been invited to help raise the rainbow and transgender flags as part of the hospital’s annual Pride celebration. For Evan, the flag raising was the ... Read More