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Your destination for kids' health

  • Thriving — not just surviving — as an adult with esophageal atresia

  • Hope in a new home: A family’s journey with HHT

    Rh alloimmunization: A family’s experience across two pregnancies

    The only way through it: How Sebastian learned to manage chronic pain

A teenage boy in a football helmet and uniform under stadium lights at night. His jersey reads: West Side

Stay chill, show up, move forward: Nolan’s journey with ITP

Patient Stories
At 18 years old, Nolan Ryan is an all-around athlete. Between basketball, football, and lacrosse, sports have shaped his daily life for years. He’s a true team player who shows up to every game with humility and dedication, whether he’s on the field or sitting on the sidelines. Like most student-athletes, Nolan had to balance ... Read More about Stay chill, show up, move forward: Nolan’s journey with ITP
Tagged: blood disorder, eosinophilic esophagitis
Child secured in a stroller with a padded harness, seated indoors in front of a wood wall with colorful circular decorations.

Small gains with big meaning: Loic’s story of deep brain stimulation for PKAN care

Patient Stories
Loic, 5, lives in Montana with his parents, Sherine and Mark, and his sister, Selah. He loves Spider-Man, sushi, and the Fourth of July. He laughs easily, sings along to his favorite shows, and is a big flirt. These are the little things that Sherine says make Loic, Loic, and which, until earlier this year, ... Read More about Small gains with big meaning: Loic’s story of deep brain stimulation for PKAN care
Tagged: cerebral palsy, epilepsy, Movement Disorders Program, neurosurgery
two young children smiling and wearing sunglasses

‘So much has changed’: Advances in XLH care help siblings thrive

Patient Stories
Learn more about our Skeletal Health Center.    When Stephanie Capone was a child, she was diagnosed with X-linked hypophosphatemia (XLH), a rare genetic condition that makes bones weak, soft, and easy to fracture. XLH, which can be passed down through families, can lead to difficulty walking, bowlegs, short stature, and other challenges. “I underwent ... Read More about ‘So much has changed’: Advances in XLH care help siblings thrive
Tagged: Skeletal Health Center
a teen boy playing football

A rare injury, a more determined player: Adrian’s knee dislocation

Patient Stories
Adrian can barely remember a time when he didn’t play football. Now 16, he grew up watching games with his father, Antron, who’d played for a top-tier college and practiced with the NFL. In addition to televised games, the two often traveled to Tennessee for football weekends with his father’s former teammates. “Football is a ... Read More about A rare injury, a more determined player: Adrian’s knee dislocation
Tagged: acl, orthopedics, sports injury
Two young women wearing pink shirts, standing together and smiling.

A reunion of the heart: Grace and Amy bond through HLHS

Patient Stories
At first glance, Grace and Amy have a pretty typical friendship: they joke around, cheer each other on, and keep in touch mostly through texts and FaceTime. But look a little deeper and there’s something extraordinary about their bond, or more specifically, how and where it began. Grace, 22, and Amy, 21, were both born ... Read More about A reunion of the heart: Grace and Amy bond through HLHS
Tagged: cardiac surgery, fetal cardiology, Fetal Care and Surgery Center, fetal surgery, heart, heart center, heart patient, hlhs
A young woman in her early 20s at Fenway Park wearing a Red Sox cap and jersey.

How a meniscal transplant made me a Boston sports fan

Patient Stories
I was in kindergarten when my knee started popping and cracking. My parents and I didn’t know it at the time, but I’d been born with discoid meniscus. The cartilage in my knee that was supposed to protect my shinbone and thighbone from rubbing together was misshapen and throwing my knee out of alignment.I had ... Read More about How a meniscal transplant made me a Boston sports fan
Tagged: orthopedics, surgery

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