Understanding and treating Mason’s congenital nevus
Kim and Ryan noticed their son’s birthmark almost immediately after he was born. They knew birthmarks were common, but Mason’s was different — it covered a large portion of his right leg and calf. Their doctor classified it as a giant congenital melanocytic nevus and suggested they monitor it closely, but that didn’t answer all ... Read More about Understanding and treating Mason’s congenital nevus
Unique data revealed just when Mickey’s heart doctors could operate
When Mikolaj “Mickey” Karski’s family traveled from Poland to Boston to get him heart care, they weren’t thinking about pressure-volume (PV) loops. His parents simply wanted him to receive treatment for a complex condition that he couldn’t get back home. Little did they know the mathematical computational power of those PV loops would play a ... Read More about Unique data revealed just when Mickey’s heart doctors could operate
No limitations: How Flora found answers for MOG antibody disease
Flora Ringler’s fifth birthday didn’t turn out as she had hoped. She and her family were vacationing in New Hampshire last year when she started feeling tired. But she wasn’t just worn out from celebrating: She also developed a bad headache and started throwing up. Concerned, her mom, Maureen, contacted a pediatrician, who thought she ... Read More about No limitations: How Flora found answers for MOG antibody disease
Genomic sequencing transforms a life: Asa’s story
Asa Cibelli feels like he’s been reborn. The straight-A middle schooler plays basketball and football, does jiu jitsu, is learning guitar, and can solve a Rubik’s cube in 40 seconds flat. But he once wondered if he’d ever feel better. From birth, Asa experienced chronic abdominal pain and severe diarrhea. The many doctors he saw ... Read More about Genomic sequencing transforms a life: Asa’s story
‘A football game changed my life’: Jamison’s non-directed kidney donation
When recess is your favorite school subject, and you’re so naturally funny that the adults in your life belly laugh after everything you say, you get the title of a “cool kid” — well, at least if you’re Jamison. At 10, Jamison has an easy-going attitude that you wouldn’t expect once you hear he experienced ... Read More about ‘A football game changed my life’: Jamison’s non-directed kidney donation
Using her voice: After tracheomalacia treatment, Claire keeps her eye on the ball
Claire Kantany is only 10, but she knows what she wants to do when she grows up — in fact, she’s already doing it. Combining an interest in acting with her family’s love of football, she has her mind set on a career in sportscasting. Not only is she reporting on local games from the sidelines, ... Read More about Using her voice: After tracheomalacia treatment, Claire keeps her eye on the ball