Blog

The brightest rainbow follows the darkest storm: Our PVS journey

Caroline is our rainbow baby, born after the loss of another child, the light and color arising after a storm passes. A rainbow baby lifts a family in desperate need of lifting. It is a beautiful thing that I hope you never experience. Caroline was born on Dec. 10, 2015. Just three months later, my ... Read More

It’s American Heart Month: Test your knowledge of congenital heart defects

Each year, about 1 percent of all babies are born with a congenital heart defect (CHD). This makes CHDs the most common type of birth defect in the United States. But how much do you know about congenital heart defects? Test your knowledge by taking our True/False quiz. True or False? A congenital heart defect ... Read More

Beating the odds and neuromuscular scoliosis: Colin’s story

Colin Newton has a way of surprising people. Born with a rare neuromuscular disorder, he spent the first three months of his life in the intensive care unit (ICU) struggling to breathe. Two and a half years later, and eight months after he underwent spinal surgery for neuromuscular scoliosis, Colin went skiing for the first ... Read More

HPV vaccine: What families should know

Nearly 42 million Americans are currently infected with human papillomavirus (HPV), and most adults will be infected at least once in their lives. For most, HPV goes away on its own. If it doesn’t, it can lead to certain cancers. HPV can be transmitted sexually or by nonpenetrative skin-to-skin contact. Often, HPV does not have signs or symptoms, ... Read More

The COVID-19 vaccine: Why some people of color hesitate

The COVID-19 pandemic has been especially hard on people of color. In addition to higher rates of infection, serious illness, and death, many Black and Latino communities have experienced profound economic hardship and increased anxiety and depression during the pandemic. Against this backdrop, the COVID-19 vaccines developed by Pfizer and Moderna might seem like great ... Read More

Two new approaches to identifying conduction tissue

Conduction cells in the heart are responsible for initiating contraction of the heart muscle. The inability to properly identify the location of conduction tissue in patients with congenital heart defects during heart surgery can lead to post-operative conduction abnormalities such as heart block or conduction delays. This necessitates the need for pacemakers, which leads to ... Read More

How do patients with cystic fibrosis respond to COVID-19? An ‘airway in a dish’ may give answers

So far, based on clinical data, patients with cystic fibrosis (CF) don’t appear to be especially susceptible to COVID-19. And when they do get infected, they don’t seem to get sicker. But Ruobing (Ruby) Wang, MD, who cares for patients with CF in the Division of Pulmonary Medicine at Boston Children’s Hospital, thinks there is ... Read More

Treating vascular rings: Sisters travel more than 3,000 miles for care

Nicky Dickerhoff is no stranger to caring for children: Not only is she a neonatal nurse practitioner, but she and her husband, Jake, have eight kids themselves. “We’re experienced parents,” she laughs. So when their daughter Harper briefly stopped breathing at just 3 weeks old, Nicky was skeptical at the initial diagnosis of reflux. Repeated ... Read More

Surgery during COVID-19: Answers for parents

Any time a child needs surgery, safety is a natural concern. With COVID-19, many parents are feeling more concerned than ever. “As a parent myself, one of the scariest things about this pandemic is that you’re often having to make decisions based on incomplete information, says Dr. Prathima Nandivada, an attending surgeon in the Department ... Read More

Getting COVID-19 vaccines to medically fragile children

As COVID-19 vaccines slowly roll out, should children who need complex care or have serious medical conditions be vaccinated? We asked experts around Boston Children’s Hospital, and their resounding answer is: Yes, if they are age 16 or older. Boston Children’s is actively planning to make vaccination happen for as many patients as possible, as ... Read More