Archive for Veronica Giarla
New online peritoneal dialysis simulator gives the power of education to patients
For years, patients who need peritoneal dialysis, a form of home-based treatment for kidney disease, have had to educate themselves about the approach. “Many families have never heard of peritoneal dialysis prior to their child’s diagnosis,” shares Dr. Deborah Stein, a nephrologist in the Division of Nephrology at Boston Children’s Hospital. The idea of peritoneal ... Read More about New online peritoneal dialysis simulator gives the power of education to patients
Tagged: complex care, nephrology, research
Emmie’s journey with type 1 diabetes and celiac disease
Emmie knows more about her own medical history than most children her age. Her journey to finding answers started when she was just 4 years old. She woke up one day looking “like I ate a bunch of blueberries or blackberries — my lips were turning blue,” explains Emmie, now 7. Her mom, Amanda, wasted ... Read More about Emmie’s journey with type 1 diabetes and celiac disease
Tagged: advocacy, celiac disease, diabetes
How transnasal endoscopy got Jamie back on the golf course
Jamie is like most 15-year-olds — he goes to school, hangs out with his friends, and still makes time to get outside to play some golf and baseball. However, when Jamie was having bouts of throwing up and getting food stuck in his throat, he and his mom, Tricia, knew it wasn’t just a case ... Read More about How transnasal endoscopy got Jamie back on the golf course
Tagged: aerodigestive, allergy, gastroenterology
Diving into summer: What to know about water safety
The sun is back, the temperatures are rising, and that means more of us will be heading towards the water to cool off. Whether your family is going to a pool, beach, lake, or pond, knowing how to keep your children safe when splashing in the water should be top of mind. We recently spoke ... Read More about Diving into summer: What to know about water safety
Tagged: primary care, primary care alliance, safety, summer safety
One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
When you’re a teen, it’s not very common to worry about what’s going on inside your body — especially not about potential organ failure. For Rob, now 14 years old, that happened in the blink of an eye. One day, he was scoring goals in soccer and hanging out with his friends. But in just ... Read More about One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
Tagged: liver disease, surgery, transplant
Making autism evaluations accessible: Boston Children’s tests virtual options
Many obstacles can delay a diagnosis of autism in children, including language barriers, waiting lists for evaluation, and access to care. At Boston Children’s Hospital, pediatrician Corinna Rea, MD, MPH, and her research team at Boston Children’s Primary Care are re-thinking the autism evaluation process to improve patient care. How the pandemic influenced a new ... Read More about Making autism evaluations accessible: Boston Children’s tests virtual options
Tagged: autism, autism research, autism spectrum disorder, telehealth
Running the Boston Marathon with a purpose: Ben’s liver transplant journey
Ben is no stranger to sports — in fact he’s probably the most excited when he’s able to get on a soccer field or with his team. This April, he’ll be running alongside the Boston Children’s Hospital team at the Boston Marathon! At 18 years old, Ben has already overcome incredible challenges, so taking on ... Read More about Running the Boston Marathon with a purpose: Ben’s liver transplant journey
Tagged: complex care, liver disease, transplant
We didn’t give up hope: Emily’s fighting chance with her lung transplant
Emily lights up every room she’s in with her giggles and confidence — not to mention her sparkly painted nails and glittery makeup. At 6 years old, she’s able to win people over with her bright smile and electric personality. All this is made possible because Emily was given the gift of life — an ... Read More about We didn’t give up hope: Emily’s fighting chance with her lung transplant
What every family should know about RSV
To help keep your family safe and informed about respiratory syncytial virus (RSV), we spoke to Dr. Kathleen Conroy, Clinical Chief for Children’s Hospital Primary Care Center (CHPCC). What is RSV and what are the symptoms? RSV is a virus that causes upper and lower respiratory tract infections, most commonly in children and infants; however, ... Read More about What every family should know about RSV
Tagged: fever, immunology, infectious diseases, pneumonia
Hirschprung’s disease won’t stop Myles from smiling
Looking at Myles today, you’ll see a picture-perfect 1-year-old full of smiles and giggles. He babbles like any other baby and has a lot of energy that keeps his parents on their toes. You wouldn’t know that the past 12 months have held a series of surprises for his parents — and life-changing treatment for ... Read More about Hirschprung’s disease won’t stop Myles from smiling