Archive for Jessica Cerretani
Beating the odds with biliary atresia: Sarah’s story
Five-year-old Sarah Sirpenski loves watching TV shows about baking and is eager to try her hand at it herself. She likes to spend time in her family’s kitchen, measuring out imaginary cups of sugar and other ingredients, say her parents, Kate and Dan. One of her doctors even calls her “corn muffin” — although that ... Read More about Beating the odds with biliary atresia: Sarah’s story
Boston Children’s post-COVID clinic cares for those with lasting symptoms
One teenager complains of chronic muscle pain. Another child feels too exhausted to go to school or play sports. Still another can’t shake the feeling of “brain fog” — memory and cognition challenges. Despite their different symptoms, all three patients have one thing in common: They’ve all had COVID-19, and they’re all experiencing lingering symptoms ... Read More about Boston Children’s post-COVID clinic cares for those with lasting symptoms
Coping with hepatoblastoma: It didn’t take magic for John’s family to find answers
John Ogden considers himself a bit of a wizard. When his dad, Nick, says he wishes he had a boat, the 5-year-old points to a picture of one and casts a magic spell, declaring, “Moonshine, moonlight, make this sailboat come to life!” “He’s a typical kid: inquisitive, imaginative, ornery, and fun,” says his mom, Julie. ... Read More about Coping with hepatoblastoma: It didn’t take magic for John’s family to find answers
Saving Laila: Family travels from Egypt for answers about rare genetic condition
When Aya Hendawy got off the plane that had brought her from Egypt to Boston, she didn’t linger in the airport or consider which tourist attractions to visit. Instead, she took a car directly to the Emergency Department at Boston Children’s Hospital, her daughter Laila in tow. “I asked them to please try to save ... Read More about Saving Laila: Family travels from Egypt for answers about rare genetic condition
What it’s like to have SDR surgery: Scarlet’s story
Scarlet is 9 years old. When she was 7, she underwent selective dorsal rhizotomy (SDR), a procedure in which a surgeon cuts certain nerves that may contribute to leg spasticity related to cerebral palsy. We talked with Scarlet and her parents, Darcie and Tyler, about their experience in the Cerebral Palsy and Spasticity Center at ... Read More about What it’s like to have SDR surgery: Scarlet’s story
Trusting their instincts: Gary’s parents find help for immune-mediated hepatitis
For Mercedes Hollingsworth and Gary Walker, Jr., trusting their parental instincts helped get their son Gary Walker III — affectionately known as GW — the care he needed. “We knew right away that something wasn’t right,” she says. “He just wasn’t a happy newborn. He looked miserable all the time.” Mercedes, who also has an ... Read More about Trusting their instincts: Gary’s parents find help for immune-mediated hepatitis
Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Norman Flores is near the top of his class at his Montessori preschool. He can recognize a Tesla just from the car’s symbol. And he’s picked up an extensive vocabulary from his parents, Sarah and Erick, and older brother, Edward. When Sarah and Erick share these accomplishments, they’re not just being proud parents — they’re ... Read More about Treating a ‘unicorn’: Norman’s incredible journey with vein of Galen malformation
Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Moyamoya is a rare blood vessel condition that has an outsized impact on children, as it is responsible for about 6 percent of pediatric strokes in the United States. Surgical revascularization is the only treatment and is very effective. However, clinicians face challenges in identifying new or worsening disease before a disabling stroke occurs, predicting ... Read More about Groundbreaking research identifies noninvasive biomarker for moyamoya in children
Predicting the best treatment for vesicoureteral reflux in kids: The power of machine learning
The result of abnormal formation of the normal valve between the kidney and bladder, vesicoureteral reflux (VUR) can lead to recurrent febrile urinary tract infections (UTIs) and kidney scarring in children. Previous research has shown that when taken continuously, prophylactic antibiotics can reduce the risk of recurrent UTI in about half of this population. However, ... Read More about Predicting the best treatment for vesicoureteral reflux in kids: The power of machine learning
Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life
Karlijn Kuiper was visiting her home country of the Netherlands a few years ago when the trouble began. At first, her family noticed she would zone out. “She had these strange spells where she would just stare,” remembers her mother, Marieke. At first, it didn’t occur to Karlijn’s family that they could be seizures. Like ... Read More about Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life