Archive for MFCC
Un hito en la Costa Este: El bebé Isaac está evolucionando después de una reparación fetoscópica por minilaparotomía de espina bífida abierta
Isaac Suardi aún no lo sabe, pero ya ha hecho historia. Recién nacido en julio, es el primer bebé en la Costa Este en someterse a una reparación quirúrgica fetoscópica por minilaparotomía de un defecto del tubo neural (DTN) mientras aún está en el útero de su madre. “Sinceramente, no pensamos demasiado en eso”, admite ... Read More about Un hito en la Costa Este: El bebé Isaac está evolucionando después de una reparación fetoscópica por minilaparotomía de espina bífida abierta
Baby Isaac is thriving after an East Coast first for a neural tube defect
Isaac Suardi doesn’t know it yet, but he’s already made history. Just born in July, he’s the first baby on the East Coast to undergo mini-laparotomy fetoscopic surgical repair of a neural tube defect (NTD) while still in his mother’s womb. “Honestly, we didn’t think too much about that,” admits his father, Chris. “We knew ... Read More about Baby Isaac is thriving after an East Coast first for a neural tube defect
‘Zero place for mistakes’: Taking fetal surgery to the next level with simulation
The highly complex interventions involved in fetal surgery require exceptional skill, training, and experience. Beyond the procedures themselves, these surgical scenarios depend on the ability of team members to work in concert. It’s a seamless collaboration that’s even more crucial when two patients — the pregnant person and fetus — are involved. When Boston Children’s ... Read More about ‘Zero place for mistakes’: Taking fetal surgery to the next level with simulation
Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
Jennifer worked as a hairdresser until just days before delivering her son, Isaac, last December, even though she had planned to stop a week earlier. Beating expectations must run in the family because Isaac has been doing just that since before he was even born. He has amazed everyone around him with how well he ... Read More about Beyond expectations: Treating Isaac’s teratoma through an EXIT procedure
For Ana Sofia: How one mom found prenatal care for fetal pleural effusion
Alexandra is the first to admit she asks a lot of questions and needs to know details. “I’m curious about everything, and I want to know everything,” she says. “I do my research. I’m a pretty resourceful person.” It’s something she says can be off-putting to some people, but it’s also what saved her daughter’s ... Read More about For Ana Sofia: How one mom found prenatal care for fetal pleural effusion
A partner through amniotic band syndrome: Jace’s story
Jace is a happy, energetic 9-month-old whose big brown eyes light up a room. He’s adored by his parents, Kait and Evan, who not only delight in being first-time parents but are also incredibly appreciative of the care that helped save their son. It was care that took a village, Kait and Evan say — ... Read More about A partner through amniotic band syndrome: Jace’s story
Guided by her own experience, one mom navigates Stickler syndrome with her children
Aimee is more than just Mum to three-year-old Arwen and one-year-old Cedric; she’s their guide to navigating Stickler syndrome, a genetic connective tissue disorder that can cause an underdeveloped jaw and airway obstruction (collectively known as Robin sequence), as well as cleft palate, vision and hearing difficulties, and other findings. As a carrier herself, Aimee ... Read More about Guided by her own experience, one mom navigates Stickler syndrome with her children
Finding comfort and answers for twin-twin transfusion syndrome: Shannon’s story
Shannon’s journey through a challenging pregnancy with TTTS (twin-twin transfusion syndrome) was, as she puts it, an emotional rollercoaster. In addition to the usual first-time parent jitters and the unexpected news of twins, Shannon and Mike navigated the emotional ups and downs of the rare pregnancy complication. TTTS put their twins at severe risk of ... Read More about Finding comfort and answers for twin-twin transfusion syndrome: Shannon’s story
After surgery for heart condition tetralogy of Fallot, James is all joy
Warriors come in all shapes and sizes. Some even smile. In the Irvine family, the lead warrior is a happy one: 6-month-old James, whose cheeriness hides the difficult medical journey he had in the first few months of life. “I have been told by many people that James is an inspiration,” says his mom, Heidi. ... Read More about After surgery for heart condition tetralogy of Fallot, James is all joy
Rowan the Remarkable: Defying the odds with CPAM
This is the story of a baby named Rowan and his remarkable journey of beating the odds after doctors discovered a potentially fatal mass on his lung in utero. This is also the story of his mother, Casey, who fought for him every step of the way, and the medical professionals whose collaboration and planning ... Read More about Rowan the Remarkable: Defying the odds with CPAM