Gracie’s complex spine
Halloween 2018 was no ordinary ghouls’ day for Gracie Neef. She and both her parents dressed up as the witches from “Hocus Pocus.” To Gracie’s delight, her father’s costume included a long, blonde wig. Even more unusual, Gracie was an inpatient at Boston Children’s Hospital. “The fact that Gracie was going to spend Halloween in ... Read More about Gracie’s complex spine
A gymnast gets her spring back
In order to master the pirouette, Mikayla Comeiro drew on many of the strengths she’d developed as a competitive gymnast: hours of practice, determination and physical stamina. To perform a pirouette, the gymnast swings herself into a handstand on the uneven bars and walks her hands around in a circle, rotating her entire body while ... Read More about A gymnast gets her spring back
‘Finally in the right place’: Peyton’s journey to Boston
When Peyton Miklas comes to Boston Children’s Hospital for an appointment, she isn’t just seeing Dr. Belinda Dickie, co-director of the Colorectal and Pelvic Malformation Center, or one of the other clinicians who care for her. The 18-month-old is also excited to visit with her buddy Bryson. The toddlers — who were born within a day of ... Read More about ‘Finally in the right place’: Peyton’s journey to Boston
Zaire’s superpowered heart: ‘I am Iron Man’
What do a 4-year-old from Brockton, Massachusetts and Marvel’s superhero Iron Man have in common? A lot more than you might think. Iron Man faces a heart injury that nearly kills him, but creates a suit of armor that protects his heart and gives him superpowers. Zaire was born with scimitar syndrome, a rare condition ... Read More about Zaire’s superpowered heart: ‘I am Iron Man’
Living his best life: Caring for Christian
Christian Jaspersen was wet, muddy — and having the time of his life. After an ATV ride around his family’s rural Oklahoma farm with their grandfather, he and his two older brothers plopped themselves into a nearby mud puddle, playing with toy trucks and getting wonderfully messy. “For a while, we didn’t know if Christian ... Read More about Living his best life: Caring for Christian
Having Faith: A novel approach to heart surgery
When Rachel and Rudy Fasano of New Haven, Connecticut learned they were having their first baby after three years of trying, they were overjoyed, as were their families. At Rachel’s 15-week ultrasound to learn their baby’s sex, both grandmothers were also in tow, eager to hear the news. But the visit delivered some unexpected results. ... Read More about Having Faith: A novel approach to heart surgery
Cole: Having a ball after CAR T-cell therapy
After undergoing a promising new treatment for acute lymphoblastic leukemia (ALL), Cole Malone is back to doing what he loves: playing on a flag football team with his twin brother, Michael. Cole and Michael, 14, already know plenty about teamwork. Michael served as a perfect-match donor when Cole had a stem cell transplant at Dana-Farber/Boston Children’s Cancer and Blood ... Read More about Cole: Having a ball after CAR T-cell therapy
The space between heartache and happiness: Two sons with adrenoleukodystrophy
When Paul and Liliana Rojas talk about their life, they describe it in one of two ways — the way it was before their sons, 10-year-old Brandon and 7-year-old Brian, were diagnosed with ALD, and the way it is after. Their story is one of heartbreak — but also hope, in the form of a ... Read More about The space between heartache and happiness: Two sons with adrenoleukodystrophy
Manny: Hoping new research helps others with sickle cell disease
Emmanuel “Manny” Johnson, Jr., shares many loves with his little brother, Aiden — from basketball to video games. One thing he wishes they did not share is sickle cell disease (SCD), so Manny is playing a role in a new effort to improve treatment for patients like 7-year-old Aiden, himself and others living with the inherited blood disorder. ... Read More about Manny: Hoping new research helps others with sickle cell disease
Returning to the stage after cubital tunnel syndrome
Bruno Silva can’t imagine his life without music. He has been playing bass guitar since he was 12 years old and performs at least once a week, often more. Born in Japan to Brazilian parents, Bruno has lived and performed in England, Brazil, Spain and the United States. He started out playing along to bands ... Read More about Returning to the stage after cubital tunnel syndrome