From Alabama for answers: Adella’s thyroid journey
She may only be 12 years old, but Adella Jackson has already expanded her family’s perspective. “She’s broadened our horizons,” says her mother, Cindy. “If it wasn’t for Adella, we never would have gotten to visit Boston, for example.” The Jacksons, who hail from Alabama, have loved exploring the city’s rich history and art museums ... Read More about From Alabama for answers: Adella’s thyroid journey
Doing everything possible for Gabby: A team approach to short bowel syndrome
Gabriel “Gabby” Lopez loves everything hot and spicy. “He will eat a ghost pepper without hesitation,” says his mother, Mayra. “He eats more spicy food than a grown man.” It’s an impressive feat, not only because Gabby is just 3 years old, but also because he has spent the majority of his life receiving his ... Read More about Doing everything possible for Gabby: A team approach to short bowel syndrome
Hemophilia A gene therapy paves the way for a life with less pain
Matthew Harrington, a 35-year-old oil-field worker from Douglas, Wyoming, knows pain. Born with hemophilia A, a rare condition in which the blood doesn’t clot properly, Matt’s body — both inside and outside — has difficulty stopping bleeding. He has what’s considered the most severe form of hemophilia, characterized by frequent bleeding episodes, particularly in the ... Read More about Hemophilia A gene therapy paves the way for a life with less pain
A complex repair for Ruby’s heart
When Rebecca and Michael Stewart learned their baby would be born with a congenital heart condition, they reacted as any expectant parents would, with shock and fear. But they quickly moved into action, focused on finding the best care for their daughter before her birth. “At about 22 weeks into my pregnancy, Ruby was diagnosed ... Read More about A complex repair for Ruby’s heart
Treatment for anorectal malformation gives Steven freedom and confidence
Steven York has “come a very long way,” says his mother, Beth — both literally and figuratively. In just seven years, he’s traveled from China to a new home in South Carolina, made multiple visits to Boston, and undergone a series of complex but ultimately life-changing surgical procedures. According to his adoption and hospital notes, ... Read More about Treatment for anorectal malformation gives Steven freedom and confidence
Asthma, softball, and COVID-19: Gwen’s story
Gwendolyn Castro has a competitive streak. Whether playing softball or debating topics like universal health care, the 15-year-old wants to be the best at whatever she does. Her mom, Alicia Cacho, doesn’t want Gwen’s asthma to hold her back in any way. Over the years, both have learned that the best way to keep asthma ... Read More about Asthma, softball, and COVID-19: Gwen’s story
Crista forms lifelong friendship with her cancer doctor
It’s impossible not to notice the connection between Crista Cardillo and Dr. Kim Stegmaier. The way they laugh and swap stories might make you think they grew up down the street from one another. But their friendship began differently than most: as patient and oncologist at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. When Crista was ... Read More about Crista forms lifelong friendship with her cancer doctor
Matt’s story: An innovative approach to midaortic syndrome
Until he was 12-and-a-half, Matt Sarracco had hardly missed a day of school. In fact, he had won awards for his near-perfect attendance. So it was concerning when, at a routine physical, his blood pressure soared to extremely high levels. “At first we thought the cuff must be broken,” says his mother, Kelly. But subsequent ... Read More about Matt’s story: An innovative approach to midaortic syndrome
Bone cancer surgery: A difficult choice
Nolan and Natasha might never have met if they hadn’t been diagnosed with bone cancer. Nolan, 13, is a natural athlete who lives in Maine. Natasha, 11, lives in Rhode Island and loves music and theater. As kids go, the two are pretty different — except for their osteosarcoma diagnoses and the surgery to remove ... Read More about Bone cancer surgery: A difficult choice
Isolde’s story: A concussion leads to 3PD
When Isolde Edson was injured in the fall of 2018, during the last junior varsity soccer game of the season, she had no idea she’d still be dealing with the repercussions nearly two years later. “During a home game at the end of the season, I jumped up to kick the ball, and a girl ... Read More about Isolde’s story: A concussion leads to 3PD