Archive for surgery
Family first: Nolan and Uncle Jon’s living donor kidney transplant
Nolan and his uncle Jon are both tall and blonde, but they now have something more in common: The two have an unbreakable bond, thanks to a selfless —and lucky — gift that changed Nolan’s life forever. The first year after Nolan was born, his primary care physician ran some blood work to try to ... Read More about Family first: Nolan and Uncle Jon’s living donor kidney transplant
Tagged: complex care, kidney failure, nutrition, surgery, transplant
One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
When you’re a teen, it’s not very common to worry about what’s going on inside your body — especially not about potential organ failure. For Rob, now 14 years old, that happened in the blink of an eye. One day, he was scoring goals in soccer and hanging out with his friends. But in just ... Read More about One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
Tagged: liver disease, surgery, transplant
Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
When Ann-Raleigh Murthy travels to Boston from her home in Louisiana, she has a list of “must-dos.” Among the highlights: Ride the swan boats in the Public Garden, swing by her favorite chocolate shop, go shopping — and visit with Dr. Carlos Estrada, Boston Children’s urologist-in-chief. Dr. Estrada, along with neurosurgeon Dr. Benjamin Warf, “are two ... Read More about Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
Tagged: hydrocephalus, spina bifida, surgery, urology
‘A picture-perfect life’: Makayla is thriving with OEIS syndrome
On a sunny day this spring, Makayla Brisson was on a mission: to find the two bunny rabbit sculptures in the rooftop garden of Boston Children’s Hale Family Building. As much fun as she was having, Makayla was distracted: She was anxiously waiting for her best friend, Aubree. And as Aubree and her parents entered ... Read More about ‘A picture-perfect life’: Makayla is thriving with OEIS syndrome
Years in the making: Team performs successful fetal intervention for VOGM
On an ordinary Wednesday in March, a team of specialists from two institutions made the extraordinary happen: a first-of-its-kind intervention for a rare, life-threatening type of blood vessel anomaly called a vein of Galen malformation (VOGM) — performed in utero. The ultrasound-guided embolization involves deploying tiny metal coils into the affected vein via a microcatheter ... Read More about Years in the making: Team performs successful fetal intervention for VOGM
No backing down: Sophia takes on a rare form of liver cancer
Sophia LaBorde is headstrong and “doesn’t back down,” says her mother, Alicia. So last year when Sophia had some gastrointestinal discomfort and a low appetite, she asked her parents to bring her to her local pediatrician. And when test after test ruled out more common culprits — lactose intolerance, heartburn, even thyroid disease — she ... Read More about No backing down: Sophia takes on a rare form of liver cancer
Tagged: cancer, liver disease, surgery
On her own terms: Robot-assisted procedure gives Sage more independence
At 19, Sage Nault has had multiple surgeries, aimed at addressing challenges related to myelomeningocele, the most severe form of spina bifida. But it’s her most recent operation that might have the greatest impact on her quality of life. Known as a Mitrofanoff appendicovesicostomy and a Malone antegrade continence enema (MACE), the combined procedure has ... Read More about On her own terms: Robot-assisted procedure gives Sage more independence
Tagged: hydrocephalus, spina bifida, surgery, urology
Changing the world: Baby Denver leads the way after first-of-its-kind procedure for VOGM
Denver Coleman is less than 2 months old, but she’s already helped blaze a trail for other children and families, a feat she accomplished before she was even born. Denver, who was diagnosed with a vein of Galen malformation — a type of rare blood vessel abnormality inside the brain — in utero, is the ... Read More about Changing the world: Baby Denver leads the way after first-of-its-kind procedure for VOGM
Tagged: brain health, fetal medicine, MFCC, surgery, vein of galen malformation
‘The teamwork is outstanding’: A look inside the Colorectal and Pelvic Malformation Center
In honor of Women’s History Month, we sat down with some of the clinicians in Boston Children’s Colorectal and Pelvic Malformation Center (CPMC), one of the only centers of its kind led and staffed primarily by women. Here’s what they had to say about their work, their patients — and their hopes for the future. ... Read More about ‘The teamwork is outstanding’: A look inside the Colorectal and Pelvic Malformation Center
Reconstructing a chest wall, one virtual step at a time
It takes a village of clinicians and engineers to reconstruct a chest wall. It also takes a lot of 3D modeling. A young girl needed to have her chest wall restructured to stop life-threatening airway obstruction. To ensure the complicated operation would be efficient, Emily Eickhoff, a Boston Children’s biomedical engineer, partnered with a team ... Read More about Reconstructing a chest wall, one virtual step at a time